Category Archives: News
Powys Health Board defends their ME/CFS services
Powys Health Board say they are committed to using NICE guidance WAMES has been asking Health Boards in Wales what plans they have to implement the new NICE guidelines, whether they intend to consult with patients and how they … Continue reading
Severe ME Day August 8th 2022 – Brain Fog
Severe ME Day 2022 Every year we take time on August 8th to remember everyone who is suffering from, or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis. This year we join with people around … Continue reading
Sign up for regular news from WAMES
WAMES e-news Sign up for the latest news from WAMES, straight to your inbox. Read about: the activities of WAMES what is happening in Wales of interest to people with ME & chronic illness ways to get involved and … Continue reading
WAMES & the WMEA warn against the Lightning Process
The Lightning Process: A Position Paper from the World ME Alliance The World ME Alliance and its members do not endorse the Lightning Process for people with Myalgic Encephalomyelitis (ME), sometimes called Chronic Fatigue Syndrome (CFS). The World … Continue reading
Report says neuro services are at crisis point in Wales
My Neuro survey Wales report 2022 from the WNA Whilst we are cognisant that the pandemic has brought with it unprecedented demand on all health and social services, two years hence, the situation for people living with neurological conditions … Continue reading
Research: The depressing truth about depression scales for people with chronic invisible illness
The depressing truth about depression scales for people with chronic invisible illness, by CL Pederson, BM Wagner Research conclusions: People with chronic invisible illnesses like POTS, CFS/ME, EDS, MCAS, and fibromyalgia have numerous and often severe somatic symptoms related … Continue reading
Diagnostic test research: Orthostatic challenge causes the same responses in Long COVID & ME/CFS
Orthostatic challenge causes distinctive symptomatic, hemodynamic and cognitive responses in Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Suzanne D Vernon, Sherlyn Funk, Lucinda Bateman, Gregory J Stoddard, Sarah Hammer, Karen Sullivan, Jennifer Bell, Saeed Abbaszadeh, W Ian Lipkin, Anthony … Continue reading