Category Archives: News

Millions missing – add yourself to the global disease map

Posted on 09/06/2016 by wames

The group ME Advocacy is asking everyone with ME to place themselves onto www.diseasemaps.org under “Chronic Fatigue Syndrome/M.E.”.  This will help the “Millions missing” with this “Forgotten Plague” to be more visible, and will help people find others in their … Continue reading →

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The association between borderline personality disorder, FM & CFS: systematic review

Posted on 09/06/2016 by wames

Review abstract: Background: Overlap of aetiological factors and demographic characteristics with clinical observations of comorbidity has been documented in fibromyalgia syndrome, chronic fatigue syndrome (CFS) and borderline personality disorder (BPD). Aims: The purpose of this study was to assess the … Continue reading →

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Global protest 27 Sep 2016 for the ‘Millions missing’ due to ME

Posted on 09/05/2016 by wames

There are #MillionsMissing from their lives because of Myalgic Encephalomyelitis (ME), a debilitating neuroimmune disease. In May 2016 there were peaceful protests in 13 cities including Belfast. On September 27th, the #MillionsMissing will once again protest around the world, including Cardiff and Bristol. Join … Continue reading →

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Post-exercise muscle fatigue, oxidative stress & CD26 expression correlate to impaired quality of life in ME/CFS

Posted on 09/02/2016 by wames

Research abstract: Background: Myalgic encephalomyelitis chronic fatigue syndrome (ME/CFS) is a common debilitating disorder associated with an intense fatigue, a reduced physical activity, and an impaired quality of life. There are no established biological markerof the syndrome. The etiology is … Continue reading →

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Metabolomic study finds amino acid deprivation impacts pain in ME/CFS

Posted on 09/02/2016 by wames

ME Australia blog post: Metabolomic study finds amino acid deprivation impacts pain, by Sasha Nimmo, 1 September 2016 A team of Australian scientists looked at biochemistry changes connected with pain and kidney function, identifying the biological basis of the development of widespread pain (July 2016). … Continue reading →

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A subset of ME/CFS patients have IBS

Posted on 09/01/2016 by wames

Research abstract: BACKGROUND: There is evidence that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is accompanied by gastro-intestinal symptoms; and IgA and IgM responses directed against lipopolysaccharides (LPS) of commensal bacteria, indicating bacterial translocation. METHODS: This study was carried out to examine … Continue reading →

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Naviaux’s ME/CFS ground-breaking metabolomics results says Prof Davis

Posted on 09/01/2016 by wames

Open Medicine Foundation blog post, by Prof Ron Davis, 30 August 2016: ME/CFS ground-breaking metabolomics results by Naviaux RK, et al The publication, “Metabolic Features of Chronic Fatigue Syndrome” by Naviaux RK, et al. is a landmark in ME/CFS research. … Continue reading →

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Midodrine is effective for orthostatic hypotension

Posted on 08/31/2016 by wames

Research abstract: OBJECTIVE Midodrine hydrochloride is a short-acting pressor agent that raises blood pressure in the upright position in patients with orthostatic hypotension. The US Food and Drug Administration’s Subpart H approval, under which midodrine was initially approved, requires post-marketing … Continue reading →

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Creativity and illness: Marion’s story on Radio 4

Posted on 08/31/2016 by wames

Women’s Hour on BBC Radio Four: “Creativity and illness: Marion’s Story” Marion Michell has lived with ME and chronic fatigue for the last 17 years. She talks about  how she became an artist through rediscovering crochet. Listen to Marion [Duration: … Continue reading →

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CFS could be the body trying to hibernate

Posted on 08/31/2016 by wames

The Times comments on Naviaux et al’s chemical signature research, by Tom Whipple, 30 August 2016: Chronic fatigue syndrome could be the body trying to hibernate An estimated 250,000 people have CFS in Britain. The disease, which is difficult to … Continue reading →

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