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The role of psychotherapy in the care of ME/CFS
Psychotherapy and ME/CFS A group of European psychologists and researchers say that although ME/CFS is a physical, not a psychosomatic illness, psychotherapeutic help could improve the mental well-being and coping strategies of numerous people with ME/CFS. They suggest a … Continue reading
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Tagged Bettina Grande, Dr Mark Vink, Michael Stingl, pacing, Patrick Gerner, PEM, Post-exertional malaise, Prof Brian M Hughes, psychotherapy, Sabine Hammer, Tilman Grande
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Lessons from ME/CFS for long COVID: “Energy System First Aid” for people with PESE (aka PEM)
Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID Part 3: “Energy System First Aid” for People With Post Exertional Symptom Exacerbation, by Todd E Davenport, Staci R Stevens, Jared Stevens, Christopher R Snell, J Mark Van Ness in … Continue reading
New free Pacing app for ME/CFS from Australia
ME/CFS Pacing App from Emerge Australia Emerge Australia would like to introduce to you the ME/CFS Pacing App created by our generous contributor, Mathew Blake. The app is designed to help people with mild to moderate ME/CFS better manage … Continue reading
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Tagged apps, Emerge Australia, pacing
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Video: Fatigue, pacing & PEM – lessons for long COVID from ME/CFS
Fatigue, Pacing and PEM management: lessons from ME/CFS – with Dr Ben Marsh Dr Asad Khan talks to Dr Ben Marsh about his experience of ME/CFS over the last 4 years, and what lessons the Long COVID community can … Continue reading
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Tagged activity management, chronic fatigue, Dr Ben Marsh, long Covid, pacing, PEM, Post-exertional malaise
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Humility and acceptance: working within our limits with Long COVID & ME/CFS
Humility and acceptance: working within our limits with Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Simon Decary, Isabelle Gaboury, Sabrina Poirier, Christiane Garcia, Scott Simpson, Michelle Bull, Darren Brown, Frederique Daigle in Journal of Orthopaedic & Sports Physical Therapy Vol 51, … Continue reading
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Tagged Christiane Garcia, Darren Brown, Dr Michelle Bull, Frederique Daigle, Isabelle Gaboury, long Covid, pacing, Patient-Led Research for COVID-19, PEM, Post-exertional malaise, post-viral illness, rehabilitation, Sabrina Poirier, Scott Simpson, Simon Decary, Stop Rest Pace
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Lived experiences in daily life with ME (Denmark)
Lived experiences in daily life with myalgic encephalomyelitis, by Reeti KK Sandhu, Maj Sundby, Sidsel Ørneborg, Svetlana Solgaard Nielsen, Jeanette Reffstrup Christensen, Anette Enemark Larsen in British Journal of Occupational Therapy, November 2020 [doi.org/10.1177/0308022620966254] Research abstract: Introduction Myalgic encephalomyelitis … Continue reading
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Tagged Anette Enemark Larsen, home adaptations, Jeanette Reffstrup Christensen, Maj Sundby, Model of Human Occupation, MOHO, occupational identity, occupational therapy, pacing, PEM, Post-exertional malaise, reasonable adjustments, Reeti KK Sandhu, Sidsel Ørneborg, Svetlana Solgaard Nielsen
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Video: Activity & energy management – Pacing
Dialogues for a neglected illness: Activity and energy management – Pacing The Dialogues for ME/CFS project (also known as Dialogues for a neglected illness) has produced a new video explaining pacing for health professionals. “Pacing is an individualized approach … Continue reading
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Tagged activity management, CPET, Dr Charles Shepherd, Dr Chris Snell, Dr Luis Nacul, energy management, exertion intolerance, pacing, Post-exertional malaise, Prof Mark VanNess, Todd E Davenport
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Long Covid: overlap emerges with ME – including debate over treatment
Guardian article: Long Covid: overlap emerges with ME – including debate over treatment by Linda Geddes, Science correspondent, Thu 19 Nov 2020 This article features people with long Covid, and looks at the similarities in symptoms of ME and … Continue reading
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Tagged Dr Amy Small, Dr Anthony Fauci, Dr Manoj Sivan, Dr William Weir, Guardian, long Covid, MEAction, pacing, post-viral fatigue
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Heart rate thresholds to limit activity in ME/CFS patients (pacing): comparison of heart rate formulae
Heart rate thresholds to limit activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patients (Pacing): Comparison of heart rate formulae and measurements of the heart rate at the lactic acidosis threshold during Cardiopulmonary Exercise Testing, by C (Linda) MC van Campen, Peter … Continue reading
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Tagged C (Linda) MC van Campen, cardiopulmonary exercise tests, CPET, Frans C Visser, heart rate formulae, lactic acidosis, oxygen consumption, pacing, peak oxygen uptake, Peter C Rowe
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