-
Latest News
- Research: CFS: an emerging sequela in COVID-19 survivors? (Italy)
- Last few days of WAMES survey – tell us about your GP consultations
- Viewpoint: Weir & Speight – ME/CFS: Past, present & future
- Hypothesis: A paradigm for CFS… cranial venous outflow obstruction
- Research: Effect of dietary Coenzyme Q10 plus NADH supplementation on fatigue perception & health-related quality of life in ME/CFS
Archives
Tag Archives: severe ME
Elements of suffering in ME/CFS… in the severely & very severely affected
Elements of suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the experience of loss, grief, stigma, and trauma in the severely and very severely affected, by Patricia A Fennell, Nancy Dorr and Shane S George in Healthcare 2021, 9(5), 553; [doi.org/10.3390/healthcare9050553] 9 May … Continue reading
Posted in News
Tagged extremely severe ME, Fennell Four-Phase Model, grief, Nancy Dorr, Patricia A Fennell, severe ME, Shane S George, stress, suicide, trauma, uncertainty
Comments Off on Elements of suffering in ME/CFS… in the severely & very severely affected
‘Having severe ME/CFS is so close to being dead’: extremely severe ME/CFS – a personal account’
Extremely severe ME/CFS — A personal account, by Whitney Dafoe in Healthcare Vol 9, #5, p 504, April 27, 2021 [doi.org/10.3390/healthcare9050504] Article abstract: A personal account from an Extremely Severe Bedridden ME/CFS patient about the experience of living with extremely … Continue reading
Posted in News
Tagged extremely severe ME, severe ME, suicide, Whitney Dafoe
Comments Off on ‘Having severe ME/CFS is so close to being dead’: extremely severe ME/CFS – a personal account’
Experiences of living with severe CFS/ME
Experiences of living with severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, by Victoria Strassheim, Julia L Newton and Tracy Collins in Healthcare 2021, 9(2), 168 [doi.org/10.3390/healthcare9020168] (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected) Research … Continue reading
Posted in News
Tagged housebound, Prof Julia Newton, severe ME, Tracy Collins, Victoria Strassheim
Comments Off on Experiences of living with severe CFS/ME
Demystifying ME/CFS: talk by Dr Shepherd, Dr Muirhead & Caroline Kingdon RN
UK Cambridge University GP Society: Demystifying ME/CFS On 14 January an online event about ME/CFS was held by the CUGPS for healthcare professionals, students and patients. Speakers: Dr Charles Shepherd (starts 3 mins) – Dispelling common misconceptions about ME/CFS … Continue reading
Posted in News
Tagged aetiology, Caroline Kingdon, case study, diagnosis, Dr Charles Shepherd, Dr Nina Muirhead, home visits, management, severe ME
Comments Off on Demystifying ME/CFS: talk by Dr Shepherd, Dr Muirhead & Caroline Kingdon RN
NICE ME/CFS draft guideline – make adjustments to help patients access services
NICE ME/CFS draft guideline: provide help to access services The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in the … Continue reading
Posted in News
Tagged disability aids, home adaptations, hospital admissions, Independant living, National Institute for Health and Care Excellence, NICE guideline ME/CFS, severe ME
Comments Off on NICE ME/CFS draft guideline – make adjustments to help patients access services
The profile of circulating microRNAs in ME & their relation to symptom severity, & disease pathophysiology
Profile of circulating microRNAs in myalgic encephalomyelitis and their relation to symptom severity, and disease pathophysiology, by Evguenia Nepotchatykh, Wesam Elremaly, Iurie Caraus, Christian Godbout, Corinne Leveau, Lynda Chalder, Catherine Beaudin, Emi Kanamaru, Renata Kosovskaia, Shawn Lauzon, Yanick Maillet, Anita Franco, … Continue reading
Posted in News
Tagged Anita Franco, Catherine Beaudin, Christian Godbout, Corinne Leveau, Dawei Li, Dr Alain Moreau, Emi Kanamaru, Evguenia Nepotchatykh, Iurie Carausus, Lynda Chalder, microRNAs, PEM, Post-exertional malaise, Renata Kosovskaia, Saadallah Bouhanik, severe ME, Shawn Lauzon, Viorica Lascau-Coman, Wesam Elremaly, Yaned Patricia Gaitan, Yanick Maillet
Comments Off on The profile of circulating microRNAs in ME & their relation to symptom severity, & disease pathophysiology
NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient
NICE says there is no ‘one size fits all’ approach to managing ME/CFS symptoms. It stresses the need for a tailored, individualised approach to care that allows joint decision making and informed choice. The draft NICE guideline is open … Continue reading
Posted in News
Tagged children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, paediatric ME, severe ME, young people
Comments Off on NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient
Reductions in cerebral blood flow can be provoked by sitting in severe ME/CFS patients
Reductions in cerebral blood flow can be provoked by sitting in severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients, by C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Healthcare 2020, 8(4), 394 [doi.org/10.3390/healthcare8040394] Research abstract: Introduction: In … Continue reading
Posted in News
Tagged CBF, cerebral blood flow, Dr Linda van Campen, Dr Peter Rowe, Fibromyalgia, Frans C Visser, head-up tilt test, OI, orthostatic intolerance, postural orthostatic tachycardia syndrome, POTS, severe ME
Comments Off on Reductions in cerebral blood flow can be provoked by sitting in severe ME/CFS patients
Video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients
Dialogues ME-CFS video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients. A new 16 minute video has been published in the Severe ME series on the Dialogues ME-CFS website Contributers include: Dr Nigel Speight, Dr Luis … Continue reading
Posted in News
Tagged Dialogues ME-CFS, Dr Luis Nacul, Dr Nigel Speight, hospital admissions, severe ME, video
Comments Off on Video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients
Severe ME in children
Severe ME in children, by Nigel Speight in Healthcare Vol 8, #3 p 211, July 14, 2020 [This article belongs to the Special Issue ME/CFS] Guideline abstract The current problem regarding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is the … Continue reading
Posted in News
Tagged CBT, children, cognitive behavioural therapy, Dr Nigel Speight, Fabricated or Induced Illness, GET, graded exercise therapy, immunoglobulin, paediatric ME, PEM, Pervasive Refusal Syndrome, Post-exertional malaise, severe ME
Comments Off on Severe ME in children
