Tag Archives: pacing

Energy systems & pacing in ME/CFS

Frozen in Amber blog post, by Caroline Elisabeth: Energy systems and pacing in ME/CFS, 29 June 2020   Summary The aerobic energy system is “broken” in ME/CFS and cannot be fixed with exercise (i.e., graded exercise therapy, also known as … Continue reading

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Heart rate thresholds to limit activity in ME/CFS patients (pacing): comparison of heart rate formulae

Heart rate thresholds to limit activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients (Pacing): Comparison of heart rate formulae and measurements of the heart rate at the lactic acidosis threshold during Cardiopulmonary Exercise Testing, by C (Linda) MC van Campen, Peter … Continue reading

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Rethinking the standard of care for ME/CFS

Rethinking the standard of care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Fred Friedberg, Madison Sunnquist, Luis Nacul in Journal of General Internal Medicine, Published online: 21 October 2019 [doi.org/10.1007/s11606-019-05375-y ]   Article abstract: For over two decades, the standard of … Continue reading

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Online pacing tutorial begins January 2019

Online Pacing Tutorial US based ME/CFS & Fibromyalgia Self-help program hold quarterly online tutorials to teach the basics of pacing. Open to to all English language speakers 7 week course Offered quarterly and conducted via email list server, the class is … Continue reading

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AfME apologises for its role in the PACE trial & clarifies its change of position

Action for M.E. statement on: The PACE trial and behavioural treatments for M.E. On 29th August 2018 Action for ME published a statement explaining the charity’s role in the PACE trial and apologising for their role in contributing to the … Continue reading

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ME/CFS patients’ reports of symptom changes following CBT, GET & pacing treatments

Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome patients’ reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments: Analysis of a primary survey compared with secondary surveys, by Keith Geraghty, Mark Hann, Stoyan Kurtev in Journal of Health … Continue reading

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Cwtch support group meets Haverfordwest 7 April

Morning Meeting of Cwtch: 7 April 2017:  10.00 am – 11.30 am at Cashfield Community Centre, Haverfordwest, SA61 2GA Activity: 10am-11am     Talk on pacing strategies with physiotherapist, Alec Machenry 11am-12 noon     Sam Studley will be demonstrating how to decorate cupcakes. Cwtch … Continue reading

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Haverfordwest support group meets to share pacing strategies, Fri 3 Feb 2017

Morning Meeting of Cwtch: 10.00 am – 11.30 am at Cashfield Community Centre, Havertfordwest, SA61 2GA Guest Speaker: Alec MacHenry, Physiotherapist Alec will speak between 10.00 am – 11.00 am and afterwards the discussion about pacing strategies will continue. Cwtch … Continue reading

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Pace, do not go for boom or bust says Dr Mark Porter

Times article, January 26 2016: Managing chronic fatigue is all about pace — do not go for boom or bust by Dr Mark Porter: New research suggesting that chronic fatigue syndrome is more common in teenagers than previously thought is bound … Continue reading

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Activity pacing (APT) self management approach for CFS

Research abstract: OBJECTIVE: The objective of this study was to evaluate the effectiveness of an activity pacing self-management (APSM) intervention in improving performance of daily life activities in women with chronic fatigue syndrome (CFS). METHOD: A total of 33 women … Continue reading

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