Category Archives: News

Research: Fitbit trackers & PROMs help monitor ME/CFS activity

Activity monitoring and patient-reported outcome measures in ME/CFS patients A small Norwegian study from the team led by Prof Olav Mella and Dr Oystein Fluge trialled wearable activity trackers and questionnaires to monitor heart rate and activity to aid pacing … Continue reading

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Do I need a formal diagnosis of ME/CFS?

Do you have a diagnosis of ME or CFS from the NHS?   For decades many people with suspected ME have not been able to find an NHS professional to confirm their diagnosis. As the NHS has had nothing to … Continue reading

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Understanding ME (and Long COVID)

Understanding Myalgic Encephalomyelitis – Myalgic Encephalomyelitis and Long COVID have overlapping presentation   Dr Sonya Marshall-Gradisnik and Dr Natalie Eaton-Fitch from Griffith University, on the Gold Coast in Australia, say there is a significant overlap in symptoms and possibly the … Continue reading

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Respect and include unpaid carers for people with ME/CFS

Prioritising unpaid carers in new approaches to ME/CFS   Dr Siobhan O’Dwyer, a Senior Lecturer in Ageing and Family Care at the University of Exeter Medical School, consulted carers of people with ME/CFS and concluded they had a key role … Continue reading

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Research: Long COVID, ME/CFS & symptom severity in Germany

Post-COVID-19 chronic fatigue syndrome following the first pandemic wave in Germany and biomarkers associated with symptom severity   German researchers compared ME/CFS and long COVID patients and found even mild C-19 can lead to PEM. Almost half of the LC … Continue reading

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Research: Endothelial cell function in Post-COVID-19 patients, with & without ME/CFS

Serum of Post-COVID-19 Syndrome patients with or without ME/CFS differentially affects endothelial cell function in vitro   The endothelium is a thin membrane that lines the inside of the heart and blood vessels. Endothelial cells release substances that control vascular … Continue reading

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#WAMES_800 Fundraising Journey – 2nd £100 target reached!

#WAMES_800 Fundraising Journey climbs another step towards our goal   Slowly but surely we have taken another step towards reaching our target of £800 to fund next year’s WAMES activities. The £200 milestone has been reached, only £600 to go! … Continue reading

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Treatment research: Oxaloacetate treatment for ME/CFS & Long-COVID

Oxaloacetate Treatment For Mental And Physical Fatigue In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long-COVID fatigue patients: a non-randomized controlled clinical trial   Research abstract: Key points: 6 weeks of treatment led to reduction of fatigue in Long COVID patients … Continue reading

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Research: Impaired TRPM3 ion channel function found in ME/CFS & Long COVID

TRPM3 dysfunction in post COVID-19 condition and ME/CFS patients   Research from the NCNED in Australia, using their Electrophysiology ‘Patch Clamp’ technique, concludes: The results of this investigation suggest that post COVID-19 condition patients may have impaired TRPM3 ion channel … Continue reading

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Delivery Plan on ME/CFS for England

DHSC Delivery Plan on ME/CFS development strategy   The Department for Health & Social Care (DHSC) in England has laid out the way they intend to develop the “cross-Government Delivery Plan on ME/CFS for England”, which their Health Secretary announced … Continue reading

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