Tag Archives: Forward ME Group

CBT & GET are ‘unsuitable treatments or management approaches for ME/CFS’

The results of the Forward ME and Oxford Brookes University patient survey on CBT and GET in ME/CFS have been published. 2,274 people with ME/CFS of all ages responded to the online survey with their experiences of cognitive behavioural therapy and/or … Continue reading

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CBT & GET patient survey – ends 31 Jan 2019

CBT and GET Patient Survey Forward ME has launched a survey, having been asked by the National Institute of Health and Care Excellence (NICE) to gather evidence and experiences of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT). NICE … Continue reading

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Forward ME group writes to the Science Media Centre

ME Research UK blog post, 5 April 2018: Forward-ME Group Letter – Science Media Group Forward-ME Group Letter Forward-ME Group Chair, The Countess of Mar, has written on behalf of the members of the Group to the Chief Executive of … Continue reading

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Forward ME Group writes to the Times: patients are ‘not simply deconditioned’

Times online letter, 22 March 2018: TREATMENT FOR PATIENTS WITH ME Sir, The article by Tom Whipple, (“Findings of £5m ME chronic fatigue study ‘worthless’,” Mar 22) highlights a long-standing problem. The National Institute for Health and Care Excellence (Nice) … Continue reading

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Forward-ME Group meeting minutes 7 Feb 2018

Forward ME Group minutes Forward-ME consists of charities and voluntary organisations invited by the Countess of Mar to meet from time to time. The Aim of Forward-ME is to promote effective joint working by ME and CFS organisations to maximise impact … Continue reading

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Forward ME Group minutes 10 Jan 2018

ME Research UK blog post, 12 Feb 2018: Forward ME Group Minutes – 10th January 2018 Minutes of the meeting held  in Residence 2, House of Lords, Wednesday 10 January 2018 starting 2pm Present: Countess of Mar (Chairman); Dr Charles … Continue reading

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The end of the All Party Parliamentary Group on M.E.

Forward-ME Statement: All Party Parliamentary Group on M.E. update and next steps Following discussion between elected officers, the joint Secretariat, and M.E. charity partners, the All Party Parliamentary Group on M.E. (APPG) will not be re-registered at this time. The … Continue reading

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ME charity responses to NICE consultation

Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME   25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading

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GP education & training discussed at Forward ME meeting 7 Feb 2017

The Minutes of the Forward ME Group Meeting held in the Television Interview Room at the House of Lords on Tuesday 7 February 2017, have been posted on the Forward ME website. The guest speaker was Professor Ian Curran Assistant Director … Continue reading

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Forward ME interviews rep from Maximus

The Minutes of the Forward ME Meeting held in the Television Interview Room,  House of Lords, Tuesday on 24 February 2015 contains an interview with Sue Marsh, newly appointed Head of Customer Experience at Maximus, one of the companies providing health assessments for … Continue reading

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