Category Archives: News
The importance of clinical intuition when treating ME/CFS
Treatment Strategies for MECFS/FM, By Suzanne D. Vernon PhD, February 11 2016 An author discusses her newly released paper and cites the importance of clinical intuition when treating ME CFS/FM: In 2012 I organized a meeting at the Banbury Center, Cold … Continue reading
WAMES writes in support of releasing PACE trial data
Today WAMES, joins the ME Association, Tymes Trust, 25% Group, Invest in ME and Hope for ME in calling for the release of PACE trial data so that an independent investigation can begin: To: Records and Information Compliance Manager, Queen … Continue reading
Orosomucoid (ORM) a potential biomarker for the diagnosis of CFS
ME Research UK article, 11 Feb 2016: Orosomucoid and ME/CFS Most scientific reports either confirm what we already know or reveal mildly interesting findings that contribute to the field in a small way. Every now and then, however, a research … Continue reading
CFS/ME diagnosis in Norway
Research abstract: BACKGROUND Chronic fatigue is a frequently occurring problem in both the primary and specialist health services. The Department of Neurology at Haukeland University Hospital has established a standard assessment for patients referred with suspected CFS/ME. This study reports … Continue reading
Genetic variations found in ME/CFS
Research abstract: Myalgic encephalomyelitis, also known as chronic fatigue syndrome or ME/CFS, is a multifactorial and debilitating disease that has an impact on over 4 million people in the United States alone. The pathogenesis of ME/CFS remains largely unknown; however, a genetic predisposition has … Continue reading
Is facebook helpful for people with CFS/ME?
Phd thesis abstract: This portfolio thesis comprises of three parts. The first part is a systematic literature review, in which empirical literature relating to the use of Facebook groups in health conditions is explored. It aims to provide an understanding of how individuals … Continue reading
Does CFS have a neurological origin?
Review abstract: Chronic Fatigue Syndrome (CFS) is distinguished by a persistent malaise and lethargy that physical or mental exertion exacerbates for a period of several days. Sufferers can identify a clear-cut beginning to their condition. In many, it follows a … Continue reading
3 more UK doctors join request for independent inquiry into PACE Trial
Dr Charles Shepherd, Dr Nigel Speight, and infectious diseases consultant Dr William Weir have joined 39 other signatories to the open letter to the Lancet which first appeared on Prof Vincent Rancaniello’s ‘Virology’ blog on November 13 2015. The letter was … Continue reading
Patients’ thoughts about the PACE trial
Flat Earth and PACE – both on the wrong side of science PACE and geocentrism – both on the wrong side of science Why the PACE researchers and their institutions affectation of concern for participants is particularly sickening hypocrisy My … Continue reading
Replacing ME and CFS with SEID is not the way forward
Abstract of discussion paper: Myalgic encephalomyelitis (ME), described in the medical literature since 1938, is characterized by distinctive muscular symptoms, neurological symptoms, and signs of circulatory impairment. The only mandatory feature of chronic fatigue syndrome (CFS), introduced in 1988 and redefined … Continue reading
