Category Archives: News

Making a difference for ME in Wales – WAMES team coordinator opportunities

Would you like to help make a difference for ME in Wales but are not sure you have enough time or good health to volunteer in a big way? To make it easier for people to join in we are setting up … Continue reading

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Prevalence of POTS in Dutch people with CFS

Research abstract: BACKGROUND: Postural orthostatic tachycardia syndrome (POTS) is considered a diagnostic marker for chronic fatigue syndrome (CFS). OBJECTIVES: The aims of this study were to (i) compare POTS prevalence in a CFS cohort with fatigued patients not meeting CFS criteria, and … Continue reading

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WAMES challenge – Easyfundraising for Black Friday

Did you know that when you’re shopping online for Black Friday deals you could be raising a free donation for WAMES?   There are over 3,100 shops and sites on board ready to make a donation, including Amazon, John Lewis … Continue reading

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What do you do when a loved one becomes chronically ill?

Third Age blog post, by Suzan Jackson: What do you do when a loved one becomes chronically ill? Sooner or later, it happens to all of us. A beloved friend or family member develops a chronic illness, and their life … Continue reading

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Tuller says FITNET fraught with misrepresentations & methodological problems

Virology blog post, by David Tuller, 21 November 2016: Trial By Error, Continued: The New FITNET Trial for Kids The article challenges: the failure of PACE researchers to acknowledge failings of PACE the unproven use of CBT to reverse false … Continue reading

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Can mould cause CFS?

Article abstract: When we talk with Chronic Fatigue Syndrome patients, we learn that before they became ill, some were exposed to water-damaged buildings (WDB) or other mold sources. This raises two questions: Are people with CFS more likely to have … Continue reading

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CFS and chronic widespread pain in adolescence

Research highlights: 14.6% of adolescents with CFS also experienced chronic widespread pain Females twice as likely to have CFS or CWP Exclusive CFS (vs non-CFS) was associated with higher levels of reported pain and greater effect of pain This association … Continue reading

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The “Starvation” Disease? metabolomics meets CFS down under

Health rising blog post: The “Starvation” Disease? Metabolomics Meets Chronic Fatigue Syndrome Down Under, by Cort Johnson, 10 November 2016 “The pathological nature of the fatigue experienced by ME/CFS sufferers is its inexplicable persistence, severity and its inability to be sufficiently relieved … Continue reading

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ME Association’s Metabolomics study appeals for funds

ME Association: Make ME Better! appeal Our Make ME Better campaign aims to raise £50,000 to fund scientific research which we hope could lead to a breakthrough in diagnosis and treatment of ME/CFS. Led by Dr Karl Morten, scientists from the University … Continue reading

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B cell functional changes & Ca2+dysregulation in ME/CFS

Research abstract: Single nucleotide polymorphisms and genotypes of transient receptor potential ion channel and acetylcholine receptor genes from isolated B lymphocytes in myalgic encephalomyelitis/chronic fatigue syndrome patients, by Marshall-Gradisnik S, Johnston S , Chacko A , Nguyen T , Smith … Continue reading

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