- Expert consensus on the diagnosis, service provision & care of people with ME/CFS in Europe (EUROMENE)
- Disability Benefits – what help is available?
- Analysis of gender differences in HRV of patients with M/CFS using mobile-health technology
- £5m for post-viral long COVID. £0 for post-viral ME/CFS!
- Systematic review of sleep characteristics in ME/CFS
Tag Archives: NICE
NICE ME/CFS Guideline to be published April 2021 WAMES has received notification from NICE about the dates the stakeholder meetings will reconvene, and the proposed publication date of the revised ME/CFS clinical guideline. 24/6/20 Dear Stakeholder, As you … Continue reading
Survey of severe ME Dr Keith Geraghty & Manchester University are conducting a study to better understand the needs and views of patients with severe ME/CFS. This project has been commissioned by the National Institute of Health and Care Excellence (NICE) … Continue reading
NICE CG53 Stakeholder engagement meeting This week NICE held an introductory stakeholder meeting in London. There were limited places at the meeting and WAMES’ request to join the meeting by video conference was not successful. Future meetings will require a trip to London. NICE … Continue reading
Virology blog post, by Dr David Tuller, 24 July 2017: Trial by Error: NICE Declines to Disclose Names of Experts The Countess of Mar, a well-known advocate for ME/CFS patients in the House of Lords, has received a negative response … Continue reading
Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME 25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading
The Countess of Mar asked written questions to the UK Parliament on the topic of NICE and ME/CFS. HL637: 10 July 2017 Q. Her Majesty’s Government who were the experts the National Institute for Health and Clinical Excellence consulted in their recent … Continue reading
MEA research grant to Dr Keith Geraghty to examine two controversial ME/CFS treatments recommended by NICE
ME Association blog post, 13 July 2017: ME Association provide new research grant to Dr Keith Geraghty to examine two controversial ME/CFS treatments recommended by NICE ME Association trustees have approved a new research grant that will critically examine the … Continue reading
ME Association news blog post, 24 October 2016: NICE takes a dim view of foreign work on ME/CFS – Robin Ellis Freedom of Information request The main supplier of England’s drugs and treatment guidelines, the National Institute for Health and Clinical … Continue reading
From Tymes Trust: Tyme Trust discovered over the parliamentary recess that NICE had listed the CFS/ME Guideline under mental health. We immediately alerted Patron the Countess of Mar, of whose Forward-ME group we are a member. NICE’s listing could already have … Continue reading