Tag Archives: disability
Guide to involving people with ME & energy limiting conditions
Involving people with ME and other energy limiting conditions: a guide A new publication from the The World ME Alliance aims to promote inclusivity and empower individuals with energy limiting conditions. Involving people with lived experience of disability is … Continue reading
I already have a job: Energy Limiting Chronic Illness (ELCI), social Inclusion, employment & Social Security
Centre for Welfare Reform report: I already have a job: Energy Limiting Chronic Illness (ELCI), Social Inclusion, Employment and Social Security. By Catherine Hale, Stef Benstead, Dr Kate Hardy and Dr Jo Ingold, April 2021 This report presents the … Continue reading
Modeling disability: softly making the invisible visible
Modeling disability: softly making the invisible visible, by Libby Evan (2020) Bachelor of Fine Arts Senior Papers 74 Research abstract: “I am not asking for pity. I am telling you about my disability.” – Eli Clare1 In the following … Continue reading
Functional status & well-being in people with ME/CFS compared with people with MS & healthy controls
Research abstract: Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls, by Caroline C. Kingdon, Erinna W. Bowman, Hayley Curran, Luis Nacul, Eliana M. Lacerda in PharmacoEconomics Open 2018 pp 1-12 [Online: 13 March 2018] Background: People with myalgic encephalomyelitis/chronic fatigue … Continue reading
From “sick” to “disabled”: my own journey
Chronic Illness Inclusion Project blog post, by Catherine Hale [person with ME], 13 June 2017: From “sick” to “disabled”: my own journey Catherine Hale looks back at how half a lifetime of chronic illness slowly changed her understanding of “disability”. I’ve been … Continue reading
A patient’s experience of ME/CFS and gaslighting
The Mighty blog post, by Siobhan Simper, 18 Oct 2016: We cannot continue to let doctors ‘Gaslight’ chronic illness patients Author’s warning: This post contains experiences of gaslighting and abuse. Recently, I saw an all-too-common meme on social media: the inspirational disabled … Continue reading
Rewriting the script – improving Welsh TV & film industry opportunities for all
Diverse Cymru announcement: Rewriting the Script Join Diverse Cymru for engagement events with production companies, casting agencies, education providers, funders, diverse community organisations, and diverse talent to discuss changing working practises in film and TV to reflect the diverse talent … Continue reading
The psychological impact of dependency in adults with CFS/ME
Research abstract: Chronic fatigue syndrome/myalgic encephalomyelitis can limit functional capacity, producing various degrees of disability and psychological distress. Semi-structured interviews explored the experiences of adults with chronic fatigue syndrome/myalgic encephalomyelitis being physically dependent on other people for help in daily … Continue reading
