Tag Archives: Queen Mary University of London

PACE trial results were grossly exaggerated

Occupy ME blog post, by Jennie Spotila, 21 Sep 2016: PACE: Grossly Exaggerated On September 9, 2016, Queen Mary University of London released data from the PACE trial in compliance with a First Tier Tribunal decision on a Freedom of … Continue reading

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QMUL announces they will release the PACE data

ME Action blog post by Alex Anderssen, 9 September 2016: QMUL releases the PACE data Queen Mary University of London (QMUL) has released the PACE data to a patient who requested it under the Freedom of Information Act, as ordered by a … Continue reading

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Dr Tuller’s questions for Lancet Editor Dr Horton on handling of PACE trial issues

Virology blog post, by David Tuller DrPH, 1 September 2016: Trial By Error, Continued: My Questions for Lancet Editor Richard Horton  In January, I posted a list of the questions I still wanted to ask the PACE authors, who have … Continue reading

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Professor says tribunal was right to order release of PACE trial data

The Conversation blog post, by Prof Jo Edwards, 26 August 2016: Tribunal was right to order release of chronic fatigue trial data After nearly four months deliberation a tribunal has dismissed an appeal made by Queen Mary University of London (QMUL) … Continue reading

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More PACE trial tribunal comments

PACE trial ruling: Respondent Alem Mathees main response The essential daily briefing, 19 August 2016: Chronic Fatigue Syndrome sufferers have just had a small victory Health Rising discussion, 17 August 2016: The PACE Trial’s Big Stumble: UK Tribunal Orders Release of PACE … Continue reading

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Tribunal orders release of PACE data

ME Action blog post, by Alex Anderssen, 16 August 2016: Tribunal orders release of PACE data A tribunal panel has ordered Queen Mary University of London (QMUL) to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient … Continue reading

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The cost of fighting PACE trial data-sharing

johnthejack blog post, 29 June 29 2016: Using public money to keep publicly funded data from the public After publication of the PACE trial comparing different interventions (Cognitive Behavioural Therapy [CBT], Graded Exercise Therapy [GET], Adaptive Pacing Therapy and Specialist Medical Care) for … Continue reading

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PLOS One journal restates position on data sharing to Prof Coyne

In the standoff over release of the PACE PLOS One trial data, has the journal just blinked? by James Coyne, 7 April 2016 I just received (April 7, 2016) another communication from the Managing Editor of PLOS One reporting  an … Continue reading

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WAMES writes in support of releasing PACE trial data

Today WAMES, joins the ME Association, Tymes Trust, 25% Group, Invest in ME and Hope for ME in calling for the release of PACE trial data so that an independent investigation can begin: To: Records and Information Compliance Manager, Queen … Continue reading

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PACE Freedom of Information request to be appealed

On 26 November 2015, it became apparent that QMUL was appealing the decision of the ICO. (Information Commissioner’s Office) The appeal is to the First-Tier Tribunal (Information Rights). The complainant can choose whether or not to be joined as a … Continue reading

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