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FITNET’s internet-based CBT may impede natural recovery in adolescents with ME/CFS
Review abstract: FITNET’s Internet-Based Cognitive Behavioural Therapy is ineffective and may impede natural recovery in adolescents with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. A Review, by Simin Ghatineh and Mark Vink in Behav Sci (Basel). 2017 Aug 11;7(3). pii: E52 The Dutch Fatigue … Continue reading
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Tagged adolescents, cognitive behavioural therapy, Dr Mark Vink, Fatigue in Teenagers on the Internet, FITNET, online CBT, Simin Ghatineh, teenagers
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David Tuller comments on the NICE guidelines consultation
Virology blog post by Dr David Tuller, 17 July 2017: Trial by error: the NICE guidelines and more on the CDC Excerpt: … What is obvious, but what NICE appears to overlook, is that the CBT/GET literature is plagued by … Continue reading
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Tagged Cochrane review, David Tuller, FITNET, NICE guidelines, PACE trial, research criteria, subjective outcomes
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WAMES challenges NICE’s reason not to update the CFS/ME guidelines
WAMES sent our response to the NICE consultation on Monday 24th July 2017. NICE asked: Do you agree with the proposal not to update the guideline? WAMES replied: We believe the NICE Guidance CG53 on CFS/ME omits guidelines on key … Continue reading
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Tagged Cochrane review, consultation, FITNET, NICE guidelines, PACE trial, research criteria, subjective outcomes, WAMES
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CFS, Bristol University, & controversial science
The Bristol Cable blog post, by Lorna Stephenson, 7 July 2017: Chronic fatigue syndrome, Bristol University, and controversial science, Trials on certain treatments of chronic fatigue syndrome, or ME, have pitted patients against researchers, and scientists against scientists – amid … Continue reading
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Tagged Bristol University, Dr Esther Crawley, FITNET, Lorna Stephenson, M, MAGENTA trial, PACE trial
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Children with ME need relevant science, not pressure to do more, more, more
Bristol cable article, by Jenny Horner, 24 January 2017: Children with ME need relevant science, not pressure to do more, more, more” An advocate and campaigner living with ME explains why she opposes Bristol University’s trials on children with the … Continue reading
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Tagged Bristol, CBT, cognitive behavioural therapy, Dr Esther Crawley, FITNET, GET, graded exercise therapy, Jenny Horner, MAGENTA trial, PACE trial
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Correspondence continues between Countess of Mar & BBC
The Countess of Mar was unhappy about the BBC’s reply on 21 November 2016 to her official complaint about their reporting of the proposed UK FITNET trial. On 8 December the Countess wrote to the BBC director-general and this has been published by … Continue reading
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Tagged BBC, Countess of Mar, Dr Esther Crawley, FITNET
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BBC reply to Countess of Mar re FITNET reporting
The BBC has replied to the Countess of Mar’s complaint about their reporting of the FITNET trial. 21st November 2016 The Countess of Mar House of Lords London SW1A 0PW Via email: marm@parliament.uk Dear Lady Mar Thank you for getting … Continue reading
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Tagged BBC, Countess of Mar, Dr Esther Crawley, FITNET
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Tuller says FITNET fraught with misrepresentations & methodological problems
Virology blog post, by David Tuller, 21 November 2016: Trial By Error, Continued: The New FITNET Trial for Kids The article challenges: the failure of PACE researchers to acknowledge failings of PACE the unproven use of CBT to reverse false … Continue reading
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Tagged CBT, children, cognitive behavioural therapy, David Tuller, Dr Esther Crawley, FITNET, PACE, Virology blog
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Dutch people with ME invite you to sign their petition – ME is not MUPS
Dutch ME Association ME/cvs Vereniging invites people in Wales to join them in signing a petition to the Dutch Health Council. They are concerned about attitudes to ME following the Dutch FITNET trial (which is now influencing research in the … Continue reading
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Tagged e-petition, FITNET, ME/cvs Vereniging, MUPS
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FITNET & PACE in the media continue to incite controversy
BBC Radio Scotland: The Kaye Adams show on 7 November 2016 included an hour long discussion of ME and the PACE trial. Available to listen to until 6 December. Speakers were an American writer Julie Rehmeyer, and the ME Association’s medical adviser Dr … Continue reading
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Tagged BBC Radio 4, BBC Radio Bristol, Bristol University, CBT, cognitive behavioural therapy, David Tuller, Dr Bruce Levin, Dr Charles Shepherd, Dr Esther Crawley, Dr Phil Hammond show, FITNET, GET, graded exercise therapy, Julie Rehmeyer, Kaye Adams show, MAGENTA trial, Margaret Williams, ME Action, New Scientist, PACE trial
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