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Latest News
- Webinar 3 March 2021: Introduction to sensory apps
- Dysregulated provision of oxidisable substrates to the mitochondria in ME/CFS lymphoblasts
- Sex-based differences in plasma autoantibodies to CNS proteins in Gulf War veterans versus healthy & symptomatic controls
- Sick of the sick role: narratives of what ‘recovery’ means to people with CFS/ME
- Plasma proteomics publication shows disrupted cell-to-cell signaling in ME/CFS
Archives
Tag Archives: pacing
Lived experiences in daily life with ME (Denmark)
Lived experiences in daily life with myalgic encephalomyelitis, by Reeti KK Sandhu, Maj Sundby, Sidsel Ørneborg, Svetlana Solgaard Nielsen, Jeanette Reffstrup Christensen, Anette Enemark Larsen in British Journal of Occupational Therapy, November 2020 [doi.org/10.1177/0308022620966254] Research abstract: Introduction Myalgic encephalomyelitis … Continue reading
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Tagged Anette Enemark Larsen, home adaptations, Jeanette Reffstrup Christensen, Maj Sundby, Model of Human Occupation, MOHO, occupational identity, occupational therapy, pacing, PEM, Post-exertional malaise, reasonable adjustments, Reeti KK Sandhu, Sidsel Ørneborg, Svetlana Solgaard Nielsen
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Video: Activity & energy management – Pacing
Dialogues for a neglected illness: Activity and energy management – Pacing The Dialogues for ME/CFS project (also known as Dialogues for a neglected illness) has produced a new video explaining pacing for health professionals. “Pacing is an individualized approach … Continue reading
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Tagged activity management, CPET, Dr Charles Shepherd, Dr Chris Snell, Dr Luis Nacul, energy management, exertion intolerance, pacing, Post-exertional malaise, Prof Mark VanNess, Todd E Davenport
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Long Covid: overlap emerges with ME – including debate over treatment
Guardian article: Long Covid: overlap emerges with ME – including debate over treatment by Linda Geddes, Science correspondent, Thu 19 Nov 2020 This article features people with long Covid, and looks at the similarities in symptoms of ME and … Continue reading
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Tagged Dr Amy Small, Dr Anthony Fauci, Dr Manoj Sivan, Dr William Weir, Guardian, long Covid, MEAction, pacing, post-viral fatigue
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Heart rate thresholds to limit activity in ME/CFS patients (pacing): comparison of heart rate formulae
Heart rate thresholds to limit activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients (Pacing): Comparison of heart rate formulae and measurements of the heart rate at the lactic acidosis threshold during Cardiopulmonary Exercise Testing, by C (Linda) MC van Campen, Peter … Continue reading
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Tagged C (Linda) MC van Campen, cardiopulmonary exercise tests, CPET, Frans C Visser, heart rate formulae, lactic acidosis, oxygen consumption, pacing, peak oxygen uptake, Peter C Rowe
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Rethinking the standard of care for ME/CFS
Rethinking the standard of care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Fred Friedberg, Madison Sunnquist, Luis Nacul in Journal of General Internal Medicine, Published online: 21 October 2019 [doi.org/10.1007/s11606-019-05375-y ] Article abstract: For over two decades, the standard of … Continue reading
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Tagged CBT, clinical management, cognitive behavioural therapy, Dr Fred Friedberg, Dr Luis Nacul, energy envelope theory, GET, graded exercise therapy, Madison L Sunnquist, PACE, pacing, Post-exertional malaise
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Online pacing tutorial begins January 2019
Online Pacing Tutorial US based ME/CFS & Fibromyalgia Self-help program hold quarterly online tutorials to teach the basics of pacing. Open to to all English language speakers 7 week course Offered quarterly and conducted via email list server, the class is … Continue reading
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Tagged online course, pacing, The ME/CFS and Fibromyalgia Self-Help Program
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AfME apologises for its role in the PACE trial & clarifies its change of position
Action for M.E. statement on: The PACE trial and behavioural treatments for M.E. On 29th August 2018 Action for ME published a statement explaining the charity’s role in the PACE trial and apologising for their role in contributing to the … Continue reading
ME/CFS patients’ reports of symptom changes following CBT, GET & pacing treatments
Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome patients’ reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments: Analysis of a primary survey compared with secondary surveys, by Keith Geraghty, Mark Hann, Stoyan Kurtev in Journal of Health … Continue reading
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Tagged CBT, cognitive behavioural therapy, Dr Keith Geraghty, GET, graded exercise therapy, Mark Hann, pacing, patient satisfaction, patient survey, Stoyan Kurtev
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Cwtch support group meets Haverfordwest 7 April
Morning Meeting of Cwtch: 7 April 2017: 10.00 am – 11.30 am at Cashfield Community Centre, Haverfordwest, SA61 2GA Activity: 10am-11am Talk on pacing strategies with physiotherapist, Alec Machenry 11am-12 noon Sam Studley will be demonstrating how to decorate cupcakes. Cwtch … Continue reading
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Tagged cwtch, Haverfordwest, pacing, Pembrokeshire, support group
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