Author Archives: wames
Make severe ME visible – Severe ME day, Sun 8 Aug 2021
Making severe ME visible An estimated 25% of people with ME are so ill they rarely leave their homes or beds. They feel invisible and ignored. On Severe ME day each year, 8th August, we make a special effort … Continue reading
Introducing WAMES volunteer with severe ME: Michelle
Introducing WAMES trustee & social media volunteer: Michelle Penny Hello, my name is Michelle. I was diagnosed with ME at the age of 10, although it is thought I may have had the condition for about 2 years before … Continue reading
Research: CFS: an emerging sequela in COVID-19 survivors? (Italy)
Chronic fatigue syndrome: An emerging sequela in COVID-19 survivors?, by Elisa Mantovani, Sara Mariotto, Daniele Gabbiani, Gianluigi Dorelli, Silvia Bozzetti, Angela Federico, Serena Zanzoni, Domenico Girelli, Ernesto Crisafulli, Sergio Ferrari, Stefano Tamburin in Journal of NeuroVirology August 2, 2021 Research … Continue reading
Viewpoint: Weir & Speight – ME/CFS: Past, present & future
ME/CFS: Past, present and future, by William Weir and Nigel Speight in Healthcare 2021, 9(8), 984 [doi.org/10.3390/healthcare9080984] Article abstract: This review raises a number of compelling issues related to the condition of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Some historical … Continue reading
Hypothesis: A paradigm for CFS… cranial venous outflow obstruction
A paradigm for chronic fatigue syndrome: caught between idiopathic intracranial hypertension and spontaneous intracranial hypotension; caused by cranial venous outflow obstruction, by J Nicholas P Higgins, John D Pickard in Fatigue: Biomedicine, Health & Behavior, 26 Jul 2021 [doi.org/10.1080/21641846.2021.1956223] … Continue reading
Research: Herpesviruses serology distinguishes different subgroups of ME/CFS patients
Herpesviruses serology distinguishes different subgroups of patients from the United Kingdom Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Biobank, by Tiago Dias Domingues, Anna D Grabowska, Ji-Sook Lee, Jose Ameijeiras-Alonso, Francisco Westermeier, Carmen Scheibenbogen, Jacqueline M Cliff, Luis Nacul, Eliana M Lacerda, Helena … Continue reading
Research: Evaluating routine blood tests according to clinical symptoms & diagnostic criteria in individuals with ME/CFS
Evaluating routine blood tests according to clinical symptoms and diagnostic criteria in individuals with Myalgic Encephalomyelitis /Chronic Fatigue Syndrome, by Ingrid H. Baklund, Toril Dammen, Torbjorn Age Moum, Wenche Kristiansen, Daysi Sosa Duarte, Jesus Castro-Marrero, Ingrid Bergliot Helland, Elin Bolle … Continue reading
Online ME/CFS self-management course to go ahead in North Wales!
Pilot online self-management course for ME/CFS confirmed in North Wales, Aug-Sep 2021 The Health Board has confirmed that there have been enough applicants to make it worthwhile to run the course. A big thank you to all who helped spread … Continue reading
Research: Pathomechanisms & possible interventions in ME/CFS
Pathomechanisms and possible interventions in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS), by Øystein Fluge, Karl J. Tronstad, and Olav Mella in J Clin Invest. 2021;131(14):e150377 [doi.org/10.1172/JCI150377] July 15, 2021 Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disease with … Continue reading
