Tag Archives: severe ME

Cardiff woman with ME is fundraising for private brain photobiomodulation therapy

Posted on May 1, 2019 by wames

Fundraising for brain photobiomodulation therapy Jonathan Vaughan has despaired of getting help from his local health service, who are unwilling to even supply home visits in Cardiff for his seriously ill fiancée, and has set up a fund raising campaign … Continue reading →

Posted in News | Tagged , , , , | Comments Off on Cardiff woman with ME is fundraising for private brain photobiomodulation therapy

Evidence of clinical pathology abnormalities in people with ME/CFS…

Posted on April 15, 2019 by wames

Evidence of clinical pathology abnormalities in people with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) from an analytic cross-sectional study, by Luis Nacul, Barbara de Barros, Caroline C Kingdon, Jacqueline M Cliff, Taane G Clark, Kathleen Mudie, Hazel M Dockrell, Eliana … Continue reading →

Posted in News | Tagged , , , , , , , , , , , , , , | Comments Off on Evidence of clinical pathology abnormalities in people with ME/CFS…

Defining the prevalence & symptom burden of those with self-reported severe CFS/ME

Posted on September 24, 2018 by wames

Defining the prevalence and symptom burden of those with self-reported severe chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): A two-phase community pilot study in the North East of England, by Victoria Jane Strassheim,  Madison Sunnquist, Leonard A Jason, Julia L Newton in BMJ Open Vol 19, #8, p e020775 [Published: … Continue reading →

Posted in News | Tagged , , , , | Comments Off on Defining the prevalence & symptom burden of those with self-reported severe CFS/ME

August 8th 2018: Understanding & Remembrance Day for Severe ME

Posted on August 8, 2018 by wames

August 8th, 2018: Understanding and Remembrance Day for Severe ME, by Jody Smith in Phoenix Rising blog, 4 Aug 2018 Can you read these words I’ve written on this page? Good. Then you know that I am NOT an example … Continue reading →

Posted in News | Tagged , , , | Comments Off on August 8th 2018: Understanding & Remembrance Day for Severe ME

‘A Girl Behind Dark Glasses’ book by Jessica Taylor-Bearman

Posted on July 12, 2018 by wames

‘A Girl Behind Dark Glasses’ book by Jessica Taylor-Bearman Book Description: From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro … Continue reading →

Posted in News | Tagged , , | Comments Off on ‘A Girl Behind Dark Glasses’ book by Jessica Taylor-Bearman

Improvement of severe ME/CFS symptoms following surgical treatment of cervical spinal stenosis

Posted on February 5, 2018 by wames

Article abstract: Improvement of severe myalgic encephalomyelitis/chronic fatigue syndrome symptoms following surgical treatment of cervical spinal stenosis, by Peter C Rowe, Colleen L Marden, Scott Heinlein, Charles C Edwards II in J Transl Med 2018 16: 21 [Published online 02 February 2018] … Continue reading →

Posted in News | Tagged , , , , , , | Comments Off on Improvement of severe ME/CFS symptoms following surgical treatment of cervical spinal stenosis

Severe ME remembrance day, 8 August 2017

Posted on August 8, 2017 by wames

Stonebird: the experience of severe ME At the Stonebird website you can find resources to help you understand the experience of severe ME and how to care for people with it. The Stonebird represents the idea that you don’t have to … Continue reading →

Posted in News | Tagged , | Comments Off on Severe ME remembrance day, 8 August 2017

What is known about severe & very severe CFS? A scoping review

Posted on June 24, 2017 by wames

Review abstract: What is known about severe and very severe chronic fatigue syndrome? A scoping review, by Victoria Strassheim, Rebecca Lambson, Katie L. Hackett, Julia L. Newton in Fatigue: Biomedicine, Health & Behavior [Preprint June 19, 2017] Background: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) affects … Continue reading →

Posted in News | Tagged , , , , | Comments Off on What is known about severe & very severe CFS? A scoping review

Understanding severely affected CFS: the gravity of the situation

Posted on June 22, 2017 by wames

Review abstract: Understanding severely affected chronic fatigue syndrome (CFS): The gravity of the situation, by Victoria Strassheim, Robert Ballantine, Katie L. Hackett, James Frith, Julia L. Newton in Physical Therapy Reviews [Preprint May 25, 2017] Objective: To describe how the effects of gravity … Continue reading →

Posted in News | Tagged , , , , , , , , , , | Comments Off on Understanding severely affected CFS: the gravity of the situation

Expectations of recovery in severe ME could impose unreasonable, unrealistic, even fatal demands

Posted on March 29, 2017 by wames

Stonebird blog post, Mar 2017: 25% Group and Stonebird Response to BACME (British Association for ME/CFS), article on care provision for severe ME Response to BACME Working Group on Severe CFS/ME Shared Clinical Practice Document Version 1 When you work … Continue reading →

Posted in News | Tagged , , , , , , , | Comments Off on Expectations of recovery in severe ME could impose unreasonable, unrealistic, even fatal demands