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The economic impacts of ME/CFS in an Australian cohort
The economic impacts of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in an Australian cohort, by Shara Close, Sonya Marshall-Gradisnik, Joshua Byrnes, Peter Smith, Son Nghiem and Don Staines in Front. Public Health, 21 August 2020 [doi.org/10.3389/fpubh.2020.00420] Research abstract: Objectives: This study aims … Continue reading
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Tagged Australia, Dr Sonya Marshall-Gradisnik, economic impact, Joshua Byrnes, Peter Smith, Prof Donald Staines, Shara Close, Son Nghiem
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35 year-old living in aged care reveals what life is like inside during this pandemic (Aus)
ME Awareness week: Thirty-five-year-old living in aged care reveals what life is like inside during this pandemic From SBS News Insight (Australia) by Ketra Wooding, 9 May 2020: Ketra has been forced to live in an aged care facility due … Continue reading
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Tagged Australia, care home, Ketra Wooding, Lockdown
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Self-management of CFS in adolescents
Self-Management of Chronic Fatigue Syndrome in adolescents, by Katherine Rowe, Amanda Apple and Fiona McDonald in Paediatric Neurology [Working Title] Published online: February 28th 2020 [DOI: 10.5772/intechopen.91413] Book chapter abstract: Chronic fatigue syndrome (CFS) or myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) … Continue reading
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Tagged adolescents, Amanda Apple, Australia, Fiona McDonald, Katherine Rowe, self-management programme, teenagers
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Epidemiology of paediatric CFS in Australia
Epidemiology of paediatric chronic fatigue syndrome in Australia, by Sarah Knight, Shane Elders, Jill Rodda, Adrienne Harvey, Lionel Lubitz, Kathy Rowe, Colette Reveley, Sabine Hennel, Susan Towns, Kasia Kozlowska, Donald N Payne, Sonya Marshall-Gradisnik, Adam Scheinberg in Archives of Disease … Continue reading
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Tagged Adam Schienberg, Adrienne R Harvey, Australia, children, Colette Revely, Donald N Payne, Dr Sarah Knight, Dr Sonya Marshall-Gradisnik, epidemiology, incidence, Jill Rodda, Kasia Kozlowska, Katherine S Rowe, Lionel Lubitz, paediatric CFS, Sabine Hennel, Shane Elders, Susan Towns
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Yet more research shows CFS is real. When will health services catch up?
The Guardian opinion piece, by Naomi Chainey, 21 March 2017: Yet more research shows chronic fatigue syndrome is real. When will health services catch up? Despite hopeful research, it will be years before chronic fatigue syndrome is taken seriously by GPs … Continue reading
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Tagged Australia, Guardian, Naomi Chainey, PACE trial
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Australian researchers get £2.35 million to create ME/CFS diagnostic test
Griffith University press release, by Louise Durack, 1 Dec 2016: $4m grant to aid Chronic Fatigue Syndrome diagnosis Major improvements in the diagnosis of Chronic Fatigue Syndrome are expected following the awarding of $4 million [£2.35 million] in funding to one … Continue reading
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Tagged Australia, biomarkers, diagnostic test, Dr Samantha Johnston, Dr Sonya Marshall-Gradisnik, Griffith University, Prof Donald Staines
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New Australian genetic marker detection study
ME Research UK blog post, 6 November 2016: New study – Genetic marker detection Prof Brett Lidbury and colleagues at the John Curtin School of Medical Research, Australian National University in Canberra are conducting an ongoing programme, funded by charities in … Continue reading
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Tagged Australia, biomarkers, genes, ME Research UK, Prof Brett Lidbury
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ME/CFS: Experiences of the Insurance Safety Net
Research abstract: OBJECTIVES: To examine ME/CFS in the context of dealings with insurance companies. METHOD: The initial phase of the research involved a thorough review of the available literature to establish the interaction of those with ME/CFS with social institutions. … Continue reading
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Tagged Australia, Geoffrey Hallmann, medical insurance, Rosanne Coutts, Yvonne Hartmann
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Severe ME in Australia: suffering ignored and denied help
ME Australia blog post, by Sasha Nimmo, 13 September 2016: Severe ME: Suffering ignored and denied help Myalgic Encephalomyelitis is estimated to affect between 0.4% and 1% of the population, according to the International Consensus Criteria primer for medical practitioners, endorsed by Australian … Continue reading
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Tagged Australia, Sasha Nimmo, severe ME
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