Category Archives: News
Research: The depressing truth about depression scales for people with chronic invisible illness
The depressing truth about depression scales for people with chronic invisible illness, by CL Pederson, BM Wagner Research conclusions: People with chronic invisible illnesses like POTS, CFS/ME, EDS, MCAS, and fibromyalgia have numerous and often severe somatic symptoms related … Continue reading
Diagnostic test research: Orthostatic challenge causes the same responses in Long COVID & ME/CFS
Orthostatic challenge causes distinctive symptomatic, hemodynamic and cognitive responses in Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Suzanne D Vernon, Sherlyn Funk, Lucinda Bateman, Gregory J Stoddard, Sarah Hammer, Karen Sullivan, Jennifer Bell, Saeed Abbaszadeh, W Ian Lipkin, Anthony … Continue reading
Research review: Molecular hydrogen as a medical gas for the treatment of ME/CFS
Molecular Hydrogen as a medical gas for the treatment of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: possible efficacy based on a literature review, by Shin-ichi Hirano, Yusuke Ichikawa, Bunpei Sato, Yoshiyasu Takefuji and Fumitake Satoh in Front. Neurol., 11 April 2022 … Continue reading
Cwm Taf Morgannwg UHB say they do not offer GET for ME/CFS
Cwm Taf Morgannwg UHB is “aware of the revised ME/CFS NICE guideline” WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think … Continue reading
Swansea Bay UHB implements ME/CFS NICE guideline
Swansea Bay UHB implements ME/CFS NICE guideline WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think their long COVID service might … Continue reading
Ensuring the voice of the very severely affected ME/CFS patient is heard in research
Ensuring the voice of the very severely affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patient is heard in research-a research model, by Helen Baxter Research article abstract: Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant … Continue reading
#WAMES_800 – How can I donate?
#WAMES_800 – How can I donate? It has been great to receive enquiries asking how people can donate money to WAMES. We would like be able to say that we can accept it in any format. In practice we … Continue reading
Research: Clinical characteristics of ME/CFS diagnosed in patients with long COVID in Japan
Clinical characteristics of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) diagnosed in patients with long COVID 16.8% of long COVID patients at a Japanese outpatient centre met the ME/CFS criteria, 51.1% were female. Main symptoms were fatigue and PEM, followed … Continue reading
#WAMES_800 Fundraising Journey – First £100 target reached!
#WAMES_800 Fundraising Journey is underway A big thank you to those who have helped us begin our journey. We have climbed the first step to our target of £800 for next year’s. The £100 milestone has been reached, only … Continue reading