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NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient
NICE says there is no ‘one size fits all’ approach to managing ME/CFS symptoms. It stresses the need for a tailored, individualised approach to care that allows joint decision making and informed choice. The draft NICE guideline is open … Continue reading
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Tagged children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, paediatric ME, severe ME, young people
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Reductions in cerebral blood flow can be provoked by sitting in severe ME/CFS patients
Reductions in cerebral blood flow can be provoked by sitting in severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients, by C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Healthcare 2020, 8(4), 394 [doi.org/10.3390/healthcare8040394] Research abstract: Introduction: In … Continue reading
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Tagged CBF, cerebral blood flow, Dr Linda van Campen, Dr Peter Rowe, Fibromyalgia, Frans C Visser, head-up tilt test, OI, orthostatic intolerance, postural orthostatic tachycardia syndrome, POTS, severe ME
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Video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients
Dialogues ME-CFS video: Hospital Admissions: issues and alternatives for severely ill ME/CFS patients. A new 16 minute video has been published in the Severe ME series on the Dialogues ME-CFS website Contributers include: Dr Nigel Speight, Dr Luis … Continue reading
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Tagged Dialogues ME-CFS, Dr Luis Nacul, Dr Nigel Speight, hospital admissions, severe ME, video
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Severe ME in children
Severe ME in children, by Nigel Speight in Healthcare Vol 8, #3 p 211, July 14, 2020 [This article belongs to the Special Issue ME/CFS] Guideline abstract The current problem regarding Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is the … Continue reading
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Tagged CBT, children, cognitive behavioural therapy, Dr Nigel Speight, Fabricated or Induced Illness, GET, graded exercise therapy, immunoglobulin, paediatric ME, PEM, Pervasive Refusal Syndrome, Post-exertional malaise, severe ME
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Health Care responsibility & compassion-visiting the housebound patient severely affected by ME/CFS
Health Care responsibility and compassion-visiting the housebound patient severely affected by ME/CFS, by Caroline Kingdon, Dionysius Giotas, Luis Nacul and Eliana Lacerda in Healthcare 2020, 8(3), 197 [doi.org/10.3390/healthcare8030197] [This article belongs to the Special Issue ME/CFS – the Severely and … Continue reading
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Tagged bedbound, Caroline Kingdon, Compassion in practice, Dionysius Giotas, doctor patient relationship, Dr Luis Nacul, Eliana Lacerda, housebound, illness invalidation, severe ME
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Two-Day cardiopulmonary exercise testing in females with a severe grade of ME/CFS: comparison with patients with mild & moderate disease
Two-Day cardiopulmonary exercise testing in females with a severe grade of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: comparison with patients with mild and moderate disease, by C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Healthcare 2020, 8(3), … Continue reading
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Tagged 2-day CPET, cardiopulmonary exercise testing, Dr Linda van Campen, Dr Peter Rowe, Prof Hans Visser, severe ME, VO2 VT, VO2peak
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Dental considerations for a patient with ME/CFS – a case study
Dental considerations for a patient with Myalgic Encephalopathy/ Chronic Fatigue Syndrome – a case study, by Serena Halsall in Journal of Disability and Oral Health Vol 20, #3 October 1, 2019 Abstract Myalgic Encephalopathy, also known as Chronic Fatigue … Continue reading
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Tagged dental care, oral health, Serena Halsall, severe ME, teenagers
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Assessing diagnostic value of microRNAs from peripheral blood mononuclear cells & extracellular vesicles in ME/CFS
Assessing diagnostic value of microRNAs from peripheral blood mononuclear cells and extracellular vesicles in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Eloy Almenar-Pérez, Leonor Sarría, Lubov Nathanson & Elisa Oltra in Scientific Reports vol 10, no: 2064 (2020) Research abstract: Myalgic … Continue reading
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Tagged Creatine kinase, Eloy Almenar-Pérez, EVs, extracellular vesicles, Leonor Sarria, Lubov Nathanson, microRNA profiles, miRNomes, PBMC, peripheral blood mononuclear cells, Prof Elisa Oltra, severe ME
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Survey of severe ME – help inform the NICE guidelines
Survey of severe ME Dr Keith Geraghty & Manchester University are conducting a study to better understand the needs and views of patients with severe ME/CFS. This project has been commissioned by the National Institute of Health and Care Excellence (NICE) … Continue reading
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Tagged Dr Keith Geraghty, National Institute for Health and Care Excellence, NICE, severe ME, survey
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With severe ME, everything is cut off from possibility
by Greg Crowhurst, Stonebird
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Tagged Greg Crowhurst, severe ME, Stonebird
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