Author Archives: wames

Activity pacing is associated with better & worse symptoms in long term conditions

Research abstract: Background: Activity pacing has been associated with both improved and worsened symptoms, and its role in reducing disability among patients with long-term conditions has been questioned. However, existing studies have measured pacing according to uni-dimensional subscales, and therefore the empirical evidence for … Continue reading

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Gastric enterovirus infection: a possible cause of gastroparesis

Research abstract: BACKGROUND: Gastroparesis (GP) is a disabling chronic gastroenterologic disorder with high morbidity that severely impacts patients’ quality of life. GP can present acutely after a viral-like gastrointestinal illness resulting in speculation that in some patients, neurologic damage caused … Continue reading

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Indicator of CFS found in gut bacteria

Cornell Chronicle blog post by Krishna Ramanujan, 24 June 2016: Indicator of chronic fatigue syndrome found in gut bacteria Physicians have been mystified by chronic fatigue syndrome, a condition where normal exertion leads to debilitating fatigue that isn’t alleviated by rest. … Continue reading

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Research project to evaluate daily activity patterns and heart rate

Newswise Stony Brook University blog post, by …, 23 June 2016: Getting to the Heart of Chronic Fatigue Syndrome Stony Brook researcher receives $1.5 million NIH grant to evaluate daily activity patterns and heart rate of those who suffer from … Continue reading

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CFS following low-level radiation exposure

2 articles about the effects of low-level radiation are on the National CFIDS Foundation website at Health of Liquidators (Clean-up Workers) 20 Years after the Chernobyl explosion Chronic Fatigue Syndrome is one of the most important consequences of radioecological disaster resulting … Continue reading

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PACE trial cost-effectiveness conclusions faulty

Health rising blog post, by Cort Johnson, 31 May 2016: Another Ball Drops in PACE Controversy: Cost-effectiveness Conclusions Faulty – Plus Update Some past efforts to clear up the controversies around the now notorious PACE trials have requested that the … Continue reading

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Circulatory Impairment in ME

ME Advocacy Blog post extract, 14 June 2016: Circulatory Impairment in Myalgic Encephalomyelitis: A Preliminary Thesis, by Maryann Spurgin, Ph.D. Here is my proposal: For many years, I have followed and collated research on Myalgic Encephalomyelitis (ME), in particular on … Continue reading

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Can ME/CFS be diagnosed in young children?

Dr David S Bell, eminent American paediatrician, talks about the difficulty of diagnosing ME/CFS in children. Excerpt from: ME/CFS in children Diagnosis in Children For the most part ME/CFS can only be diagnosed in adolescents and older individuals. Children below … Continue reading

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Can simple blood tests help to identify ME/CFS

Health rising forum discussion started by Cort Johnson, 30 April 2016:  Can simple blood tests help to identify Chronic Fatigue Syndrome (ME/CFS)? How great it would be if a doctor could give a teenager with lingering fatigue after infectious mononucleosis/glandular … Continue reading

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Chu says suicide in ME/CFS not always linked to depression and anxiety

Excerpt from article by Dr Lily Chu: Another reason I wanted to write about this topic is to encourage professionals and others to think about reasons for suicide beyond depression and anxiety. This is especially important for ME/CFS since many … Continue reading

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