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Trial By Error: Professor Edwards’ letter to MRC’s Fiona Watt
Virology blog post, by David Tuller, DrPH, 28 August 2018: Trial By Error: Professor Edwards’ Letter to MRC’s Fiona Watt Jonathan Edwards, an emeritus professor of medicine at University College London, recently sent a letter to Professor Fiona Watt, executive … Continue reading
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Tagged Medical Research Council, MRC, PACE trial, Prof Fiona Watt, Prof Jonathan Edwards, Times
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MRC supports the PACE trial & promotes data sharing
MRC supports the PACE trial & promotes data sharing On 27th August 2018 the Medical Research Council (MRC) responded to the online article in the Times, which reported the call for a review of the PACE trial. The following day … Continue reading
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Tagged Medical Research Council, PACE trial, Times
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Forward ME Group writes to the Times: patients are ‘not simply deconditioned’
Times online letter, 22 March 2018: TREATMENT FOR PATIENTS WITH ME Sir, The article by Tom Whipple, (“Findings of £5m ME chronic fatigue study ‘worthless’,” Mar 22) highlights a long-standing problem. The National Institute for Health and Care Excellence (Nice) … Continue reading
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Tagged Forward ME Group, GET, graded exercise therapy, Times
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PACE Trial reanalysis in the news – Findings of £5m ME chronic fatigue study ‘worthless’
Times article, by Tom Whipple, Science Editor, 22 March 2018: Findings of £5m ME chronic fatigue study ‘worthless’ [register for free to read 2 articles a week] Scientists have questioned the robustness of a study that recommended exercise and cognitive behavioural therapy … Continue reading
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Tagged Action for ME, AfME, BBC news, Daily Mail, ME Association, PACE trial, Simon McGrath, The Canary, The Herald, Times, Tom Whipple
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Dr Mark Porter on the challenge of IBS, pregabalin & BAD
The Times article, by Dr Mark Porter, 18 October 2016: Not all of the six million Brits who think they have IBS need to hang on for the new wonder drug “Part of the challenge is that IBS is unlikely … Continue reading
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Tagged BAD, cholestyramine, Dr Mark Porter, gastroenteritis, IBS, idiopathic bile acid diarrhoea, Irritable bowel syndrome, pregabalin, Times
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Exercise and therapy cure for ME is ‘seriously flawed’
Times article, by Tom Whipple, 28 September 2016: Exercise and therapy cure for ME is ‘seriously flawed’ A landmark study suggesting that ME could be treated with exercise and psychological intervention is seriously flawed, scientists have claimed. If correct, it … Continue reading
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Tagged exercise therapy, GET, graded exercise therapy, Prof George Lewith, Prof Peter White, Prof Philip Stark, Times, Tom Whipple
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CFS misdiagnosis – how a teen diagnosed her own rare illness
The Times article, by Mike Pattenden, 16 August 2016: How a teen diagnosed her own rare illness Should you google your symptoms? This 13-year-old did, and it helped to save her life Have you had a niggling pain bothering you … Continue reading
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Tagged Amelia Ferguson, Mike Pattenden, misdiagnosis, pandysautonomia, Times
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Pace, do not go for boom or bust says Dr Mark Porter
Times article, January 26 2016: Managing chronic fatigue is all about pace — do not go for boom or bust by Dr Mark Porter: New research suggesting that chronic fatigue syndrome is more common in teenagers than previously thought is bound … Continue reading
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Tagged adolescents, Dr Mark Porter, pacing, teenagers, Times
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Biological breakthrough reported
The TIMES newspaper reported on the launch of the UK CFS/ME Research Collaborative (UK CMRC) on 23 April 2013: Scientists have found compelling new evidence of an underlying biological cause for the constant fatigue suffered by ME patients. The study … Continue reading
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Tagged Prof Julia Newton, Times, UK CFS/ME Research Collaborative, UK CMRC
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