Tag Archives: pacing

Heart rate thresholds to limit activity in ME/CFS patients (pacing): comparison of heart rate formulae

Heart rate thresholds to limit activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients (Pacing): Comparison of heart rate formulae and measurements of the heart rate at the lactic acidosis threshold during Cardiopulmonary Exercise Testing, by C (Linda) MC van Campen, Peter … Continue reading

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Rethinking the standard of care for ME/CFS

Rethinking the standard of care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Fred Friedberg, Madison Sunnquist, Luis Nacul in Journal of General Internal Medicine, Published online: 21 October 2019 [doi.org/10.1007/s11606-019-05375-y ]   Article abstract: For over two decades, the standard of … Continue reading

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Online pacing tutorial begins January 2019

Online Pacing Tutorial US based ME/CFS & Fibromyalgia Self-help program hold quarterly online tutorials to teach the basics of pacing. Open to to all English language speakers 7 week course Offered quarterly and conducted via email list server, the class is … Continue reading

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AfME apologises for its role in the PACE trial & clarifies its change of position

Action for M.E. statement on: The PACE trial and behavioural treatments for M.E. On 29th August 2018 Action for ME published a statement explaining the charity’s role in the PACE trial and apologising for their role in contributing to the … Continue reading

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ME/CFS patients’ reports of symptom changes following CBT, GET & pacing treatments

Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome patients’ reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments: Analysis of a primary survey compared with secondary surveys, by Keith Geraghty, Mark Hann, Stoyan Kurtev in Journal of Health … Continue reading

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Cwtch support group meets Haverfordwest 7 April

Morning Meeting of Cwtch: 7 April 2017:  10.00 am – 11.30 am at Cashfield Community Centre, Haverfordwest, SA61 2GA Activity: 10am-11am     Talk on pacing strategies with physiotherapist, Alec Machenry 11am-12 noon     Sam Studley will be demonstrating how to decorate cupcakes. Cwtch … Continue reading

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Haverfordwest support group meets to share pacing strategies, Fri 3 Feb 2017

Morning Meeting of Cwtch: 10.00 am – 11.30 am at Cashfield Community Centre, Havertfordwest, SA61 2GA Guest Speaker: Alec MacHenry, Physiotherapist Alec will speak between 10.00 am – 11.00 am and afterwards the discussion about pacing strategies will continue. Cwtch … Continue reading

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Pace, do not go for boom or bust says Dr Mark Porter

Times article, January 26 2016: Managing chronic fatigue is all about pace — do not go for boom or bust by Dr Mark Porter: New research suggesting that chronic fatigue syndrome is more common in teenagers than previously thought is bound … Continue reading

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Activity pacing (APT) self management approach for CFS

Research abstract: OBJECTIVE: The objective of this study was to evaluate the effectiveness of an activity pacing self-management (APSM) intervention in improving performance of daily life activities in women with chronic fatigue syndrome (CFS). METHOD: A total of 33 women … Continue reading

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The nature of fatigue in CFS

Research abstract In this article, we report the findings of our study on the nature of fatigue in patients diagnosed with chronic fatigue syndrome. Using ethnoscience as a design, we conducted a series of unstructured interviews and card sorts to … Continue reading

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