Author Archives: wames
Doctors use more negative language about ME/CFS online than other illnesses
Doctors’ attitudes to medical conditions On an online medical forum physicians were found to discuss ME/CFS, depression and Lyme disease with more negative language than 21 other diseases. The results for ME/CFS included over 4 times more negative words … Continue reading
The role of mental health practitioners for Long COVID & ME/CFS
A new challenge: mental health practitioners can learn from ME/CFS when supporting the long-term effects of COVID-19 A research paper from a team of researchers including Prof Leonard Jason and Dr Nina Muirhead believes that: Mental Health Practitioners (MHPs) … Continue reading
#WAMES_800 – Donations ‘In lieu of gifts’
Give donations ‘In lieu of gifts’ – to aid our #WAMES_8oo Fundraising Journey Why not celebrate your next special occasion by asking your friends and family to lend support to people with ME/CFS? By asking your friends and family … Continue reading
World ME Alliance asks WHO to recognise ME
World ME Alliance calls on WHO Director General to recognise ME alongside Long Covid On Wednesday 12th October Dr Tedros Ghebreyesus, Director General of the World Health Organization, wrote an op-ed in the Guardian. In it, he lays clear … Continue reading
Research: DNA changes during a relapse and recovery cycle in ME/CFS
Dynamic epigenetic changes during a relapse and recovery cycle in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Epigenetics is the study of how your behaviors and environment can cause changes that affect the way your genes work. Unlike genetic changes, epigenetic … Continue reading
Volunteers invited to join WAMES communications team
Can you help WAMES keep the ME community informed? Are you social media savvy & want pwme to receive the right info at the right time so it makes a real difference to people’s daily lives? Can you help … Continue reading
Research: Orthostatic Intolerance & neurocognitive impairment overlap in ME/CFS
Orthostatic Intolerance & neurocognitive impairment overlap in ME/CFS Prof Jason Leonard and US colleagues investigated the relationship between Orthostatic Intolerance and neurocognitive impairment in ME/CFS Orthostatic intolerance (OI) is the development of symptoms when standing upright that are relieved … Continue reading
Research review: Genetics of COVID-19 & ME/CFS
Genetics of COVID-19 and ME/CFS: a systematic review Greek researchers found 71 studies for COVID-19 and 26 studies for ME/CFS that looked at genes. They concluded: “In spite of the fact that COVID-19 and ME/CFS present with some similar … Continue reading
Research: Fitbit trackers & PROMs help monitor ME/CFS activity
Activity monitoring and patient-reported outcome measures in ME/CFS patients A small Norwegian study from the team led by Prof Olav Mella and Dr Oystein Fluge trialled wearable activity trackers and questionnaires to monitor heart rate and activity to aid pacing … Continue reading
Do I need a formal diagnosis of ME/CFS?
Do you have a diagnosis of ME or CFS from the NHS? For decades many people with suspected ME have not been able to find an NHS professional to confirm their diagnosis. As the NHS has had nothing to … Continue reading
