Tag Archives: NICE

NICE stakeholder workshop reports

NICE CG53 Stakeholder engagement meeting This week NICE held an introductory stakeholder meeting in London. There were limited places at the meeting and WAMES’ request to join the meeting by video conference was not successful. Future meetings will require a trip to London. NICE … Continue reading

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Trial by Error: NICE Declines to Disclose Names of Experts

Virology blog post, by Dr David Tuller, 24 July 2017: Trial by Error: NICE Declines to Disclose Names of Experts The Countess of Mar, a well-known advocate for ME/CFS patients in the House of Lords, has received a negative response … Continue reading

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ME charity responses to NICE consultation

Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME   25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading

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Countess of Mar asks UK Parliament about NICE & ME/CFS

The Countess of Mar asked written questions to the UK Parliament on the topic of NICE and ME/CFS. HL637: 10 July 2017 Q.  Her Majesty’s Government who were the experts the National Institute for Health and Clinical Excellence consulted in their recent … Continue reading

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MEA research grant to Dr Keith Geraghty to examine two controversial ME/CFS treatments recommended by NICE

ME Association blog post, 13 July 2017: ME Association provide new research grant to Dr Keith Geraghty to examine two controversial ME/CFS treatments recommended by NICE ME Association trustees have approved a new research grant that will critically examine the … Continue reading

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NICE takes a dim view of foreign work on ME/CFS

ME Association news blog post, 24 October 2016: NICE takes a dim view of foreign work on ME/CFS – Robin Ellis Freedom of Information request The main supplier of England’s drugs and treatment guidelines, the National Institute for Health and Clinical … Continue reading

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The significance to ME/CFS of the change to the UK Law on consent

S Campbell writes in Phoenix rising forum, Dec 23 2015: In March this year there was a landmark change to the UK law on consent which has significant implications for patients with ME/CFS. For full details of this change in … Continue reading

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NICE corrects classification of CFS/ME

From Tymes Trust: Tyme Trust discovered over the parliamentary recess that NICE had listed the CFS/ME Guideline under mental health. We immediately alerted Patron the Countess of Mar, of whose Forward-ME  group we are a member. NICE’s listing could already have … Continue reading

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NHS service provision for severe ME/CFS in England

Abstract Background: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), in its most severe clinical presentation, can result in patients becoming housebound and bedbound so unable to access most available specialist services. This presents particular clinical risks and treatment needs for which the … Continue reading

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Prudent healthcare and ME

On 16th January 2014 the Health Minister introduced the principles of ‘Prudent healthcare’ which would shape future development of services in NHS Wales: Do no harm Undertake the minimum appropriate intervention Work in co-production with the patient, to consider “what … Continue reading

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