Tag Archives: severe ME

Demystifying ME/CFS: talk by Dr Shepherd, Dr Muirhead & Caroline Kingdon RN

Posted on 01/18/2021 by wames

UK Cambridge University GP Society: Demystifying ME/CFS   On 14 January an online event about ME/CFS was held by the CUGPS for healthcare professionals, students and patients. Speakers: Dr Charles Shepherd (starts 3 mins) – Dispelling common misconceptions about ME/CFS … Continue reading →

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NICE ME/CFS draft guideline – make adjustments to help patients access services

Posted on 11/30/2020 by wames

NICE ME/CFS draft guideline: provide help to access services   The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in the … Continue reading →

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The profile of circulating microRNAs in ME & their relation to symptom severity, & disease pathophysiology

Posted on 11/25/2020 by wames

Profile of circulating microRNAs in myalgic encephalomyelitis and their relation to symptom severity, and disease pathophysiology, by Evguenia Nepotchatykh, Wesam Elremaly, Iurie Caraus, Christian Godbout, Corinne Leveau, Lynda Chalder, Catherine Beaudin, Emi Kanamaru, Renata Kosovskaia, Shawn Lauzon, Yanick Maillet, Anita Franco, … Continue reading →

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NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient

Posted on 11/13/2020 by wames

NICE says there is no ‘one size fits all’ approach to managing ME/CFS symptoms. It stresses the need for a tailored, individualised approach to care that allows joint decision making and informed choice.   The draft NICE guideline is open … Continue reading →

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Reductions in cerebral blood flow can be provoked by sitting in severe ME/CFS patients

Posted on 10/12/2020 by wames

Reductions in cerebral blood flow can be provoked by sitting in severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients, by C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Healthcare 2020, 8(4), 394 [doi.org/10.3390/healthcare8040394]   Research abstract: Introduction: In … Continue reading →

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Video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients

Posted on 07/28/2020 by wames

Dialogues ME-CFS video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients.   A new 16 minute video has been published in the Severe ME series on the Dialogues ME-CFS website   Contributers include: Dr Nigel Speight, Dr  Luis … Continue reading →

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Severe ME in children

Posted on 07/17/2020 by wames

Severe ME in children, by Nigel Speight in Healthcare Vol 8, #3 p 211, July 14, 2020 [This article belongs to the Special Issue ME/CFS]   Guideline abstract  current problem regarding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is the large … Continue reading →

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Health Care responsibility & compassion-visiting the housebound patient severely affected by ME/CFS

Posted on 07/16/2020 by wames

Health Care responsibility and compassion-visiting the housebound patient severely affected by ME/CFS, by  Caroline Kingdon, Dionysius Giotas, Luis Nacul and Eliana Lacerda in Healthcare 2020, 8(3), 197 [doi.org/10.3390/healthcare8030197] [This article belongs to the Special Issue ME/CFS – the Severely and … Continue reading →

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Two-Day cardiopulmonary exercise testing in females with a severe grade of ME/CFS: comparison with patients with mild & moderate disease

Posted on 07/14/2020 by wames

Two-Day cardiopulmonary exercise testing in females with a severe grade of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: comparison with patients with mild and moderate disease, by  C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Healthcare 2020, 8(3), … Continue reading →

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Dental considerations for a patient with ME/CFS – a case study

Posted on 07/08/2020 by wames

Dental considerations for a patient with Myalgic Encephalopathy/ Chronic Fatigue Syndrome – a case study, by Serena Halsall in Journal of Disability and Oral Health Vol 20, #3  October 1, 2019   Abstract Myalgic Encephalopathy, also known as Chronic Fatigue … Continue reading →

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