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Latest News
- Rethinking ME: a report by the All-Party Parliamentary Group on Myalgic Encephalomyelitis
- BCUHB plan to improve ME/CFS services in north Wales
- Aneurin Bevan Health Board plans ME/CFS pathway
- NICE outlines steps needed to put ME/CFS guideline into practice
- Share #LearnFromME quotes on #WorldMEday 2022
Archives
Tag Archives: Quality of life
Research: A comprehensive examination of severely ill ME/CFS patients
A comprehensive examination of severely ill ME/CFS patients, by Chia-Jung Chang, Li-Yuan Hung, Andreas M. Kogelnik, David Kaufman, Raeka S Aiyar, Angela M Chu, Julie Wilhelmy, Peng Li, Linda Tannenbaum, Wenzhong Xiao, Ronald W Davis in Healthcare Vol 9, #10, p … Continue reading
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Tagged Andreas Kogelnik, Angela M Chu, Chia-Jung Chang, David Kaufman, Julie Wilhelmy, Li-Yuan Hung, Linda Tannenbaum, long Covid, Peng Li, Prof Ronald W Davis, Quality of life, Raeka S Aiyar, symptoms, very severe ME/CFS, viral infections, Wenzhong Xiao
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Comparative survey of people with ME/CFS in Italy, Latvia, & the UK (EUROMENE)
Comparative survey of people with ME/CFS in Italy, Latvia, and the UK: a report on behalf of the Socioeconomics Working Group of the European ME/CFS Research Network (EUROMENE) by Elenka Brenna, Diana Araja and Derek F H Pheby in Medicina 2021, … Continue reading
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Tagged Derek F H Pheby, Diana Araja, economic impact, Elenka Brenna, EUROMENE, European Myalgic Encephalo-myelitis/Chronic Fatigue Syndrome (ME/CFS) Research Network, Italy, Latvia, Quality of life, UK
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ME/CFS: major impact on lives of both patients & family members
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Major impact on lives of both patients and family members, by Esme Brittain, Nina Muirhead, Andrew Y Finlay and Jui Vyas in Medicina 2021, 57(1), 43; [doi.org/10.3390/medicina57010043] (This article belongs to the Special Issue ME/CFS: Causes, … Continue reading
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Tagged Andrew Y Finlay, Cardiff University, Dr Nina Muirhead, Esme Brittain, family impact study, FROM-16, Jui Vyas, QoL, Quality of life, WHOQoL-Bref26
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The presence of overlapping quality of life symptoms in primary antibody deficiency (PAD) & CFS
The presence of overlapping quality of life symptoms in primary antibody deficiency (PAD) and chronic fatigue syndrome (CFS), by Rhea A Bansal, Susan Tadros, Amolak S Bansal in Allergy, Asthma & Clinical Immunology Vol 16, no: 21 (2020), March 30, … Continue reading
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Tagged Amolak S Bansal, immunoglobulin replacement therapy, PADS, primary antibody deficiency, QoL, Quality of life, Rhea A Bansal, Susan Tadros
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ME/CFS: significant negative impact of quality of life of both patients & family members
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): significant negative impact of Quality of Life of both patients and family members, by Esme Brittain During my 3rd year at Cardiff medical school, I conducted a 6-week research project looking at the impact … Continue reading
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Tagged Cardiff University, Esme Brittain, Family Reported Outcome Measures, FROM-16, QoL, Quality of life, WHOQoL-Bref26
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CFS & Quality of Life
Chronic fatigue syndrome and quality of life, by Deb Roberts in Patient Related Outcome Measures Vol 2018, #9, pp 253-262 [Published August 1, 2018] Article abstract: Chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), is a challenging long-term condition (LTC) with complex … Continue reading
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Tagged Deb Roberts, Patient-Reported Outcome Measures, PROMS, QoL, Quality of life, WHOQoL-Bref26
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Poor self-reported sleep quality & health-related quality of life in patients with CFS/ME
Research abstract: Poor self-reported sleep quality and health-related quality of life in patients with chronic fatigue syndrome/myalgic encephalomyelitis, by Jesús Castro‐Marrero, Maria C. Zaragoza, Sergio González‐Garcia, Luisa Aliste, Naia Sáez‐Francàs, Odile Romero, Alex Ferré Tomás Fernández de Sevilla, José Alegre in … Continue reading
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Tagged Jesús Castro-Marrero, José Alegre, Luisa Aliste, Maria Cleofé Zaragoza, Naia Sáez‐Francàs, Odile Romero, Quality of life, Sergio González‐Garcia, sleep disturbance, Tomás Fernández de Sevilla
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Low mood, poor quality of life & high symptom impact in adolescents attending a tertiary service for CFS/ME
Research abstract: Prevalence and correlates of low mood, poor quality of life and high symptom impact in adolescents attending a tertiary service for chronic fatigue syndrome/myalgic encephalomyelitis, by FK Neale, TY Segal, DS Hargreaves in Archives of Disease in Childhood Vol 103, Suppl … Continue reading
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Tagged adolecents, anxiety, children, depression, Dougal Hargreaves, Dr Terry Segal, FK Neale, mood disorders, Quality of life, teenagers
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