Tag Archives: PACE trial

PACE trial cost-effectiveness conclusions faulty

Health rising blog post, by Cort Johnson, 31 May 2016: Another Ball Drops in PACE Controversy: Cost-effectiveness Conclusions Faulty – Plus Update Some past efforts to clear up the controversies around the now notorious PACE trials have requested that the … Continue reading

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Complementary & alternative healthcare use by participants in PACE trial

Research abstract: Background: Chronic Fatigue Syndrome (CFS) is characterised by persistent fatigue, disability and a range of other symptoms. The PACE trial was randomised to compare four non-pharmacological treatments for patients with CFS in secondary care clinics. The aims of this sub study … Continue reading

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Are people with ME disabled?

TIPSFORME blog: Are you Disabled?, by Jenny, 15 April 2016 On Twitter there have been some interesting discussions this week about disability identity and ME. I think this is worth everyone with ME thinking about. For most of us ME is … Continue reading

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PLOS One journal restates position on data sharing to Prof Coyne

In the standoff over release of the PACE PLOS One trial data, has the journal just blinked? by James Coyne, 7 April 2016 I just received (April 7, 2016) another communication from the Managing Editor of PLOS One reporting  an … Continue reading

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PACE trial invalidates the use of CBT & GET in ME/CFS

Article abstract: The main findings reported in the PACE trial were that cognitive behavioral therapy (CBT) and graded exercise therapy (GET) were moderately effective treatments for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and fear avoidance beliefs constituted the strongest mediator of both … Continue reading

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PLOS One journal asks researchers for release of PACE trial data

The PACE trial researchers published an article in PLOS One in 2012, a journal that requires authors to allow other researchers access to their data. PLOS ONE notice: Update on follow up, 7 Mar 2016 PLOS ONE is actively following up … Continue reading

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Dr Goudsmit queries use of exercise therapy for ME

Article conclusion: In my view, the PACE trial is not controversial because of lay ‘misunderstandings’ or the  rejection that stress may play a role, but because it is a poorly designed study with missing data, based on a narrow view … Continue reading

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MAGENTA trial – PACE for children

Dr Esther Crawley’s study of activity management and Graded Exercise Therapy in children started in September 2015 and is due to end in August 2016 Tymes Trust comments when calling for an investigation into the PACE trial data: “We are frequently … Continue reading

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WAMES writes in support of releasing PACE trial data

Today WAMES, joins the ME Association, Tymes Trust, 25% Group, Invest in ME and Hope for ME in calling for the release of PACE trial data so that an independent investigation can begin: To: Records and Information Compliance Manager, Queen … Continue reading

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3 more UK doctors join request for independent inquiry into PACE Trial

Dr Charles Shepherd, Dr Nigel Speight, and infectious diseases consultant Dr William Weir have joined 39 other signatories to the open letter to the Lancet which first appeared on Prof Vincent Rancaniello’s ‘Virology’ blog on November 13 2015. The letter was … Continue reading

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