Category Archives: News
FITNET trial reporting is misleading
Major charities and individuals have joined WAMES in expressing concern about the nature of the FITNET trial being run by Prof Esther Crawley, the lack of objective analysis in the media coverage and the questionable results from the original Dutch trial. WAMES does … Continue reading
Fear & avoidance or a desire for participation? a look at PEM
Livets bilder blog post, by Swedish blogger, 29 October 2016: Fear and avoidance or a desire for participation? A cardinal symptom of ME/CFS is Post-Exertional Malaise (PEM): “There is an inappropriate loss of physical and mental stamina, rapid muscular and … Continue reading
Causes and consequences of autonomic dysfunction in CFS
Thesis abstract: Introduction: Chronic Fatigue Syndrome (CFS) is an incapacitating condition characterised by extreme fatigue. In the absence of an objective diagnostic test CFS remains a clinical diagnosis based on a broad spectrum of symptoms, including autonomic dysfunction and cognitive … Continue reading
A patient’s experience of ME/CFS and gaslighting
The Mighty blog post, by Siobhan Simper, 18 Oct 2016: We cannot continue to let doctors ‘Gaslight’ chronic illness patients Author’s warning: This post contains experiences of gaslighting and abuse. Recently, I saw an all-too-common meme on social media: the inspirational disabled … Continue reading
Could gut dysfunction in Parkinson’s overlap with ME?
ME global chronicle article, October 2016: Parkinson’s disease protection may begin in the gut. Why an article on Parkinson’s in an ME-magazine, one might ask. There seems to be more and more suspicion that there’s overlap between Parkinson’s, Alzheimer’s and ALS with ME. The findings … Continue reading
The thyroid question in FM & ME/CFS
Health rising blog post by Cort Johnson, 24 October 2016: The thyroid question in Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS) Fatigue, lethargy, mental sluggishness, difficulty tolerating heat and cold, depression, joint pain, headaches, morning stiffness…the list goes on and on. … Continue reading
Could one gene help explain ME/CFS, FM, POTS, IBS, EDS, IBS and others?
ME/CFS, FM, POTS, IBS, EDS and others often exist in a kind of swarm of interconnected illnesses. All have been maligned at one time or another because of the wide range of symptoms they produce. How could a biological disease … Continue reading
Severe ME in Australia: suffering ignored and denied help
ME Australia blog post, by Sasha Nimmo, 13 September 2016: Severe ME: Suffering ignored and denied help Myalgic Encephalomyelitis is estimated to affect between 0.4% and 1% of the population, according to the International Consensus Criteria primer for medical practitioners, endorsed by Australian … Continue reading
Welsh Ambulance Trust booklet & app to aid communicating health needs
In 2013 The Welsh Ambulance Trust developed a bilingual Pre Hospital Communication Guide in the form of a small booklet. They have now developed an App version of the guide, which is available for everyone to use, you can download … Continue reading
Dr Bested’s experience of treating gut symptoms in ME/CFS
Altered Gut Microbiome in ME/CFS, by Alison C Bested, October 2016 In 2007 as a doctor specialized in treating patients with Myalgic Encephalomyelitis (ME)/ Chronic Fatigue Syndrome (CFS), I was curious to see if there was a relationship of the … Continue reading
