Tag Archives: severe ME

August 8th 2018: Understanding & Remembrance Day for Severe ME

August 8th, 2018: Understanding and Remembrance Day for Severe ME, by Jody Smith in Phoenix Rising blog, 4 Aug 2018 Can you read these words I’ve written on this page? Good. Then you know that I am NOT an example … Continue reading

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‘A Girl Behind Dark Glasses’ book by Jessica Taylor-Bearman

‘A Girl Behind Dark Glasses’ book by Jessica Taylor-Bearman Book Description: From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro … Continue reading

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Improvement of severe ME/CFS symptoms following surgical treatment of cervical spinal stenosis

Article abstract: Improvement of severe myalgic encephalomyelitis/chronic fatigue syndrome symptoms following surgical treatment of cervical spinal stenosis, by Peter C Rowe, Colleen L Marden, Scott Heinlein, Charles C Edwards II in J Transl Med 2018 16: 21 [Published online 02 February 2018] … Continue reading

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Severe ME remembrance day, 8 August 2017

Stonebird: the experience of severe ME At the Stonebird website you can find resources to help you understand the experience of severe ME and how to care for people with it. The Stonebird represents the idea that you don’t have to … Continue reading

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What is known about severe & very severe CFS? A scoping review

Review abstract: What is known about severe and very severe chronic fatigue syndrome? A scoping review, by Victoria Strassheim, Rebecca Lambson, Katie L. Hackett, Julia L. Newton in Fatigue: Biomedicine, Health & Behavior [Preprint June 19, 2017] Background: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) affects … Continue reading

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Understanding severely affected CFS: the gravity of the situation

Review abstract: Understanding severely affected chronic fatigue syndrome (CFS): The gravity of the situation, by Victoria Strassheim, Robert Ballantine, Katie L. Hackett, James Frith, Julia L. Newton in Physical Therapy Reviews [Preprint May 25, 2017] Objective: To describe how the effects of gravity … Continue reading

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Expectations of recovery in severe ME could impose unreasonable, unrealistic, even fatal demands

Stonebird blog post, Mar 2017: 25% Group and Stonebird Response to BACME (British Association for ME/CFS), article on care provision for severe ME Response to BACME Working Group on Severe CFS/ME Shared Clinical Practice Document Version 1 When you work … Continue reading

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A recumbent isometric yoga program for patients with severe CFS/ME

Research abstract: BACKGROUND: Our previous randomized controlled trial demonstrated that isometric yoga in a sitting position reduces fatigue in patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). However, some patients experience difficulties sitting or practicing isometric yoga in a sitting position … Continue reading

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Life stories & photo-elicited diaries of people with severe ME/CFS

Thesis abstract: Myalgic Encephalomyelitis (ME) remains a controversial disease, shrouded in medical and social uncertainty. This thesis examines connections between language, space and representations of becoming diagnosed and living with the often severe effects of this chronic illness. Dominant medical and political institutions, often … Continue reading

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MEA to fund new research into biomarkers and markers of disease activity in people with severe ME/CFS

ME Association announcement, 20 December 2016: MEA to fund new research into biomarkers and markers of disease activity in people with severe ME/CFS We are pleased to announce that – following the normal rigorous peer review procedures – the MEA Ramsay … Continue reading

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