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Ensuring the voice of the very severely affected ME/CFS patient is heard in research
Ensuring the voice of the very severely affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patient is heard in research-a research model, by Helen Baxter Research article abstract: Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant … Continue reading
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Tagged Helen Baxter, ME Research UK, reasonable adjustments, research methods, very severe ME/CFS, Victoria Strassheim
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Experiences of living with severe CFS/ME
Experiences of living with severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, by Victoria Strassheim, Julia L Newton and Tracy Collins in Healthcare 2021, 9(2), 168 [doi.org/10.3390/healthcare9020168] (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected) Research … Continue reading
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Tagged housebound, Prof Julia Newton, severe ME, Tracy Collins, Victoria Strassheim
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The effect of ME/CFS severity on cellular bioenergetic function
The effect of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) severity on cellular bioenergetic function, by Cara Tomas, Joanna L Elson, Victoria Strassheim, Julia L Newton, Mark Walker in PLoS One vol 15, #4, e0231136, April 10, 2020 Research abstract: Myalgic … Continue reading
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Tagged bioenergetics, Cara Tomas, Dr Joanna Elson, glycolytic function, Mark Walker, mitochondrial dysfunction, PBMC, peripheral blood mononuclear cells, Prof Julia Newton, respiratory acidification, Victoria Strassheim
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Gravity-induced exercise intervention in an individual with CFS/ME & PTS: a case report
Gravity-induced exercise intervention in an individual with chronic fatigue syndrome/ myalgic encephalomyeltis and postural tachycardia syndrome: a case report, by Robert Ballantine, Victoria Strassheim, Julia Newton in International Journal of Therapy and Rehabilitation 2019 vol 26,#5 Abstract: Background/Aims Chronic … Continue reading
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Tagged autonomic nervous system, exercise gravity, postural tachycardia syndrome, POTS, Prof Julia Newton, Robert Ballantine, Victoria Strassheim
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MtDNA population variation in ME/CFS in two populations
MtDNA population variation in Myalgic encephalomyelitis/ Chronic fatigue syndrome in two populations: a study of mildly deleterious variants, by Marianne Venter, Cara Tomas, Ilse S Pienaar, Victoria Strassheim, Elardus Erasmus, Wan-Fai Ng, Neil Howell, Julia L Newton, Francois H Van … Continue reading
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Tagged Cara Tomas, Dr Joanna Elson, Elardus Erasmus, Francois H Van der Westhuizen, Ilse S Pienaar, Marianne Venter, mitochondrial DNA, mitochondrial dysfunction, mtDNA, Neil Howell, Prof Julia Newton, South Africa, Victoria Strassheim, Wan-Fai Ng
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Defining the prevalence & symptom burden of those with self-reported severe CFS/ME
Defining the prevalence and symptom burden of those with self-reported severe chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): A two-phase community pilot study in the North East of England, by Victoria Jane Strassheim, Madison Sunnquist, Leonard A Jason, Julia L Newton in BMJ Open Vol 19, #8, p e020775 [Published: … Continue reading
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Tagged Madison L Sunnquist, Prof Julia Newton, Prof Leonard Jason, severe ME, Victoria Strassheim
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Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach
Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach, Victoria Strassheim, Jenny Welford, Rob Ballantine, Julia L Newton in Auton Neurosci. 2018 Feb 22. pii: S1566-0702(17)30328-4 [Epub ahead of print] Highlights: Fatigue is a common symptom described by those … Continue reading
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Tagged activity management, exercise, Jenny Welford, postural orthostatic tachycardia syndrome, POTS, Prof Julia Newton, Robert Ballantine, Victoria Strassheim
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Cellular bioenergetics is impaired in patients with CFS
Research abstract: Cellular bioenergetics is impaired in patients with chronic fatigue syndrome, by Cara Tomas, Audrey Brown, Victoria Strassheim, Joanna Elson, Julia Newton, Philip Manning in PLOSone [Published: October 24, 2017] Chronic fatigue syndrome (CFS) is a highly debilitating disease of … Continue reading
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Tagged Audrey Brown, bioenergetics, Cara Thomas, Dr Joanna Elson, glycolysis, oxidative phosphorylation, OXPHOS, PBMC, peripheral blood mononuclear cells, Philip Manning, Prof Julia Newton, Victoria Strassheim
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What is known about severe & very severe CFS? A scoping review
Review abstract: What is known about severe and very severe chronic fatigue syndrome? A scoping review, by Victoria Strassheim, Rebecca Lambson, Katie L. Hackett, Julia L. Newton in Fatigue: Biomedicine, Health & Behavior [Preprint June 19, 2017] Background: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) affects … Continue reading
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Tagged Katie L Hackett, Prof Julia Newton, Rebecca Lambson, severe ME, Victoria Strassheim
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Understanding severely affected CFS: the gravity of the situation
Review abstract: Understanding severely affected chronic fatigue syndrome (CFS): The gravity of the situation, by Victoria Strassheim, Robert Ballantine, Katie L. Hackett, James Frith, Julia L. Newton in Physical Therapy Reviews [Preprint May 25, 2017] Objective: To describe how the effects of gravity … Continue reading
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Tagged bed rest, deconditioning, gravity, James Frith, Katie L Hackett, orthostatic response, Prof Julia Newton, rehabilitation, Robert Ballantine, severe ME, Victoria Strassheim
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