Survey of severe ME

Dr Keith Geraghty & Manchester University are conducting a study to better understand the needs and views of patients with severe ME/CFS.

This project has been commissioned by the National Institute of Health and Care Excellence (NICE) to  provide them with up-to-date information that might help inform the NICE Guideline Committee as they to undertake a review of treatment guidelines for this illness.

Who is eligible to take part?

  • adults aged 18 and over, living in England & Wales.
  • they want to hear from you if you consider you have been severely affected / limited by ME.
  • If that was in the past and you have improved, they still want to hear from you.

About the questionnaire

  • Short deadline to meet NICE’s requirements: 20th November
  • Available online only, but you can preview the questions here
  • It could take 45 mins to complete but you can save pages to pace yourself.

If you change your mind

You are able to opt out of this study within 2 weeks after you complete the online survey. After this time your data may form part of a report or dataset that cannot be changed. You can have your personal details deleted at anytime.

More information & to take part in the survey:

This entry was posted in News and tagged , , , , . Bookmark the permalink.

Comments are closed.