Category Archives: News
Diagnosing ME/CFS in people with Long COVID: US CCC statement
Diagnosing ME/CFS in People with Long COVID The US ME/CFS Clinician Coalition have produced a Consensus Statement about Long COVID. Since 2020, we’ve been seeing people with Long COVID whose symptoms overlap with ME/CFS. We recommend you consider ME/CFS … Continue reading
Safe Long COVID & ME/CFS rehabilitation
Safe Long COVID Rehabilitation a video from Long COVID Physio Physiotherapists living with Long COVID have produced a short video [5 mins 15] for fellow physios explaining the importance of providing safe rehabilitation for people with LC and ME/CFS. … Continue reading
PEM: Running out of battery & feeling intensely unwell: a carer’s perspective
PEM: Running out of battery & feeling intensely unwell: a carer’s perspective I guess you’ve probably heard of Myalgic Encephalomyelitis – by its abbreviation ‘ME’. Maybe you’ve got an idea that it’s about being tired all the time. That … Continue reading
Video: Post-Exertional Malaise
Video: Post Exertional Malaise – triggers, symptoms, management Post Exertional Malaise is the hallmark symptom of ME/CFS and is also common in Long Covid. This short video from Broken Battery explains the abnormal response to exertion – triggers, symptoms … Continue reading
World ME Day: making PEM visible
World ME Day – 12 May 2023 This year for World ME Day people living with ME want to make post-exertional malaise (PEM) visible. What is post-exertional malaise, and why are we focusing on it? Post-exertional malaise (PEM) is … Continue reading
Video yourself for World ME Day 2023!
Call-to-action: Video yourself for World ME Day 2023! Follow Holly’s example and tell the world what happens when pushing harder makes you sicker, for World ME Day on May 12th. ME, or Myalgic Encephalomyelitis, is a debilitating disease that affects … Continue reading
OMF StudyME – register of willing research participants
StudyME – research participant registry The Open Medicine Foundation (OMF) in the US invites you to help speed up the research process! StudyME is a participant registry which will connect those who want to participate in research studies (wherever you … Continue reading
MRC invites ME/CFS research applications
Researching ME/CFS: highlight notice The Medical Research Council (MRC) invites applications from researchers that address 1 or more of the research areas identified by the ME/CFS Priority Setting Partnership for ME/CFS research: post-exertional malaise use of existing drugs for … Continue reading
Make a social media poster for World ME Day 2023!
Call to action: Make your own World ME day poster Demonstrate the reality of living with ME for World ME Day 2023 on May 12th 2023. Let’s make post-exertional malaise visible Share the reality of how pushing harder can … Continue reading
NHS 111 Wales web page on ME/CFS has been updated
ME/CFS on the NHS 111 Wales website Following a request from WAMES the Welsh Ambulance Services NHS Trust has updated the information page on ME/CFS on the NHS 111 Wales website ME/CFS, to take account of the 2021 NICE … Continue reading
