Tag Archives: pacing

Humility and acceptance: working within our limits with Long COVID & ME/CFS

Humility and acceptance: working within our limits with Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Simon Decary, Isabelle Gaboury, Sabrina Poirier, Christiane Garcia, Scott Simpson, Michelle Bull, Darren Brown, Frederique Daigle in Journal of Orthopaedic & Sports Physical Therapy Vol 51, … Continue reading

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Lived experiences in daily life with ME (Denmark)

Lived experiences in daily life with myalgic encephalomyelitis, by Reeti KK Sandhu, Maj Sundby, Sidsel Ørneborg, Svetlana Solgaard Nielsen, Jeanette Reffstrup Christensen, Anette Enemark Larsen in British Journal of Occupational Therapy, November 2020 [doi.org/10.1177/0308022620966254]   Research abstract: Introduction Myalgic encephalomyelitis … Continue reading

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Video: Activity & energy management – Pacing

Dialogues for a neglected illness: Activity and energy management – Pacing   The Dialogues for ME/CFS project (also known as Dialogues for a neglected illness) has produced a new video explaining pacing for health professionals. “Pacing is an individualized approach … Continue reading

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Long Covid: overlap emerges with ME – including debate over treatment

Guardian article: Long Covid: overlap emerges with ME – including debate over treatment by Linda Geddes, Science correspondent, Thu 19 Nov 2020   This article features people with long Covid, and looks at the similarities in symptoms of ME and … Continue reading

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Energy systems & pacing in ME/CFS

Frozen in Amber blog post, by Caroline Elisabeth: Energy systems and pacing in ME/CFS, 29 June 2020   Summary The aerobic energy system is “broken” in ME/CFS and cannot be fixed with exercise (i.e., graded exercise therapy, also known as … Continue reading

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Heart rate thresholds to limit activity in ME/CFS patients (pacing): comparison of heart rate formulae

Heart rate thresholds to limit activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients (Pacing): Comparison of heart rate formulae and measurements of the heart rate at the lactic acidosis threshold during Cardiopulmonary Exercise Testing, by C (Linda) MC van Campen, Peter … Continue reading

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Rethinking the standard of care for ME/CFS

Rethinking the standard of care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Fred Friedberg, Madison Sunnquist, Luis Nacul in Journal of General Internal Medicine, Published online: 21 October 2019 [doi.org/10.1007/s11606-019-05375-y ]   Article abstract: For over two decades, the standard of … Continue reading

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Online pacing tutorial begins January 2019

Online Pacing Tutorial US based ME/CFS & Fibromyalgia Self-help program hold quarterly online tutorials to teach the basics of pacing. Open to to all English language speakers 7 week course Offered quarterly and conducted via email list server, the class is … Continue reading

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AfME apologises for its role in the PACE trial & clarifies its change of position

Action for M.E. statement on: The PACE trial and behavioural treatments for M.E. On 29th August 2018 Action for ME published a statement explaining the charity’s role in the PACE trial and apologising for their role in contributing to the … Continue reading

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ME/CFS patients’ reports of symptom changes following CBT, GET & pacing treatments

Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome patients’ reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments: Analysis of a primary survey compared with secondary surveys, by Keith Geraghty, Mark Hann, Stoyan Kurtev in Journal of Health … Continue reading

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