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GMC told to tell Dr Myhill reason for not investigating PACE complaint
Dr Myhill blog post, 1 Oct 2019: My Complaint to the GMC about the PACE authors 1 OCTOBER 2019 – UPDATE – ICO SLAPS DECISION NOTICE ON GMC! You can download the full Signed Decision Notice here – ICO Full … Continue reading
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Tagged Dr Sarah Myhill, Freedom of Information request, General Medical Council, GMC, Information Commissioner’s Office, PACE trial
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PACE Trial Committee & Team Minutes available online
PACE trial minutes John Peters from Swansea requested the minutes of meetings of the Trial Steering Committee and Trial Management Group of the PACE trial. Queen Mary University of London refused on the grounds that it would be ‘prejudicial to … Continue reading
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Tagged FOI, Freedom of Information request, Information Commissioner’s Office, John Peters, PACE trial
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Tribunal orders release of PACE data
ME Action blog post, by Alex Anderssen, 16 August 2016: Tribunal orders release of PACE data A tribunal panel has ordered Queen Mary University of London (QMUL) to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient … Continue reading
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Tagged Alem Matthees, Freedom of Information request, Information Commissioner’s Office, PACE trial, Queen Mary University of London, Simon McGrath, Solve ME/CFS, Steven Lubet, Tom Kindlon, Trevor Butterworth, Valerie Eliot Smith
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PLOS One journal restates position on data sharing to Prof Coyne
In the standoff over release of the PACE PLOS One trial data, has the journal just blinked? by James Coyne, 7 April 2016 I just received (April 7, 2016) another communication from the Managing Editor of PLOS One reporting an … Continue reading
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Tagged data sharing, Information Commissioner’s Office, PACE trial, PLOS One, Prof James C Coyne, Prof Peter White, Queen Mary University of London
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10 organisations call for PACE data release, AYME refuses
ME Action article, 6 March 2016: Ten organisations call for PACE data release, AYME refuses Ten organisations so far have joined ME/CFS patient Clark Ellis’s call to Queen Mary University of London (QMUL) to release data from the PACE trial … Continue reading
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Tagged AYME, data sharing, Information Commissioner’s Office, ME Action, PACE trial
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Government orders release of PACE trial data
The ME Action blog reports that the Information Commissioner’s Office (ICO) has ordered Queen Mary University of London to release anonymized PACE trial data to an unnamed complainant. Queen Mary has 28 days to appeal the decision. The report outlines … Continue reading
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Tagged Dr Richard Horton, Information Commissioner’s Office, Lancet Psychiatry, ME Action, Prof Michael Sharpe, Queen Mary Hospital
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