Tag Archives: Countess of Mar

Margaret, Countess of Mar, & ME advocate, retires

ME Research UK: The Countess of Mar – an Appreciation 1 May 2020 From 1st May 2020, when the Countess of Mar retires officially from the House of Lords after almost 45 years’ service, the ME community will be losing … Continue reading

Posted in News | Tagged , , , | Comments Off on Margaret, Countess of Mar, & ME advocate, retires

Forward ME group writes to the Science Media Centre

ME Research UK blog post, 5 April 2018: Forward-ME Group Letter – Science Media Group Forward-ME Group Letter Forward-ME Group Chair, The Countess of Mar, has written on behalf of the members of the Group to the Chief Executive of … Continue reading

Posted in News | Tagged , , | Comments Off on Forward ME group writes to the Science Media Centre

Forward-ME Group meeting minutes 7 Feb 2018

Forward ME Group minutes Forward-ME consists of charities and voluntary organisations invited by the Countess of Mar to meet from time to time. The Aim of Forward-ME is to promote effective joint working by ME and CFS organisations to maximise impact … Continue reading

Posted in News | Tagged , , | Comments Off on Forward-ME Group meeting minutes 7 Feb 2018

Forward ME Group minutes 10 Jan 2018

ME Research UK blog post, 12 Feb 2018: Forward ME Group Minutes – 10th January 2018 Minutes of the meeting held  in Residence 2, House of Lords, Wednesday 10 January 2018 starting 2pm Present: Countess of Mar (Chairman); Dr Charles … Continue reading

Posted in News | Tagged , | Comments Off on Forward ME Group minutes 10 Jan 2018

The end of the All Party Parliamentary Group on M.E.

Forward-ME Statement: All Party Parliamentary Group on M.E. update and next steps Following discussion between elected officers, the joint Secretariat, and M.E. charity partners, the All Party Parliamentary Group on M.E. (APPG) will not be re-registered at this time. The … Continue reading

Posted in News | Tagged , , , | Comments Off on The end of the All Party Parliamentary Group on M.E.

Countess of Mar asks UK Parliament about NICE & ME/CFS

The Countess of Mar asked written questions to the UK Parliament on the topic of NICE and ME/CFS. HL637: 10 July 2017 Q.  Her Majesty’s Government who were the experts the National Institute for Health and Clinical Excellence consulted in their recent … Continue reading

Posted in News | Tagged , , , | Comments Off on Countess of Mar asks UK Parliament about NICE & ME/CFS

House of Lords debate on MUS – Countess of Mar & Lord Hunt speak out for ME/CFS

They work for you transcript of House of Lords debate, 4 July 2017: Medically Unexplained Symptoms The Countess of Mar To ask Her Majesty’s Government who is responsible for ensuring the implementation by Clinical Commissioning Groups and hospital providers of … Continue reading

Posted in News | Tagged , , , , | Comments Off on House of Lords debate on MUS – Countess of Mar & Lord Hunt speak out for ME/CFS

GP education & training discussed at Forward ME meeting 7 Feb 2017

The Minutes of the Forward ME Group Meeting held in the Television Interview Room at the House of Lords on Tuesday 7 February 2017, have been posted on the Forward ME website. The guest speaker was Professor Ian Curran Assistant Director … Continue reading

Posted in News | Tagged , , , , | Comments Off on GP education & training discussed at Forward ME meeting 7 Feb 2017

New draft version of WHO classification of disease due April 2017

Parliamentary written question & answer: Neurology: Written question – HL5683 asked by The Countess of Mar on 27 February 2017 The Countess of Mar, who chairs the Forward-ME Group of ME/CFS charities, tabled this written question on February 27: “To ask … Continue reading

Posted in News | Tagged , , , , , | 2 Comments

Correspondence continues between Countess of Mar & BBC

The Countess of Mar was unhappy about the BBC’s reply on 21 November 2016 to her official complaint about their reporting of the proposed UK FITNET trial. On 8 December the Countess wrote to the BBC director-general and this has been published by … Continue reading

Posted in News | Tagged , , , | Comments Off on Correspondence continues between Countess of Mar & BBC