Author Archives: wames
Once again, the PACE authors respond to concerns with empty answers
Article abstract: Once again, the PACE authors respond to concerns with empty answers, by David Tuller in Journal of Health Psychology [Published April 27, 2017] In their response to Geraghty, the PACE investigators state that they have “repeatedly addressed” the … Continue reading
#HelpNHSbeMEaware challenge is not just for ME Awareness week!
Thanks to those who have let us know they have been writing to their Health Boards with their experiences of NHS staff who don’t understand ME, and asking for training and awareness sessions for them. It is not too late … Continue reading
WAMES news blog & social media update
There will be a reduced service on the WAMES news blog and social media between June and August 2017. WAMES has regretfully had to take this decision due to a reduction in the number of hours work that volunteers can give us … Continue reading
Mast Cell Activation Disorder & ME/CFS
Notes on Mast Cell Activation Disorder and ME/CFS, by Margaret Williams, 14 April 2017 Few would dispute that the immunology of ME/CFS is complex and that the findings presented in the literature sometimes appear to be inconsistent. Whilst much has been … Continue reading
Health care use by patients before & after a diagnosis of CFS/ME
Research abstract: Health care resource use by patients before and after a diagnosis of chronic fatigue syndrome (CFS/ME): a clinical practice research datalink study, by Simon M. Collin, Inger J. Bakken, Irwin Nazareth, Esther Crawley, Peter D. White in BMC Family Practice 2017 … Continue reading
Betsi Cadwaladr Health Board invites you to ‘join the conversation’ in North Wales
Betsi Cadwaladr Health Board says ‘Talk to us’ This is a general invitationl to let the Health Board know which issues concern you. The Health Board appointed a clinical lead for ME and CFS some years ago, but so far … Continue reading
Altered B cells found in whole blood gene expression in adolescent CFS
Research abstract Whole blood gene expression in adolescent chronic fatigue syndrome: an exploratory cross-sectional study suggesting altered B cell differentiation and survival, by Chinh Bkrong Nguyen, Lene Alsøe, Jessica M. Lindvall, Dag Sulheim, Even Fagermoen, Anette Winger, Mari Kaarbø, Hilde … Continue reading
ME Awareness – interviews on BBC Radio Scotland
Stephen Jardine programme, BBC Radio Scotland 12 May 2017 Dr Charles Shepherd of the ME Association and Emma Shorter, organiser of #MillionsMissing in Scotland were interviewed on ME Awareness day. Listen online until 10 June 2017 … Continue reading
ME awareness – the MEA revisits the toxic legacy of McEvedy & Beard
ME Association blog post, 10 May 2017: During ME Awareness Week, we revisit the toxic legacy of McEvedy and Beard A paper written by two psychiatrists in 1970 has influenced medical, public and media perceptions of ME as an illness for … Continue reading
