Tag Archives: severe ME
A recumbent isometric yoga program for patients with severe CFS/ME
Research abstract: BACKGROUND: Our previous randomized controlled trial demonstrated that isometric yoga in a sitting position reduces fatigue in patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). However, some patients experience difficulties sitting or practicing isometric yoga in a sitting position … Continue reading
Life stories & photo-elicited diaries of people with severe ME/CFS
Thesis abstract: Myalgic Encephalomyelitis (ME) remains a controversial disease, shrouded in medical and social uncertainty. This thesis examines connections between language, space and representations of becoming diagnosed and living with the often severe effects of this chronic illness. Dominant medical and political institutions, often … Continue reading
MEA to fund new research into biomarkers and markers of disease activity in people with severe ME/CFS
ME Association announcement, 20 December 2016: MEA to fund new research into biomarkers and markers of disease activity in people with severe ME/CFS We are pleased to announce that – following the normal rigorous peer review procedures – the MEA Ramsay … Continue reading
Severe ME in Australia: suffering ignored and denied help
ME Australia blog post, by Sasha Nimmo, 13 September 2016: Severe ME: Suffering ignored and denied help Myalgic Encephalomyelitis is estimated to affect between 0.4% and 1% of the population, according to the International Consensus Criteria primer for medical practitioners, endorsed by Australian … Continue reading
Housebound people with ME have greater physical impairment
Research abstract: Objectives: The objective of this study was to examine individuals with myalgic encephalomyelitis and chronic fatigue syndrome who are confined to their homes due to severe symptomatology. The existing literature fails to address differences between this group, and less severe, nonhousebound patient … Continue reading
The misrepresentation of ME in nursing
Article abstract: Re : Diagnosing and managing chronic fatigue syndrome, by D Roberts in Nursing in Practice 89 (2016) Every nurse has a duty to speak up about wrong practice, or the potential to do harm, I have grave concerns … Continue reading
Low NK Cell activity in CFS and is related to severity
Review abstract: Background: Natural killer (NK) cells act as an immune surveillance against invading pathogens and tumors. NK cell cytotoxicity (NKCC) has been reported to be decreased in patients with CFS. Methods: The objective of this review was to conduct … Continue reading
Immune dysfunction differs in moderate and severe CFS/ME over time
Research abstract: Background: Research has identified immunological abnormalities in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), a heterogeneous illness with an unknown cause and absence of diagnostic test. There have been no CFS/ME studies examining innate and adaptive immune cells longitudinally in … Continue reading
Voices from the shadows – a film about ME, with a warning
The film ‘Voices from the Shadows’ is now available to watch for free until the end of the year – on Vimeo – by entering a promo code of VOICES after clicking the “rent for $3” button. Vimeo also requires … Continue reading
Serum cytokine levels vary in moderate and severe CFS/ME patients
Volume 70, Issue 1, November 2014, Pages 45 Research aims Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a disabling illness with an unknown aetiology and diagnosis is based on symptom-specific criteria. Immunological dysregulation and cytokine abnormalities are consistent in CFS/ME. As … Continue reading
