Tag Archives: World ME Alliance

Guide to involving people with ME & energy limiting conditions

Involving people with ME and other energy limiting conditions: a guide   A new publication from the The World ME Alliance aims to promote inclusivity and empower individuals with energy limiting conditions. Involving people with lived experience of disability is … Continue reading

Posted in News | Tagged , , | Comments Off on Guide to involving people with ME & energy limiting conditions

Make a social media poster for World ME Day 2023!

Call to action: Make your own World ME day poster   Demonstrate the reality of living with ME for World ME Day 2023 on May 12th 2023. Let’s make post-exertional malaise visible Share the reality of how pushing harder can … Continue reading

Posted in News | Tagged , , , , , | Comments Off on Make a social media poster for World ME Day 2023!

New fact sheet on ME from the WMEA

Myalgic Encephalomyelitis factsheet   WAMES has been working with ME organisations around the world to produce a new fact sheet on Myalgic Encephalomyelitis (ME), with a particular focus on post-exertional malaise (PEM). Available in a growing number of languages, we … Continue reading

Posted in News | Tagged , , , , | Comments Off on New fact sheet on ME from the WMEA

World ME Day posters launched: PEM

World ME Day posters launched exploring the 2023 theme   As we approach World ME Day on May 12th, the World ME Alliance is excited to announce the launch of six new graphics that explore different aspects of post-exertional malaise … Continue reading

Posted in News | Tagged , , , , | Comments Off on World ME Day posters launched: PEM

World ME day 2023 – theme: PEM

2023 World ME Day campaign announced   From the World ME Alliance: The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people … Continue reading

Posted in News | Tagged , , | Comments Off on World ME day 2023 – theme: PEM

Call for WHO to recognise energy limiting disabilities

World ME Alliance highlights energy limiting disabilities   As a founding member of  the World ME Alliance WAMES joins ME organisations round the world in calling for better understanding in the WHO of the challenges people with ME and long … Continue reading

Posted in News | Tagged , , , , , , , , | Comments Off on Call for WHO to recognise energy limiting disabilities

World ME Alliance asks WHO to recognise ME

World ME Alliance calls on WHO Director General to recognise ME alongside Long Covid   On Wednesday 12th October Dr Tedros Ghebreyesus, Director General of the World Health Organization, wrote an op-ed in the Guardian. In it, he lays clear … Continue reading

Posted in News | Tagged , , , , | Comments Off on World ME Alliance asks WHO to recognise ME

WAMES & the WMEA warn against the Lightning Process

The Lightning Process: A Position Paper from the World ME Alliance   The World ME Alliance and its members do not endorse the Lightning Process for people with Myalgic Encephalomyelitis (ME), sometimes called Chronic Fatigue Syndrome (CFS).   The World … Continue reading

Posted in News | Tagged , , | Comments Off on WAMES & the WMEA warn against the Lightning Process

Make a poster for World ME day!

World ME Day custom poster maker goes live – what will you create?   Can posters, articles, posts, tweets create change?   Yes, if they show how many people are impacted by ME, and what that means. People with ME, … Continue reading

Posted in News | Tagged , , , , | Comments Off on Make a poster for World ME day!

#LearnFromME – theme for #WorldMEDay

#LearnFromME on #WorldMEday     2022 is set to be another year of a global health crisis that has caused a wave of post-viral disease, specifically the collection of symptoms known as “Long COVID” which overlap with ME. For decades … Continue reading

Posted in News | Tagged , , , , , | 1 Comment