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- Carnitine conjugation profiling in a selected cohort of patients with CFS
- A critical review to investigate CFS as Sleep Disorder
- Biomedical insights that inform the diagnosis of ME/CFS
- IgG stimulated β2 adrenergic receptor activation is attenuated in patients with ME/CFS
- Welsh MPs take key roles in All Party Parliamentary Group for ME in London
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Tag Archives: Quality of life
CFS & Quality of Life
Chronic fatigue syndrome and quality of life, by Deb Roberts in Patient Related Outcome Measures Vol 2018, #9, pp 253-262 [Published August 1, 2018] Article abstract: Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), is a challenging long-term condition (LTC) with complex … Continue reading
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Tagged Deb Roberts, Patient-Reported Outcome Measures, PROMS, QoL, Quality of life, WHOQoL-Bref26
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Poor self-reported sleep quality & health-related quality of life in patients with CFS/ME
Research abstract: Poor self-reported sleep quality and health-related quality of life in patients with chronic fatigue syndrome/myalgic encephalomyelitis, by Jesús Castro‐Marrero, Maria C. Zaragoza, Sergio González‐Garcia, Luisa Aliste, Naia Sáez‐Francàs, Odile Romero, Alex Ferré Tomás Fernández de Sevilla, José Alegre in … Continue reading
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Tagged Jesús Castro-Marrero, José Alegre, Luisa Aliste, Maria Cleofé Zaragoza, Naia Sáez‐Francàs, Odile Romero, Quality of life, Sergio González‐Garcia, sleep disturbance, Tomás Fernández de Sevilla
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Low mood, poor quality of life & high symptom impact in adolescents attending a tertiary service for CFS/ME
Research abstract: Prevalence and correlates of low mood, poor quality of life and high symptom impact in adolescents attending a tertiary service for chronic fatigue syndrome/myalgic encephalomyelitis, by FK Neale, TY Segal, DS Hargreaves in Archives of Disease in Childhood Vol 103, Suppl … Continue reading
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Tagged adolecents, anxiety, children, depression, Dougal Hargreaves, Dr Terry Segal, FK Neale, mood disorders, Quality of life, teenagers
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Interdisciplinary group treatment may improve quality of life in CFS/ME
Research highlights: Interdisciplinary group treatment may improve quality of life in CFS/ME. Psychological Flexibility (PF) has applied utility in the treatment of CFS/ME. Changes in PF activity/occupational engagement suggest greatest benefit in CFS/ME. Research abstract: Objective: Psychological Flexibility (PF) is a … Continue reading
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Tagged acceptance, Interdisciplinary group treatment, psychological flexibility, QoL, Quality of life
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Impact of sleep quality and fatigue on quality of life in CFS
Research abstract: OBJECTIVES: To explore the interrelationship of different dimensions (fatigue, neuroticism, sleep quality, global mental and physical health) in patients with chronic fatigue syndrome (CFS). METHODS: Patients meeting the Fukuda criteria of CFS filled out two independent fatigue scales (Fatigue … Continue reading
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Tagged chronic fatigue, CIS, Fatigue questionnaire, Patient reported experience measures, PREMS, Quality of life, sleep
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Factors determining fatigue in CFS
Research abstract: OBJECTIVES: To explore the interrelationship of different dimensions (fatigue, neuroticism, sleep quality, global mental and physical health) in patients with chronic fatigue syndrome (CFS). METHODS Patients meeting the Fukuda criteria of CFS filled out two independent fatigue scales … Continue reading
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Tagged chronic fatigue, Quality of life, sleep dysfunction
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Treatment expectations influence the outcome
Research abstract: OBJECTIVE: To improve the effectiveness of treatment in patients with chronic fatigue syndrome it is worthwhile studying factors influencing outcomes. The aims of this study were (1) to assess the association of expectancy and credibility on treatment outcomes, … Continue reading
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Tagged outcomes, Quality of life
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Effect on siblings of children with CFS/ME
Research abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a disabling condition known to have a negative impact on all aspects of a child’s life. However, little is understood about the impact of CFS/ME on siblings. A total of … Continue reading
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Tagged children, paediatric ME, Quality of life, SCAS, siblings, Spence Children's Anxiety Scale
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Characteristics of CFS/ME sub-group who respond to Rintatolimod (Ampligen)
Research abstract: Background: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is a debilitating disease of unknown pathogenesis consisting of a variety of flu-like symptoms including severe fatigue. Initial analysis of the use of rintatolimod (Poly I: Poly C12U), a selective TLR3 agonist, … Continue reading
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Tagged ampligen, Bruce C Stouch, by David R Strayer, Dr Charles Lapp, Dr Daniel Peterson, Dr David Strayer, Dr Lucinda bateman, exercise intolerance, Karnofsky Performance Score, PolyI:C12U, Quality of life, Responders to Rintatolimod, Rintatolimod, Short form 36, Staci R Stevens
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