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Tag Archives: Freedom of Information request
GMC told to tell Dr Myhill reason for not investigating PACE complaint
Dr Myhill blog post, 1 Oct 2019: My Complaint to the GMC about the PACE authors 1 OCTOBER 2019 – UPDATE – ICO SLAPS DECISION NOTICE ON GMC! You can download the full Signed Decision Notice here – ICO Full … Continue reading
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Tagged Dr Sarah Myhill, Freedom of Information request, General Medical Council, GMC, Information Commissioner’s Office, PACE trial
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PACE Trial Committee & Team Minutes available online
PACE trial minutes John Peters from Swansea requested the minutes of meetings of the Trial Steering Committee and Trial Management Group of the PACE trial. Queen Mary University of London refused on the grounds that it would be ‘prejudicial to … Continue reading
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Tagged FOI, Freedom of Information request, Information Commissioner’s Office, John Peters, PACE trial
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Trial By Error: The NICE “Topic Expert” Reports (FOI)
Virology blog post, by David Tuller, 11 September 2017: Trial By Error: The NICE “Topic Expert” Reports Freedom of Information requests to NICE My first recent freedom of information request to the National Institute for Health and Care Excellence (NICE) … Continue reading
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Tagged David Tuller, FOI, Freedom of Information request, NICE guidelines, Virology blog
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NICE takes a dim view of foreign work on ME/CFS
ME Association news blog post, 24 October 2016: NICE takes a dim view of foreign work on ME/CFS – Robin Ellis Freedom of Information request The main supplier of England’s drugs and treatment guidelines, the National Institute for Health and Clinical … Continue reading
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Tagged Countess of Mar, FOI, Freedom of Information request, Institute of Medicine, National Institute for Health and Care Excellence, NICE, Prof Mark Baker, Robin Ellis
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Professor says tribunal was right to order release of PACE trial data
The Conversation blog post, by Prof Jo Edwards, 26 August 2016: Tribunal was right to order release of chronic fatigue trial data After nearly four months deliberation a tribunal has dismissed an appeal made by Queen Mary University of London (QMUL) … Continue reading
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Tagged Alem Matthees, data sharing, FOI, Freedom of Information request, PACE trial, Prof Jonathan Edwards, QMUL, Queen Mary University of London
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Tribunal orders release of PACE data
ME Action blog post, by Alex Anderssen, 16 August 2016: Tribunal orders release of PACE data A tribunal panel has ordered Queen Mary University of London (QMUL) to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient … Continue reading
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Tagged Alem Matthees, Freedom of Information request, Information Commissioner’s Office, PACE trial, Queen Mary University of London, Simon McGrath, Solve ME/CFS, Steven Lubet, Tom Kindlon, Trevor Butterworth, Valerie Eliot Smith
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QMUL spent £250,000 on PACE data tribunal
MEAction blog post by Alex Anderssen, 9 July 2016: QMUL spend £250,000 on PACE data tribunal Queen Mary University of London (QMUL) have revealed that they spent £250,000 on legal fees in the recent tribunal concerning the release of anonymised data … Continue reading
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Tagged FOI, Freedom of Information request, MEAction, PACE trial
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The cost of fighting PACE trial data-sharing
johnthejack blog post, 29 June 29 2016: Using public money to keep publicly funded data from the public After publication of the PACE trial comparing different interventions (Cognitive Behavioural Therapy [CBT], Graded Exercise Therapy [GET], Adaptive Pacing Therapy and Specialist Medical Care) for … Continue reading
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Tagged Alem Matthees, data sharing, David Tuller, Freedom of Information request, johnthejack, PACE trial, Prof James C Coyne, QMUL, Queen Mary University of London, Rebeca Goldin, Valerie Eliot Smith
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Misleading medical research underpins disability cuts
Centre for Welfare Reform report, by George Faulkner, 14 April 2016: In the Expectation of Recovery: misleading medical research and welfare reform Description / abstract: The attack by the UK Government on disability benefits has only just started to receive mainstream … Continue reading
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Tagged Benefits, biopsychosocial model, Centre for Welfare Reform, Department of Work and Pensions, disability, DWP, FOI, Freedom of Information request, George Faulkner, Lancet, PACE trial, Welfare reform
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4 scientists make PACE trial FOI request
MEAction article: Davis, Tuller, Racaniello and Levin issue FOI request for PACE data Yesterday [16 Dec] four scientists, led by world-famous geneticist Professor Ronald Davis, added to the pressure for scientific transparency on the PACE trial by making a request … Continue reading
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Tagged David Tuller, FOI, Freedom of Information request, PACE trial, Prof Bruce Levin, Prof Ronald W Davis, Prof Vincent Racaniello
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