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Guide to involving people with ME & energy limiting conditions
Involving people with ME and other energy limiting conditions: a guide A new publication from the The World ME Alliance aims to promote inclusivity and empower individuals with energy limiting conditions. Involving people with lived experience of disability is … Continue reading
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Tagged disability, WMEA, World ME Alliance
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I already have a job: Energy Limiting Chronic Illness (ELCI), social Inclusion, employment & Social Security
Centre for Welfare Reform report: I already have a job: Energy Limiting Chronic Illness (ELCI), Social Inclusion, Employment and Social Security. By Catherine Hale, Stef Benstead, Dr Kate Hardy and Dr Jo Ingold, April 2021 This report presents the … Continue reading
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Tagged Catherine Hale, Centre for Welfare Reform, disability, disability employment, Dr Jo Ingold, Dr Kate Hardy, ELCI, energy impairment, Energy Limiting Chronic Illness, Stef Benstead, Welfare reform
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Modeling disability: softly making the invisible visible
Modeling disability: softly making the invisible visible, by Libby Evan (2020) Bachelor of Fine Arts Senior Papers 74 Research abstract: “I am not asking for pity. I am telling you about my disability.” – Eli Clare1 In the following … Continue reading
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Tagged disability, disabled artists, Libby Evan, sculpture, thesis
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Project offers new bridge between chronic illness community & disability movement
Disability News service blog post by John Pring,2018: Project offers new bridge between chronic illness community and disability movement A disabled researcher has suggested a way to bring the hundreds of thousands of people with chronic illness under the umbrella … Continue reading
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Tagged Catherine Hale, Centre for Welfare Reform, Chronic Illness Inclusion Project, disability, Disability news service, disabled people, John Pring, social model
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Disability & self-employment survey
Disability and entrepreneurship survey Disability Wales has funded a pilot aiming to help disabled people explore the idea of becoming their own boss. If you have a disability (like ME) and have started to work for yourself, please to take two … Continue reading
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Tagged disability, entrepreneurship, self-employed
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Functional status & well-being in people with ME/CFS compared with people with MS & healthy controls
Research abstract: Functional Status and Well-Being in People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Compared with People with Multiple Sclerosis and Healthy Controls, by Caroline C. Kingdon, Erinna W. Bowman, Hayley Curran, Luis Nacul, Eliana M. Lacerda in PharmacoEconomics Open 2018 pp 1-12 [Online: 13 March 2018] Background: People with myalgic encephalomyelitis/chronic fatigue … Continue reading
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Tagged Caroline C Kingdon, disability, Dr Luis Nacul, Eliana M Lacerda, employment, Erinna Bowman, functional status, Hayley Curran, income, MS, Multiple Sclerosis
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The Challenges of Cancer & Disability Study – invitation to take part
The Challenges of Cancer and Disability Study (CoCaDS) If you live in Wales, have a physical disability and have had cancer, you are invited to take part in an interview-based study. The aim is to improve cancer care for people … Continue reading
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Tagged cancer, Cardiff University, disability, Dr Dikaios Sakellariou, Tenovus
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From “sick” to “disabled”: my own journey
Chronic Illness Inclusion Project blog post, by Catherine Hale [person with ME], 13 June 2017: From “sick” to “disabled”: my own journey Catherine Hale looks back at how half a lifetime of chronic illness slowly changed her understanding of “disability”. I’ve been … Continue reading
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Tagged Catherine Hale, Chronic Illness Inclusion Project, disability
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ME and me: making films about disability to raise awareness
Disability horizons blog post, by Thom Jackson-Wood: ME and me: making films about disability to raise awareness Disabled writer and actor Thom Jackson-Wood, who has ME, talks to Disability Horizons about his films, Awaken and The Black Box, both of … Continue reading
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Tagged disability, film production, Thom Jackson-Wood
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Election manifestos & disability issues
DRUK blog post: General Election manifestos 2017 Disability Rights UK is publishing links to the main 2017 general election party manifestos as they are published, with a selected list of proposals, which affect disabled people, taken from the relevant manifesto: Benefits, accessibility, … Continue reading
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Tagged disability, General election, Political parties manifestos
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