Tag Archives: QMUL

QMUL announces they will release the PACE data

Posted on 09/10/2016 by wames

ME Action blog post by Alex Anderssen, 9 September 2016: QMUL releases the PACE data Queen Mary University of London (QMUL) has released the PACE data to a patient who requested it under the Freedom of Information Act, as ordered by a … Continue reading →

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Dr Tuller’s questions for Lancet Editor Dr Horton on handling of PACE trial issues

Posted on 09/02/2016 by wames

Virology blog post, by David Tuller DrPH, 1 September 2016: Trial By Error, Continued: My Questions for Lancet Editor Richard Horton  In January, I posted a list of the questions I still wanted to ask the PACE authors, who have … Continue reading →

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Professor says tribunal was right to order release of PACE trial data

Posted on 08/29/2016 by wames

The Conversation blog post, by Prof Jo Edwards, 26 August 2016: Tribunal was right to order release of chronic fatigue trial data After nearly four months deliberation a tribunal has dismissed an appeal made by Queen Mary University of London (QMUL) … Continue reading →

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The cost of fighting PACE trial data-sharing

Posted on 07/01/2016 by wames

johnthejack blog post, 29 June 29 2016: Using public money to keep publicly funded data from the public After publication of the PACE trial comparing different interventions (Cognitive Behavioural Therapy [CBT], Graded Exercise Therapy [GET], Adaptive Pacing Therapy and Specialist Medical Care) for … Continue reading →

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WAMES writes in support of releasing PACE trial data

Posted on 02/17/2016 by wames

Today WAMES, joins the ME Association, Tymes Trust, 25% Group, Invest in ME and Hope for ME in calling for the release of PACE trial data so that an independent investigation can begin: To: Records and Information Compliance Manager, Queen … Continue reading →

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