Tag Archives: Chronic illness

Sick of the sick role: narratives of what ‘recovery’ means to people with CFS/ME

Sick of the sick role: narratives of what “Recovery” means to people with CFS/ME, by Anna Cheshire, Damien Ridge, Lucy V Clark, Peter D White in Qualitative Health Research Vol 31, Issue 2, 2021 [doi.org/10.1177/1049732320969395]   Research abstract: Little is … Continue reading

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Perceptions of person-centred care amongst individuals with chronic conditions who consult complementary medicine practitioners

Perceptions of person-centred care amongst individuals with chronic conditions who consult complementary medicine practitioners, by Hope Foley, Amie Steel, Jon Adams in Complementary Therapies in Medicine Vol 52, August 2020, 102518 [doi.org/10.1016/j.ctim.2020.102518]   Highlights Chronic illness care in complementary medicine … Continue reading

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Environmental accommodations for university students affected by ME/CFS

Environmental accommodations for university students affected by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), by Lily Chu, Lynn R Fuentes, Olena M Marshall and Arthur A. Mirin in Work pp. 1-12, 2020[DOI: 10.3233/WOR-203176]   Research abstract: Background:  Today, 24% of college and … Continue reading

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Report: Energy impairment and disability inclusion: towards an advocacy movement for energy limiting chronic illness

Energy impairment and disability inclusion: towards an advocacy movement for energy limiting chronic illness, by Catherine Hale, Stef Benstead, Jenny Lyus, Evan Odell and Anna Ruddock. Centre for Welfare reform: April 2020   DRILL Blog post: Energy impairment and disability inclusion … Continue reading

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Cell danger response biology – the new science that connects environmental health with mitochondria & the rising tide of chronic illness

Perspective: Cell danger response biology the new science that connects environmental health with mitochondria and the rising tide of chronic illness, by Robert K Naviaux in Mitochondrion Vol 51, March 2020, Pages 40-45 [Available online 23 December 2019] https://doi.org/10.1016/j.mito.2019.12.005   … Continue reading

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Inclusive education for students with chronic illness – technological challenges & opportunities

Inclusive education for students with chronic illness – technological challenges and opportunities, by Anna Wood. Chapter in book:  Artificial Intelligence and Inclusive Education Perspectives on Rethinking and Reforming Education pp135-148 [June 14 2019] Chapter abstract: Although the general issues related … Continue reading

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Housebound people with ME have greater physical impairment

Research abstract: Objectives: The objective of this study was to examine individuals with myalgic encephalomyelitis and chronic fatigue syndrome who are confined to their homes due to severe symptomatology. The existing literature fails to address differences between this group, and less severe, nonhousebound patient … Continue reading

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46% think CFS or ME legitimate reason to miss work

A quarter of UK residents don’t believe chronic illness is a legitimate reason to miss work. Many chronic and often invisible health conditions are not regarded by the British public as legitimate reasons for long term absence from work, survey … Continue reading

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Couples’ experiences of interacting with others in CFS: a qualitative study

Abstract Objectives: Social isolation and stigma are frequently reported by patients with chronic fatigue syndrome/myalgic encephalomyelitis and relationships in the home environment with those close to the patients (their ‘significant others’) may thus be particularly important. Rather little attention has … Continue reading

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