Tag Archives: severe ME

Experiences of living with severe CFS/ME

Experiences of living with severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, by  Victoria Strassheim, Julia L Newton and Tracy Collins in Healthcare 2021, 9(2), 168 [doi.org/10.3390/healthcare9020168] (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected)   Research … Continue reading

Posted in News | Tagged , , , , | Comments Off on Experiences of living with severe CFS/ME

Demystifying ME/CFS: talk by Dr Shepherd, Dr Muirhead & Caroline Kingdon RN

UK Cambridge University GP Society: Demystifying ME/CFS   On 14 January an online event about ME/CFS was held by the CUGPS for healthcare professionals, students and patients. Speakers: Dr Charles Shepherd (starts 3 mins) – Dispelling common misconceptions about ME/CFS … Continue reading

Posted in News | Tagged , , , , , , , , | Comments Off on Demystifying ME/CFS: talk by Dr Shepherd, Dr Muirhead & Caroline Kingdon RN

NICE ME/CFS draft guideline – make adjustments to help patients access services

NICE ME/CFS draft guideline: provide help to access services   The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in the … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on NICE ME/CFS draft guideline – make adjustments to help patients access services

The profile of circulating microRNAs in ME & their relation to symptom severity, & disease pathophysiology

Profile of circulating microRNAs in myalgic encephalomyelitis and their relation to symptom severity, and disease pathophysiology, by Evguenia Nepotchatykh, Wesam Elremaly, Iurie Caraus, Christian Godbout, Corinne Leveau, Lynda Chalder, Catherine Beaudin, Emi Kanamaru, Renata Kosovskaia, Shawn Lauzon, Yanick Maillet, Anita Franco, … Continue reading

Posted in News | Tagged , , , , , , , , , , , , , , , , , , , , | Comments Off on The profile of circulating microRNAs in ME & their relation to symptom severity, & disease pathophysiology

NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient

NICE says there is no ‘one size fits all’ approach to managing ME/CFS symptoms. It stresses the need for a tailored, individualised approach to care that allows joint decision making and informed choice.   The draft NICE guideline is open … Continue reading

Posted in News | Tagged , , , , , | Comments Off on NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient

Reductions in cerebral blood flow can be provoked by sitting in severe ME/CFS patients

Reductions in cerebral blood flow can be provoked by sitting in severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients, by C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Healthcare 2020, 8(4), 394 [doi.org/10.3390/healthcare8040394]   Research abstract: Introduction: In … Continue reading

Posted in News | Tagged , , , , , , , , , , , | Comments Off on Reductions in cerebral blood flow can be provoked by sitting in severe ME/CFS patients

Video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients

Dialogues ME-CFS video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients.   A new 16 minute video has been published in the Severe ME series on the Dialogues ME-CFS website   Contributers include: Dr Nigel Speight, Dr  Luis … Continue reading

Posted in News | Tagged , , , , , | Comments Off on Video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients

Severe ME in children

Severe ME in children, by Nigel Speight in Healthcare Vol 8, #3 p 211, July 14, 2020 [This article belongs to the Special Issue ME/CFS]   Guideline abstract  current problem regarding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is the large … Continue reading

Posted in News | Tagged , , , , , , , , , , , , | Comments Off on Severe ME in children

Health Care responsibility & compassion-visiting the housebound patient severely affected by ME/CFS

Health Care responsibility and compassion-visiting the housebound patient severely affected by ME/CFS, by  Caroline Kingdon, Dionysius Giotas, Luis Nacul and Eliana Lacerda in Healthcare 2020, 8(3), 197 [doi.org/10.3390/healthcare8030197] [This article belongs to the Special Issue ME/CFS – the Severely and … Continue reading

Posted in News | Tagged , , , , , , , , , | Comments Off on Health Care responsibility & compassion-visiting the housebound patient severely affected by ME/CFS

Two-Day cardiopulmonary exercise testing in females with a severe grade of ME/CFS: comparison with patients with mild & moderate disease

Two-Day cardiopulmonary exercise testing in females with a severe grade of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: comparison with patients with mild and moderate disease, by  C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Healthcare 2020, 8(3), … Continue reading

Posted in News | Tagged , , , , , , , | Comments Off on Two-Day cardiopulmonary exercise testing in females with a severe grade of ME/CFS: comparison with patients with mild & moderate disease