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- Diagnostic test research: Autoantibodies & receptors correlate with symptom severity, autonomic dysfunction & disability in ME/CFS
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- Research: Neurochemical abnormalities in CFS
- Legal challenge to NICE ME/CFS Guideline delay
- NICE releases further details of ME/CFS roundtable meeting
Archives
Tag Archives: pacing
New free Pacing app for ME/CFS from Australia
ME/CFS Pacing App from Emerge Australia Emerge Australia would like to introduce to you the ME/CFS Pacing App created by our generous contributor, Mathew Blake. The app is designed to help people with mild to moderate ME/CFS better manage … Continue reading
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Tagged apps, Emerge Australia, pacing
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Video: Fatigue, pacing & PEM – lessons for long COVID from ME/CFS
Fatigue, Pacing and PEM management: lessons from ME/CFS – with Dr Ben Marsh Dr Asad Khan talks to Dr Ben Marsh about his experience of ME/CFS over the last 4 years, and what lessons the Long COVID community can … Continue reading
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Tagged activity management, chronic fatigue, Dr Ben Marsh, long Covid, pacing, PEM, Post-exertional malaise
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Humility and acceptance: working within our limits with Long COVID & ME/CFS
Humility and acceptance: working within our limits with Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Simon Decary, Isabelle Gaboury, Sabrina Poirier, Christiane Garcia, Scott Simpson, Michelle Bull, Darren Brown, Frederique Daigle in Journal of Orthopaedic & Sports Physical Therapy Vol 51, … Continue reading
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Tagged Christiane Garcia, Darren Brown, Dr Michelle Bull, Frederique Daigle, Isabelle Gaboury, long Covid, pacing, Patient-Led Research for COVID-19, PEM, Post-exertional malaise, post-viral illness, rehabilitation, Sabrina Poirier, Scott Simpson, Simon Decary, Stop Rest Pace
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Lived experiences in daily life with ME (Denmark)
Lived experiences in daily life with myalgic encephalomyelitis, by Reeti KK Sandhu, Maj Sundby, Sidsel Ørneborg, Svetlana Solgaard Nielsen, Jeanette Reffstrup Christensen, Anette Enemark Larsen in British Journal of Occupational Therapy, November 2020 [doi.org/10.1177/0308022620966254] Research abstract: Introduction Myalgic encephalomyelitis … Continue reading
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Tagged Anette Enemark Larsen, home adaptations, Jeanette Reffstrup Christensen, Maj Sundby, Model of Human Occupation, MOHO, occupational identity, occupational therapy, pacing, PEM, Post-exertional malaise, reasonable adjustments, Reeti KK Sandhu, Sidsel Ørneborg, Svetlana Solgaard Nielsen
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Video: Activity & energy management – Pacing
Dialogues for a neglected illness: Activity and energy management – Pacing The Dialogues for ME/CFS project (also known as Dialogues for a neglected illness) has produced a new video explaining pacing for health professionals. “Pacing is an individualized approach … Continue reading
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Tagged activity management, CPET, Dr Charles Shepherd, Dr Chris Snell, Dr Luis Nacul, energy management, exertion intolerance, pacing, Post-exertional malaise, Prof Mark VanNess, Todd E Davenport
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Long Covid: overlap emerges with ME – including debate over treatment
Guardian article: Long Covid: overlap emerges with ME – including debate over treatment by Linda Geddes, Science correspondent, Thu 19 Nov 2020 This article features people with long Covid, and looks at the similarities in symptoms of ME and … Continue reading
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Tagged Dr Amy Small, Dr Anthony Fauci, Dr Manoj Sivan, Dr William Weir, Guardian, long Covid, MEAction, pacing, post-viral fatigue
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Heart rate thresholds to limit activity in ME/CFS patients (pacing): comparison of heart rate formulae
Heart rate thresholds to limit activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients (Pacing): Comparison of heart rate formulae and measurements of the heart rate at the lactic acidosis threshold during Cardiopulmonary Exercise Testing, by C (Linda) MC van Campen, Peter … Continue reading
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Tagged C (Linda) MC van Campen, cardiopulmonary exercise tests, CPET, Frans C Visser, heart rate formulae, lactic acidosis, oxygen consumption, pacing, peak oxygen uptake, Peter C Rowe
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Rethinking the standard of care for ME/CFS
Rethinking the standard of care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Fred Friedberg, Madison Sunnquist, Luis Nacul in Journal of General Internal Medicine, Published online: 21 October 2019 [doi.org/10.1007/s11606-019-05375-y ] Article abstract: For over two decades, the standard of … Continue reading
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Tagged CBT, clinical management, cognitive behavioural therapy, Dr Fred Friedberg, Dr Luis Nacul, energy envelope theory, GET, graded exercise therapy, Madison L Sunnquist, PACE, pacing, Post-exertional malaise
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Online pacing tutorial begins January 2019
Online Pacing Tutorial US based ME/CFS & Fibromyalgia Self-help program hold quarterly online tutorials to teach the basics of pacing. Open to to all English language speakers 7 week course Offered quarterly and conducted via email list server, the class is … Continue reading
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Tagged online course, pacing, The ME/CFS and Fibromyalgia Self-Help Program
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