Tag Archives: Simon McGrath

Tribunal orders release of PACE data

ME Action blog post, by Alex Anderssen, 16 August 2016: Tribunal orders release of PACE data A tribunal panel has ordered Queen Mary University of London (QMUL) to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient … Continue reading

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The UK ME/CFS Biobank paves the way for bigger & better research

MEAction blog post, by Simon McGrath, 11 August 2016: The UK ME/CFS biobank paves the way for bigger and better research Simon McGrath reports that the UK ME/CFS Biobank is open for business, with blood samples available from 300 patients, … Continue reading

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Prof Ron Davis’ severe ME study finds problems with energy metabolism

ME Action news article, by Simon McGrath, 4 June 2016: Ron Davis: Preliminary data shows problems with energy metabolism Professor Ron Davis presented new findings from his Big Data study at Friday’s Invest in ME 2016 conference. Davis’s preliminary data … Continue reading

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the Solvable biological challenge of ME/CFS: reader-friendly version

Simon McGrath provides a patient-friendly version of a peer-reviewed paper which he co-authored, and which highlights some of the most promising biomedical research on ME/CFS. Phoenix rising blog post, 12 May 2016: Professor & patients’ paper on the solvable biological … Continue reading

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The biological challenge of ME/CFS: a solvable problem

Article introduction: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is comparable to multiple sclerosis, diabetes or rheumatoid arthritis in prevalence (∼0.2% to 1%), long-term disability, and quality of life,[1–5] yet the scale of biomedical research and funding has been pitifully limited, as … Continue reading

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US NIH plans in-depth ME/CFS study

Simon McGrath reports on: the most in-depth, comprehensive and innovative ME/CFS studies ever proposed: it’s the first fruit of Director Dr Francis Collins’s ‘new start’ for ME/CFS at the US National Institutes of Health (NIH). Dr Nath, who is Chief … Continue reading

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Good recovery rates for ME/CFS following Glandular fever

Sometimes ME/CFS emerges after mononucleosis, or glandular fever. Simon McGrath in his blog Phoenix Rising shares results from a long-term follow-up study from Haukeland University Hospital in Norway … “When will this end?” It’s a question that most ME/CFS patients have … Continue reading

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Hunting the cause – Dr Lipkin’s London talk

Simon McGrath reports on Dr. Lipkin’s talk to patients in London … In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in … Continue reading

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Defining ME/CFS: McGrath comments on Brown/Jason research

Simon McGrath at Phoenix rising comments on the full text (not available free) of Brown and Jason’s paper Validating a measure of myalgic encephalomyelitis/chronic fatigue syndrome symptomatology Extract from : Validating a measure of ME/CFS symptomatology – Brown & Jason … Continue reading

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Prolonged fatigue [CFS] & cytokines post-West Nile Virus infection in USA

Simon McGrath comments on a research paper: Evaluation of Prolonged Fatigue Post–West Nile Virus Infection and Association of Fatigue with Elevated Antiviral and Proinflammatory Cytokines Extract: 31% of the cohort were fatigued at follow-up (44/140) and “Of those with fatigue … Continue reading

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