Tag Archives: severe ME

Assessing diagnostic value of microRNAs from peripheral blood mononuclear cells & extracellular vesicles in ME/CFS

Posted on February 17, 2020 by wames

Assessing diagnostic value of microRNAs from peripheral blood mononuclear cells and extracellular vesicles in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Eloy Almenar-Pérez, Leonor Sarría, Lubov Nathanson & Elisa Oltra in Scientific Reports vol 10, no: 2064 (2020)   Research abstract: Myalgic … Continue reading →

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Survey of severe ME – help inform the NICE guidelines

Posted on November 14, 2019 by wames

Survey of severe ME Dr Keith Geraghty & Manchester University are conducting a study to better understand the needs and views of patients with severe ME/CFS. This project has been commissioned by the National Institute of Health and Care Excellence (NICE) … Continue reading →

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With severe ME, everything is cut off from possibility

Posted on August 8, 2019 by wames

by Greg Crowhurst, Stonebird

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Severe ME: complex, unpredictable symptoms

Posted on August 8, 2019 by wames

Stonebird – the lived experience of severe ME

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The frail teenager set to spend all of her summer holidays in her bedroom

Posted on August 8, 2019 by wames

Wales online blog post: The frail teenager set to spend all of her summer holidays in her bedroom, by Mark Smith, 6 August 2019 Lola Brandrick, 13, from Swansea, is crippled by pain and is constantly exhausted While all her … Continue reading →

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Cardiff woman with ME is fundraising for private brain photobiomodulation therapy

Posted on May 1, 2019 by wames

Fundraising for brain photobiomodulation therapy Jonathan Vaughan has despaired of getting help from his local health service, who are unwilling to even supply home visits in Cardiff for his seriously ill fiancée, and has set up a fund raising campaign … Continue reading →

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Evidence of clinical pathology abnormalities in people with ME/CFS…

Posted on April 15, 2019 by wames

Evidence of clinical pathology abnormalities in people with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) from an analytic cross-sectional study, by Luis Nacul, Barbara de Barros, Caroline C Kingdon, Jacqueline M Cliff, Taane G Clark, Kathleen Mudie, Hazel M Dockrell, Eliana … Continue reading →

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Defining the prevalence & symptom burden of those with self-reported severe CFS/ME

Posted on September 24, 2018 by wames

Defining the prevalence and symptom burden of those with self-reported severe chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): A two-phase community pilot study in the North East of England, by Victoria Jane Strassheim,  Madison Sunnquist, Leonard A Jason, Julia L Newton in BMJ Open Vol 19, #8, p e020775 [Published: … Continue reading →

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August 8th 2018: Understanding & Remembrance Day for Severe ME

Posted on August 8, 2018 by wames

August 8th, 2018: Understanding and Remembrance Day for Severe ME, by Jody Smith in Phoenix Rising blog, 4 Aug 2018 Can you read these words I’ve written on this page? Good. Then you know that I am NOT an example … Continue reading →

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‘A Girl Behind Dark Glasses’ book by Jessica Taylor-Bearman

Posted on July 12, 2018 by wames

‘A Girl Behind Dark Glasses’ book by Jessica Taylor-Bearman Book Description: From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro … Continue reading →

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