Author Archives: wames
Should all people with suspected ME be referred to a specialist?
Email us have any comments on this poll.
Experiences of daily activity in CFS/ME & implications for rehabilitation programmes
Abstract PURPOSE Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis (CFS/ME), has a significant impact upon daily functioning. Most recommended treatments aim to alter activity patterns based upon assumptions of activity avoidance. However, as there is limited research on the … Continue reading
CFS patients feel increasingly isolated
Sufferers of Chronic Fatigue Syndrome (CFS) are feeling increasingly isolated due to their family and friends’ lack of understanding of their condition, a study has revealed. The study, carried out by talkhealth, one of the UK’s leading online social Health … Continue reading
Medical students’ views of CFS
Abstract Chronic fatigue syndrome receives little attention in the medical curriculum. This study explores UK medical students’ knowledge of and attitudes towards chronic fatigue syndrome. Semi-structured interviews (average length 22 minutes) were conducted with 21 participants (7 females and 14 … Continue reading
Dr Nigel Speight outlines the history of ME
WAMES’ medical advisor and consultant paediatrician Nigel Speight reviews the major historical developments of the last 50 years, describes the clinical pattern and spectrum of severity, and then explores the current major controversies surrounding the subject. Myalgic encephalomyelitis/chronic fatigue syndrome: … Continue reading
Caru James interview about ME on S4C
Caru James talks in Welsh on S4C’s Prynhawn Da about her experience of ME and employment with ME. Prynhawn Da episode 53 (available until 20 June) Caru’s interview begins at 27 minutes for 5 minutes.
ME recognition & care ‘lacking’ in Wales
An ITV news report on 13th May 2013 highlighted the problems faced by people with ME in finding health and social care in Wales: People with the condition ME in Wales say they suffer from an absence of specialist care, … Continue reading
Does the energy envelope theory improve function?
Abstract Objective/Hypothesis: The objective of this study was to examine sub-types of individuals with chronic fatigue syndrome based on variables that are associated with the energy envelope theory and to examine the role of coping strategies in explaining the differences … Continue reading
Couples’ experiences of interacting with others in CFS: a qualitative study
Abstract Objectives: Social isolation and stigma are frequently reported by patients with chronic fatigue syndrome/myalgic encephalomyelitis and relationships in the home environment with those close to the patients (their ‘significant others’) may thus be particularly important. Rather little attention has … Continue reading
Carers & social care reform – Sylvia Penny interview
WAMES’ volunteer Sylvia Penny who cares for her adult daughter with ME, her adult son with asperger’s and her 90 year old mother, was one of the people interviewed on BBC Wales about the proposed changes to social care in … Continue reading
