Tag Archives: Information Commissioner’s Office

PACE Trial Committee & Team Minutes available online

PACE trial minutes John Peters from Swansea requested the minutes of meetings of the Trial Steering Committee and Trial Management Group of the PACE trial. Queen Mary University of London refused on the grounds that it would be ‘prejudicial to … Continue reading

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Tribunal orders release of PACE data

ME Action blog post, by Alex Anderssen, 16 August 2016: Tribunal orders release of PACE data A tribunal panel has ordered Queen Mary University of London (QMUL) to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient … Continue reading

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PLOS One journal restates position on data sharing to Prof Coyne

In the standoff over release of the PACE PLOS One trial data, has the journal just blinked? by James Coyne, 7 April 2016 I just received (April 7, 2016) another communication from the Managing Editor of PLOS One reporting  an … Continue reading

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10 organisations call for PACE data release, AYME refuses

ME Action article, 6 March 2016: Ten organisations call for PACE data release, AYME refuses Ten organisations so far have joined ME/CFS patient Clark Ellis’s call to Queen Mary University of London (QMUL) to release data from the PACE trial … Continue reading

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Government orders release of PACE trial data

The ME Action blog reports that the Information Commissioner’s Office (ICO) has ordered Queen Mary University of London to release anonymized PACE trial data to an unnamed complainant. Queen Mary has 28 days to appeal the decision. The report outlines … Continue reading

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