Category Archives: News

CFS patients respond differently to gastrointestinal disorders following giardia outbreak

A Swedish study finds differences in the cells of people with both CFS and gastronitestinal disorders, suggesting immunological abnormality.  Abstract: BACKGROUND:  A Giardia outbreak was associated with development of post-infectious functional gastrointestinal disorders (PI-FGID) and chronic fatigue syndrome (PI-CFS). Markers … Continue reading

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Lixdexamfetamine dimesylate helps functioning, fatigue and pain in CFS subgroup

A drug commonly used for ADHD (Attention deficit hyperactivity disorder) has been trialled by JL Young in the USA.  Lixdexamfetamine dimesylate is in the amphetamine family and is rapidly absorbed into the body and converted to dextroamphetamine, which is responsible … Continue reading

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Antiviral valganciclovir helps CFS subgroup

In a study by Dr Jose Montoya in the USA half of CFS patients suffering from HHV-6 and EBV viruses make an improvement of 30% or more. Abstract Valganciclovir has been reported to improve physical and cognitive symptoms in patients … Continue reading

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Resources for the diagnosis and management of CFS/ME in primary care

Researchers from Manchester have developed resources to support the diagnosis and management of CFS/ME in primary care. Abstract NICE guidelines emphasise the need for a confident, early diagnosis of Chronic Fatigue Syndrome/ Myalgic Encephalitis (CFS/ME) in Primary Care with management … Continue reading

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ME/CFS Primer for clinical practitioners

The International Association for Chronic Fatigue Syndrome/ME (IACFS/ME) has published a Primer for clinical practitioners. It is available as a PDF file and is free to download, though donations are invited. A 42 page spiral bound print booklet can be … Continue reading

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Pioneer for ME, David Lewis 1939- 2012

Paediatrician David Lewis has died of pancreatic cancer at the age of 73.  As a consultant paediatrician at Bronglais hospital, Aberystwyth, he was one of very few doctors in Wales to take ME seriously in the 1980s and 1990s. His … Continue reading

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Herpesvirus and parvovirus found in ME/CFS

A Latvian study was published in Advances in Virology: Association of active human herpesvirus-6, -7 and parvovirus b19 infection with clinical outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome. Abstract: Frequency of active human herpesvirus-6, -7 (HHV-6, HHV-7) and parvovirus … Continue reading

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Clonidine in the treatment of adolescent CFS: pilot study

Norwegian researchers have completed a trial into the use of Clonidine with adolescents with CFS. Clonidine is used for a wide range of disorders including hypertension, neuropathic pain, ADHD, anxiety/panic disorder, migraine and hot flushes. ABSTRACT: BACKGROUND: This pilot study … Continue reading

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Mitochondrial dysfunction found in ME/CFS

Abstract: The objectives of this study are to test the hypothesis that the fatigue and accompanying symptoms of Chronic Myalgic Encephalomyelitis/ Fatigue Syndrome are in part due to defects in energy provision at the cellular level, and to understand the … Continue reading

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Michelle Penny – Living with ME for the last 17 years

For the last 17 years, Michelle Penny has been crippled by chronic fatigue and pain, which has left her virtually bed-bound. She tells Rachel Mainwaring what it’s like living with ME at Wales online. Excerpts: “I relapsed in October and … Continue reading

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