Tag Archives: Chronic illness

Research: The depressing truth about depression scales for people with chronic invisible illness

Posted on 07/29/2022 by wames

The depressing truth about depression scales for people with chronic invisible illness, by CL Pederson, BM Wagner   Research conclusions:  People with chronic invisible illnesses like POTS, CFS/ME, EDS, MCAS, and fibromyalgia have numerous and often severe somatic symptoms related … Continue reading →

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Research: Feeling like ‘a damaged battery’: …lived experiences of UK university students with ME/CFS

Posted on 08/23/2021 by wames

Feeling like ‘a damaged battery’: Exploring the lived experiences of UK university students with ME/CFS, by Frances Waite, Dely Lazarte Elliot in Fatigue: Biomedicine, Health & Behavior, 23 Aug 2021 [doi.org/10.1080/21641846.2021.1969800]   Research abstract: Introduction: Research regarding students with myalgic … Continue reading →

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Identifying & managing suicidality in ME/CFS

Posted on 06/02/2021 by wames

Identifying and managing suicidality in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, Lily Chu, Meghan Elliott, Eleanor Stein, Leonard A Jason in Healthcare Vol 9, #6, 629 May 25, 2021 (This article belongs to the Special Issue ME/CFS – the Severely and Very … Continue reading →

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Sick of the sick role: narratives of what ‘recovery’ means to people with CFS/ME

Posted on 02/21/2021 by wames

Sick of the sick role: narratives of what “Recovery” means to people with CFS/ME, by Anna Cheshire, Damien Ridge, Lucy V Clark, Peter D White in Qualitative Health Research Vol 31, Issue 2, 2021 [doi.org/10.1177/1049732320969395]   Research abstract: Little is … Continue reading →

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Perceptions of person-centred care amongst individuals with chronic conditions who consult complementary medicine practitioners

Posted on 08/18/2020 by wames

Perceptions of person-centred care amongst individuals with chronic conditions who consult complementary medicine practitioners, by Hope Foley, Amie Steel, Jon Adams in Complementary Therapies in Medicine Vol 52, August 2020, 102518 [doi.org/10.1016/j.ctim.2020.102518]   Highlights Chronic illness care in complementary medicine … Continue reading →

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Environmental accommodations for university students affected by ME/CFS

Posted on 07/15/2020 by wames

Environmental accommodations for university students affected by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), by Lily Chu, Lynn R Fuentes, Olena M Marshall and Arthur A. Mirin in Work pp. 1-12, 2020[DOI: 10.3233/WOR-203176]   Research abstract: Background:  Today, 24% of college and … Continue reading →

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Report: Energy impairment and disability inclusion: towards an advocacy movement for energy limiting chronic illness

Posted on 05/01/2020 by wames

Energy impairment and disability inclusion: towards an advocacy movement for energy limiting chronic illness, by Catherine Hale, Stef Benstead, Jenny Lyus, Evan Odell and Anna Ruddock. Centre for Welfare reform: April 2020   DRILL Blog post: Energy impairment and disability inclusion … Continue reading →

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Cell danger response biology – the new science that connects environmental health with mitochondria & the rising tide of chronic illness

Posted on 02/04/2020 by wames

Perspective: Cell danger response biology the new science that connects environmental health with mitochondria and the rising tide of chronic illness, by Robert K Naviaux in Mitochondrion Vol 51, March 2020, Pages 40-45 [Available online 23 December 2019] https://doi.org/10.1016/j.mito.2019.12.005   … Continue reading →

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Inclusive education for students with chronic illness – technological challenges & opportunities

Posted on 06/25/2019 by wames

Inclusive education for students with chronic illness – technological challenges and opportunities, by Anna Wood. Chapter in book:  Artificial Intelligence and Inclusive Education Perspectives on Rethinking and Reforming Education pp135-148 [June 14 2019] Chapter abstract: Although the general issues related … Continue reading →

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Housebound people with ME have greater physical impairment

Posted on 05/05/2016 by wames

Research abstract: Objectives: The objective of this study was to examine individuals with myalgic encephalomyelitis and chronic fatigue syndrome who are confined to their homes due to severe symptomatology. The existing literature fails to address differences between this group, and less severe, nonhousebound patient … Continue reading →

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