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Latest News
- Introducing WAMES volunteers: Jan Russell
- Specifics of CFS coping strategies identified in a French flash survey during the COVID-19 containment
- Insights into metabolite diagnostic biomarkers for ME/CFS
- WAMES is growing to meet the challenges of 2021
- New study shows reduced ability to regulation of the cardiovascular system in patients with ME/CFS
Archives
Tag Archives: severe ME
Experiences of living with severe CFS/ME
Experiences of living with severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, by Victoria Strassheim, Julia L Newton and Tracy Collins in Healthcare 2021, 9(2), 168 [doi.org/10.3390/healthcare9020168] (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected) Research … Continue reading
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Tagged housebound, Prof Julia Newton, severe ME, Tracy Collins, Victoria Strassheim
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Demystifying ME/CFS: talk by Dr Shepherd, Dr Muirhead & Caroline Kingdon RN
UK Cambridge University GP Society: Demystifying ME/CFS On 14 January an online event about ME/CFS was held by the CUGPS for healthcare professionals, students and patients. Speakers: Dr Charles Shepherd (starts 3 mins) – Dispelling common misconceptions about ME/CFS … Continue reading
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Tagged aetiology, Caroline Kingdon, case study, diagnosis, Dr Charles Shepherd, Dr Nina Muirhead, home visits, management, severe ME
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NICE ME/CFS draft guideline – make adjustments to help patients access services
NICE ME/CFS draft guideline: provide help to access services The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in the … Continue reading
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Tagged disability aids, home adaptations, hospital admissions, Independant living, National Institute for Health and Care Excellence, NICE guideline ME/CFS, severe ME
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The profile of circulating microRNAs in ME & their relation to symptom severity, & disease pathophysiology
Profile of circulating microRNAs in myalgic encephalomyelitis and their relation to symptom severity, and disease pathophysiology, by Evguenia Nepotchatykh, Wesam Elremaly, Iurie Caraus, Christian Godbout, Corinne Leveau, Lynda Chalder, Catherine Beaudin, Emi Kanamaru, Renata Kosovskaia, Shawn Lauzon, Yanick Maillet, Anita Franco, … Continue reading
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Tagged Anita Franco, Catherine Beaudin, Christian Godbout, Corinne Leveau, Dawei Li, Dr Alain Moreau, Emi Kanamaru, Evguenia Nepotchatykh, Iurie Carausus, Lynda Chalder, microRNAs, PEM, Post-exertional malaise, Renata Kosovskaia, Saadallah Bouhanik, severe ME, Shawn Lauzon, Viorica Lascau-Coman, Wesam Elremaly, Yaned Patricia Gaitan, Yanick Maillet
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NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient
NICE says there is no ‘one size fits all’ approach to managing ME/CFS symptoms. It stresses the need for a tailored, individualised approach to care that allows joint decision making and informed choice. The draft NICE guideline is open … Continue reading
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Tagged children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, paediatric ME, severe ME, young people
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Reductions in cerebral blood flow can be provoked by sitting in severe ME/CFS patients
Reductions in cerebral blood flow can be provoked by sitting in severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients, by C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Healthcare 2020, 8(4), 394 [doi.org/10.3390/healthcare8040394] Research abstract: Introduction: In … Continue reading
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Tagged CBF, cerebral blood flow, Dr Linda van Campen, Dr Peter Rowe, Fibromyalgia, Frans C Visser, head-up tilt test, OI, orthostatic intolerance, postural orthostatic tachycardia syndrome, POTS, severe ME
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Video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients
Dialogues ME-CFS video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients. A new 16 minute video has been published in the Severe ME series on the Dialogues ME-CFS website Contributers include: Dr Nigel Speight, Dr Luis … Continue reading
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Tagged Dialogues ME-CFS, Dr Luis Nacul, Dr Nigel Speight, hospital admissions, severe ME, video
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Severe ME in children
Severe ME in children, by Nigel Speight in Healthcare Vol 8, #3 p 211, July 14, 2020 [This article belongs to the Special Issue ME/CFS] Guideline abstract current problem regarding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is the large … Continue reading
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Tagged CBT, children, cognitive behavioural therapy, Dr Nigel Speight, Fabricated or Induced Illness, GET, graded exercise therapy, immunoglobulin, paediatric ME, PEM, Pervasive Refusal Syndrome, Post-exertional malaise, severe ME
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Health Care responsibility & compassion-visiting the housebound patient severely affected by ME/CFS
Health Care responsibility and compassion-visiting the housebound patient severely affected by ME/CFS, by Caroline Kingdon, Dionysius Giotas, Luis Nacul and Eliana Lacerda in Healthcare 2020, 8(3), 197 [doi.org/10.3390/healthcare8030197] [This article belongs to the Special Issue ME/CFS – the Severely and … Continue reading
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Tagged bedbound, Caroline Kingdon, Compassion in practice, Dionysius Giotas, doctor patient relationship, Dr Luis Nacul, Eliana Lacerda, housebound, illness invalidation, severe ME
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Two-Day cardiopulmonary exercise testing in females with a severe grade of ME/CFS: comparison with patients with mild & moderate disease
Two-Day cardiopulmonary exercise testing in females with a severe grade of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: comparison with patients with mild and moderate disease, by C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Healthcare 2020, 8(3), … Continue reading
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Tagged 2-day CPET, cardiopulmonary exercise testing, Dr Linda van Campen, Dr Peter Rowe, Prof Hans Visser, severe ME, VO2 VT, VO2peak
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