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Call for WHO to recognise energy limiting disabilities
World ME Alliance highlights energy limiting disabilities As a founding member of the World ME Alliance WAMES joins ME organisations round the world in calling for better understanding in the WHO of the challenges people with ME and long … Continue reading
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Tagged disabled health equity, energy limiting illness, long Covid, PEM, Post-exertional malaise, WHO, WMEA, World Health Organisation, World ME Alliance
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Announcing the first ever World ME day – May 12th 2022
#WorldMEday 2022 The World ME Alliance, a collaborative of national organisations from across the globe, is launching World ME Day on 12th May this year. All organisations everywhere are invited to join this effort to raise awareness and campaign … Continue reading
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Tagged #LearnFromME, Florence Nightingale, long Covid, ME Awareness day, WHO, World Health Organisation, World ME Alliance, World ME Day
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World ME Alliance writes to WHO re long COVID definition
Will the World Health Organization’s long COVID definition help or hinder? WAMES has joined other members of the World ME Alliance in writing to the World Health Organization (WHO) concerning their recently published definition of “post COVID-19 condition”, commonly … Continue reading
Preliminary ICF core set for patients with ME/CFS in rehabilitation medicine
Preliminary ICF core set for patients with myalgic encephalomyelitis/chronic fatigue syndrome in rehabilitation medicine, by Indre Bileviciute-Ljungar, Marie-Louise Schult, Kristian Borg, Jan Ekholm in J Rehabil Med 2020; 52: jrm0000X [DOI:10.2340/16501977-2697] Lay Abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is … Continue reading
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Tagged ICF, ICF Core Set, Indre Bileviciute-Ljungar, International Classification of Functioning, Jan Ekholm, Kristian Borg, Marie-Louise Schult, WHO
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ME & CFS – no longer classified as ‘Bodily Distress Disorder’ (BDD)
ME & CFS – no longer classified as a ‘Bodily Distress Disorder’ (BDD) by the WHO The World Health Organisation (WHO) have finally accepted that Postviral fatigue syndrome (PVFS) (8E49), Chronic fatigue syndrome (8E49), and Benign myalgic encephalomyelitis (8E49) are … Continue reading
Biotransformation profiles from a cohort of chronic fatigue women in response to a hepatic detoxification challenge
Biotransformation profiles from a cohort of chronic fatigue women in response to a hepatic detoxification challenge, by Elardus Erasmus, Francois E Steffens, Mari van Reenen, B Chris Vorster, Carolus J Reinecke in PLoS ONE 14 (5) May 2019 [https://doi.org/10.1371/journal.pone.0216298] … Continue reading
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Tagged aspirin, B Chris Vorster, Carolus J Reinecke, detoxification, Elardus Erasmus, exposome, Francois E Steffens, Mari van Reenen, paracetemol, WHO, World Health Organisation
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IAFME sends an ‘agenda for change’ for ME to the WHO
IAFME contacts the WHO about ME The International Alliance for Myalgic Encephalomyelitis (IAFME) has produced a trans-national consensus document covering Myalgic Encephalomyelitis (M.E.). Recognition, research and respect: An agenda for change in M.E. has the support of over 60 clinicians, researchers, … Continue reading
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Tagged Alexandra Heumber, Dr Heidi Nicholl, IAFME, International Alliance for ME, Sonya Chowdhury, WHO, World Health Organisation
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WAMES supports IAME letter to the WHO requesting urgent action on ME
International Alliance for ME writes letter to the WHO WAMES has co-signed a letter from the International Alliance for ME to the Director General of the World Health Organisation, Dr Tedros Adhanom Ghebreyesus The aim is to persuade the WHO and … Continue reading
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Tagged Dr Tedros Adhanom Ghebreyesus, IAME, International Alliance for ME, WHO, World Health Organisation
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WAMES supports proposal to continue classifying ME as neurological
WAMES supports proposal to classify ME as neurological WAMES has submitted our comment on a proposal for the revision of the World Health Organisation’s International Classification of Diseases (ICD): The Welsh Association of ME & CFS Support (WAMES) supports the proposal … Continue reading
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Tagged ICD 11, International Classification of Diseases, WHO, World Health Organisation
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Help secure the World Health Organisation’s classification of ME & CFS
ME action blog post: Help secure the World Health Organisation’s classification of ME & CFS Important call to action! We need all hands on deck for a simple, but important task. The World Health Organisation (WHO) is reviewing its International … Continue reading