Category Archives: News
Working with uncertainty: health professionals & children with CFS/ME
Research abstract: This grounded theory study explores conceptualisations of chronic fatigue syndrome/myalgic encephalomyelitis from semi-structured interviews with 10 health-care professionals working with children and adolescents. The findings suggest that a lack of a clear empirical understanding of chronic fatigue syndrome/myalgic … Continue reading
Gwyn’s sponsored walk for ME Research UK
Ex ME Sufferer Gwyn Hopkins is to walk 150 miles to raise money for charity ME Research UK. “I suffered from ME. for 5 years, at first bed bound, then in a wheelchair. I made a complete recovery by the … Continue reading
The essential features of ME & CFS need to be defined
Research abstract: Considerable debate surrounds the search for the defining features of patients with myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). Current case definitions were created through clinical consensus. Failure to operationalize these case definitions has led to considerable … Continue reading
Blood test found to distinguish IBS
Research abstract Diarrhea-predominant irritable bowel syndrome (IBS) is diagnosed through clinical criteria after excluding “organic” conditions, and can be precipitated by acute gastroenteritis. Cytolethal distending toxin B (CdtB) is produced by bacteria that cause acute gastroenteritis, and a post-infectious animal … Continue reading
IOM report comment
Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An IOM Report on Redefining an Illness, by Ellen Wright Clayton MD JD in JAMA March 17, 2015, Vol 313, No. 11 Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multisystem and often long-lasting disorder, with … Continue reading
Prof Alan Light videos on fatigue and gene expression in ME/CFS
Professor Alan Light, from Utah University, talks about his involvement with ME in videos posted on the Dutch Youtube site ME/cvs Vereniging. no. 58 Fatigue – the differences between generalised fatigue and the fatigue of ME/CFS no. 59 Genes & gene expression & … Continue reading
Increased susceptibility to upper respiratory tract infections in CFS
Research abstract: Background: Previous research has suggested that chronic fatigue syndrome (CFS) patients report more upper respiratory tract illnesses (URTIs) than controls. Aims The present study aimed to replicate and extend this research. Method A prospective study of the incidence … Continue reading
ME/CFS – not simply chronic fatigue but multisystem disorder
Research abstract: BACKGROUND: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, chronic illness that is often disabling. This paper introduces the Chronic Fatigue Initiative, which conducted a large multi-center study to more fully characterize ME/CFS and ultimately to describe and … Continue reading
CFS patients want name to reflect physical symptoms
Research abstract: OBJECTIVE: Medically unexplained symptoms/syndromes are common, highly distressing and are often associated with profound disability. One of the controversies surrounding this area relates to which umbrella term should be used to group such symptoms. The purpose of this … Continue reading
sheep dip
Demands grow for inquiry and debate into sheep dip scandal, by Tom Levitt in the Guardian, 27 April 2015 Cross-party support for inquiry and parliamentary debate after newly-published documents reveal government knew of health risk of mandatory chemical dip. A former environment minister … Continue reading
