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Monthly Archives: March 2012
Poor effort not a factor in cognitive dysfunction in CFS
An Australian study used the Validity Indicator Profile (VIP) to examine whether reduced effort contributes to the cognitive deficits that are associated with CFS. Unlike most tests of effort, the VIP distinguishes between intentional and unintentional poor performance and does … Continue reading
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Tagged cognitive dysfunction, effort, Validity Indicator Profile, VIP
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Voices from the shadow – people with ME speak out
Voices from the shadows is a compassionate and moving exposé, bearing witness to the devastating consequences of psychiatric prejudice and medical ignorance about one of the most prevalent illnesses of the 21st Century. The film presents interviews with medical experts … Continue reading
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Emily Collingridge 1981 – 2012
Author Emily Collingridge lived with severe ME for 24 years and died in hospital on the 18th March 2012 at the age of 30. Her book Severe ME/CFS: A Guide to Living was written at great cost to her health … Continue reading
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Tagged Emily Collingridge, Guardian, severe ME
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Chronic fatigue improves in first year with or without treatment
Researchers from London studied 222 patients reporting fatigue for over three months. They were given either ‘usual care’ – providing a booklet describing causes of fatigue and self-help techniques based on cognitive behavioural therapy – or NICE-approved therapies such as … Continue reading
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Tagged CBT, Chalder fatigue scale, chronic fatigue, counselling, GET, Kings College London
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MESiG at the Senedd 21st March
The Cardiff based support group ME Support in Glamorgan (MESiG) is meeting AMs in the Senedd on 21st March 2012 to raise awareness of ME and highlight the lack of healthcare available in Wales. MESIG wants ME to be recognised … Continue reading
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Ampligen trial shows benefits for long-standing debilitating CFS
A major study on the effects of Ampligen (Rintatolimod) on CFS provides added proof of Ampligen’s efficacy in ME/CFS following America’s Food & Drug Administration’s refusal to approve Ampligen for CFS in Dec 2009. 234 subjects with long-standing, debilitating CFS … Continue reading
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Tagged ampligen, exercise intolerance
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Nursing Standard article on ME/CFS
Abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a debilitating illness that affects many systems of the body, particularly the nervous and immune systems. The condition affects all age, racial, ethnic and socioeconomic groups. This article focuses on the … Continue reading
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Tagged Amanda McGough, Collette Bennett, diagnosis, Dianne Burns, management, nurses, nursing care, Nursing Standard, rehabilitation
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The impact of stress management skills on CFS
Research from Florida, USA: OBJECTIVES: Stressors and emotional distress responses impact chronic fatigue syndrome (CFS) symptoms, including fatigue. Having better stress management skills might mitigate fatigue by decreasing emotional distress. Because CFS patients comprise a heterogeneous population, we hypothesized that … Continue reading
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Tagged chronic fatigue, stress management skills
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300-mile bicycle ride for ME charity
Welsh Secretary Cheryl Gillan’s special adviser Richard Hazlewood is going on a 300-mile bicycle ride to raise money for charity after his wife Rachel was diagnosed with ME. Next September he will ride the 300 miles between London, Amsterdam and … Continue reading
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Future of research: an e-book
An open access e-book published in Feb 2012 presents 5 articles. A common theme in them all is CFS as a multisystem disease with the possibility of more than one cause and influenced by a variety of interacting factors. Further, … Continue reading
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Tagged corticosteroid-binding globulin gene mutations, gene expression, small heart, viral infections
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