Monthly Archives: June 2014
CFS/ME guidance for benefits assessors
The Department for Work and Pensions have published a new version of their ME/CFS training document for health care professionals carrying out benefit assessments. The 50-page document was published on 28 May 2014 and can be downloaded from the MEA website. … Continue reading
Reduced blood flow following reduced nitrergic nitric oxide in POTS
Abstract Cognitive deficits are characteristic of postural tachycardia syndrome (POTS). Intact nitrergic nitric oxide (NO) is important to cerebral blood flow (CBF) regulation, to neurovascular coupling, and to cognitive efficacy. POTS patients often experience defective (NO) mediated vasodilation caused by … Continue reading
ME/CFS brain and tissue bank protocol
Abstract (provisional) Background Our aim, having previously investigated through a qualitative study involving extensive discussions with experts and patients the issues involved in establishing and maintaining a disease specific brain and tissue bank for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), … Continue reading
Prof Julia Newton videos
The Dutch organisation ME/cvs Vereniging has uploaded another 3 videos on their Youtube site. Prof Julia Newton from Newcastle University speaks about: 43. Introduction – experience with ME 44. Neurocognitive problems in ME 45. ME and the bloodflow
CAB Briefing for MPs on Mandatory Reconsideration (ESA)
Summary: Cutting off people’s employment and support allowance (ESA) benefits while DWP give a second opinion on their claim is adding an unnecessary administrative burden, causing stress and leaving some people with no income for a significant period of time. … Continue reading
ME/CFS Primer for clinical practitioners (2014 revision)
The International Association for CFS/ME (IACFS/ME) has produced a revised version of their primer. Their goal is to provide the information necessary to understand, diagnose, and manage the symptoms of chronic fatigue syndrome —also known as myalgic encephalomyelitis (ME/CFS). The … Continue reading
How surveys on CFS and ME fail
Erica Verillo comments in her blog on the CFS treatment guide website: Action for ME published two reports during ME Awareness Week (May 11 to 17) 2014. The survey was based on responses from more than 2,000 Action for ME members … Continue reading
Why it makes economic sense to fund CFS research
Modern economies work to meet consumers’ needs. So if needs are not met, that must be an economic failure, right? Healthcare suggests otherwise. Sometimes, unhelpful ideologies get in the way of economics delivering the goods. Chronic fatigue syndrome (CFS) … Continue reading
Why those with treatable diseases get more sympathy than ME
Martha Gill, a blogger on politics and neurosciences comments: According to reports, a third of people who think they have ME may actually be suffering from something else – a disease called postural tachycardia syndrome (PoTS). It has the same symptoms … Continue reading
