Author Archives: wames

Research: An alternative model of CBT for CFS/ME

‘A life I can cope with’. An alternative model of cognitive behavioural therapy (CBT) for CFS/ME, by Catherine Clark, Sue Holttum in Health Expectations 2021 [DOI: 10.1111/h ex.13326]   Research abstract: Objectives This study aimed to explore the experience of cognitive behavioural … Continue reading

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WAMES responds to NICE ’roundtable’ announcement

WAMES writes to NICE re ‘Roundtable event’   On 27th August, 10 days after publication of the ME/CFS guideline was ‘paused’, NICE made another announcement. Yet again this gave the bare minimum of information – their plan to invite stakeholders … Continue reading

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Research: An audit of UK hospital doctors’ knowledge & experience of ME

An audit of UK hospital doctors’ knowledge and experience of Myalgic Encephalomyelitis, by Keng Ngee Hng, Keith Geraghty and Derek FH Pheby in Medicina 2021, 57(9), 885; [doi.org/10.3390/medicina57090885] 27 August 2021 (This article belongs to the Special Issue ME/CFS: Causes, Clinical … Continue reading

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ME/CFS guideline (US): ME/CFS Essentials of diagnosis & management

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: essentials of diagnosis and management (see authors below) in Mayo Proceedings, Aug 25 2021 [doi.org/10.1016/j.mayocp.2021.07.004]   Consensus recommendations – introduction abstract: Despite myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) affecting millions of people worldwide, many clinicians lack the … Continue reading

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Biomarker research: The case for hyperbaric oxygen therapy in CFS biomarker identification

Chronic fatigue syndrome and epigenetics: the case for hyperbaric oxygen therapy in biomarker identification, by Rajit J Shah in J Pulmonol Respir Res. 2021; 5: 027-030. [DOI: 10.29328/journal.jprr.1001020]   Review abstract: Chronic fatigue syndrome (CFS) is a poorly-understood respiratory condition that … Continue reading

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Research: Feeling like ‘a damaged battery’: …lived experiences of UK university students with ME/CFS

Feeling like ‘a damaged battery’: Exploring the lived experiences of UK university students with ME/CFS, by Frances Waite, Dely Lazarte Elliot in Fatigue: Biomedicine, Health & Behavior, 23 Aug 2021 [doi.org/10.1080/21641846.2021.1969800]   Research abstract: Introduction: Research regarding students with myalgic … Continue reading

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WAMES ponders the NICE guideline shockwave

WAMES ponders the NICE guideline shockwave How far will it extend?   People with ME/CFS have been looking forward to the publication of the revised NICE guideline on 18th August 2021, since the review process began in early 2018. Frustratingly … Continue reading

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Research: Diffusion tensor imaging (MRI) reveals neuronal microstructural changes in ME/CFS

Diffusion tensor imaging reveals neuronal microstructural changes in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Kiran Thapaliya, Sonya Marshall-Gradisnik, Don Staines, Leighton Barnden in European Journal of Neuroscience, August 6, 2021 [doi/10.1111/ejn.15413]   Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients suffer from … Continue reading

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WAMES writes to NICE

WAMES writes to NICE about publication delays   The shock of yesterday’s announcement from NICE, ‘pausing’ publication of the ME/CFS guideline, was followed up this morning when there was still no announcement about what was to happen next. Are they … Continue reading

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Research review: Redox imbalance links COVID-19 & ME/CFS

Redox imbalance links COVID-19 and myalgic encephalomyelitis/chronic fatigue syndrome, by Bindu D Paul, Marian D Lemle, Anthony L Komaroff, Solomon H Snyder in PNAS August 24,  2021 118 (34); [doi.org/10.1073/pnas.2024358118]   Review abstract: Although most patients recover from acute COVID-19, … Continue reading

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