Category Archives: News
$500,000 grant for the OMF ME/CFS Severely Ill-BIG DATA Study
A very generous anonymous donor has expressed confidence in Open Medicine Foundation (OMF) research by donating $500,000 to expand the OMF ME/CFS Severely Ill Big Data Study. Just a few months ago, they reached their goal of $1 million to do … Continue reading
Skin conditions in POTS are common and diverse
Research abstract: Background and Purpose: Postural tachycardia syndrome (POTS) is a syndrome of orthostatic intolerance in the setting of excessive tachycardia with orthostatic challenge, and these symptoms are relieved when recumbent. Apart from symptoms of orthostatic intolerance, there are many … Continue reading
Abnormal brain activity found in women with CFS
Research abstract: The biological underpinnings of the psychological factors characterizing chronic fatigue syndrome (CFS) have not been extensively studied. Our aim was to evaluate alterations of resting-state functional connectivity in CFS patients. Participants comprised 18 women with CFS and 18 … Continue reading
Psychologist James Coyne’s request for PACE trial data
New blog posts about the PACE Trial, etc. by James C. Coyne, a highly published psychologist. He outlines the details of his request for data from the PACE trial and the delaying tactics employed by the researchers, 4 Dec 2015: Update … Continue reading
The role of the hippocampus in ME/CFS
Article abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a severe acquired illness characterized by a profound sensation of fatigue, not ameliorated by rest and resulting in a substantial decrease in the amount and quality of occupational, social and recreational activities. Despite … Continue reading
BBC TV show Doctors features ME
The BBC1 tv series ‘Doctors’ featured a very positive and very well researched programme on Dec 4 2015, which includes a segment with a man who has ME or CFS. Tony Britton from the ME Association advised the producers. Series 17 Episode … Continue reading
The experiences of fatigue in CFS, ME, PIFS
Research article abstract: Background: Fatigue is a major problem among individuals with post-infectious fatigue syndrome (PIFS), also known as chronic fatigue syndrome or myalgic encephalomyelitis. It is a complex phenomenon that varies across illnesses. From a nursing perspective, knowledge and … Continue reading
Dr Alan Light lecture on Youtube Thurs 3 Dec 2am
Free Education Meeting: “Partnerships to Accelerate Biomarker & Mechanism Discovery in ME/CFS and Fibromyalgia” Presented by Dr. Alan Light Wednesday, December 2nd, 2015 8pm Central / Thursday 2am GMT Salt Lake County Complex, North Building, 2001 S. State Street, SLC, … Continue reading
Abnormal cytokine/chemokine profile in ME/CFS is associated with clinical symptoms
Research highlights: Abnormal cytokine/chemokine profile in ME/CFS associated with clinical symptoms. A cluster of IL-16, IL-7 and VEGF-A that may suggests neuro-inflammation as the pathogenesis mechanism in ME/CFS. Potential diagnostic biomarkers proven by vigorous mathematical/statistical analysis. Abstract: Recently, differences in … Continue reading
Beyond tired: an overview of the IOM report on CFS/SEID
Article: Beyond Tired: Is chronic fatigue syndrome a real medical condition? Yes, according to a report from the Institute of Medicine, which urges physicians to treat it accordingly, by Dolan, Darrach in Neurology Now, October/November 2015, Vol 11, Issue 5, … Continue reading
