Tag Archives: severe ME
Research: Predictors for developing severe ME/CFS following infectious Mononucleosis
Predictors for developing severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome following infectious Mononucleosis, by Leonard A Jason, Joseph Cotler, Mohammed F Islam, Jacob Furst, Ben Z Katz in Journal of Rehabilitation Therapy, 2022;4(1):1-5, February 21, 2022 Research abstract: Background: About 10% … Continue reading
Research review: Immunoglobulin therapy for ME/CFS
Back to the Future? Immunoglobulin therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Helen Brownlie and Nigel Speight in Healthcare 2021, 9(11), 1546; [doi.org/10.3390/healthcare9111546] 12 Nov 2021 (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected) … Continue reading
Make severe ME visible – Severe ME day, Sun 8 Aug 2021
Making severe ME visible An estimated 25% of people with ME are so ill they rarely leave their homes or beds. They feel invisible and ignored. On Severe ME day each year, 8th August, we make a special effort … Continue reading
Introducing WAMES volunteer with severe ME: Michelle
Introducing WAMES trustee & social media volunteer: Michelle Penny Hello, my name is Michelle. I was diagnosed with ME at the age of 10, although it is thought I may have had the condition for about 2 years before … Continue reading
Elements of suffering in ME/CFS… in the severely & very severely affected
Elements of suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the experience of loss, grief, stigma, and trauma in the severely and very severely affected, by Patricia A Fennell, Nancy Dorr and Shane S George in Healthcare 2021, 9(5), 553; [doi.org/10.3390/healthcare9050553] 9 May … Continue reading
‘Having severe ME/CFS is so close to being dead’: extremely severe ME/CFS – a personal account’
Extremely severe ME/CFS — A personal account, by Whitney Dafoe in Healthcare Vol 9, #5, p 504, April 27, 2021 [doi.org/10.3390/healthcare9050504] Article abstract: A personal account from an Extremely Severe Bedridden ME/CFS patient about the experience of living with extremely … Continue reading
Experiences of living with severe CFS/ME
Experiences of living with severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, by Victoria Strassheim, Julia L Newton and Tracy Collins in Healthcare 2021, 9(2), 168 [doi.org/10.3390/healthcare9020168] (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected) Research … Continue reading
Demystifying ME/CFS: talk by Dr Shepherd, Dr Muirhead & Caroline Kingdon RN
UK Cambridge University GP Society: Demystifying ME/CFS On 14 January an online event about ME/CFS was held by the CUGPS for healthcare professionals, students and patients. Speakers: Dr Charles Shepherd (starts 3 mins) – Dispelling common misconceptions about ME/CFS … Continue reading
NICE ME/CFS draft guideline – make adjustments to help patients access services
NICE ME/CFS draft guideline: provide help to access services The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in the … Continue reading
The profile of circulating microRNAs in ME & their relation to symptom severity, & disease pathophysiology
Profile of circulating microRNAs in myalgic encephalomyelitis and their relation to symptom severity, and disease pathophysiology, by Evguenia Nepotchatykh, Wesam Elremaly, Iurie Caraus, Christian Godbout, Corinne Leveau, Lynda Chalder, Catherine Beaudin, Emi Kanamaru, Renata Kosovskaia, Shawn Lauzon, Yanick Maillet, Anita Franco, … Continue reading
