Category Archives: News
Conditions that co-exist with long term CFS
Research abstract Background: Epidemiologic data that inform our understanding of the type, frequency, and burden of co-morbidities with chronic fatigue syndrome is limited. Purpose: To elucidate co-morbid and consequent conditions, using data from a clinical epidemiology study of long-term CFS … Continue reading
Countess of Mar tells House of Lords that people with ME/CFS are treated “abominably” by caring professions
The Countess of Mar, (chair of the Forward ME Group) contributed to a short debate on NHS: Medical Competence and Skill in the House of Lords 7 January 2015. My Lords, I, too, am grateful to the noble Lord, Lord Parekh, for introducing this … Continue reading
In ME/CFS fear of exercise is a reasonable, knowledgeable, and learned response to a noxious stimulus
Prof Mark VanNess responds to the study published in the Lancet claiming that fear of exercise hinders recovery in CFS, in the Just ME blog: I was saddened to see the press releases regarding the ME/CFS studies from Kings College … Continue reading
CFS prevalence and effect on job performance in nurses
Research abstract Background and Objectives: Chronic Fatigue Syndrome (CFS) is a severe, debilitating disorder. Permanent chronic fatigue that affects the daily routine activities at least for six months and 4 of the 8 patients reported symptoms associated with this disorder (problems of memory / … Continue reading
Sleep characteristics, exercise capacity and physical activity in CFS
Research abstract Purpose: Unrefreshing sleep and lowered physical activity are commonly observed in chronic fatigue syndrome (CFS) patients, but how they might influence each other remains unexplored. Therefore, this study simultaneously examined the exercise capacity, sleep characteristics and physical activity … Continue reading
A fatigue self-management approach could be cost effective
Research abstract Background Fatigue is a common yet difficult to treat condition in primary care. The objective of this study is to evaluate the cost-effectiveness of a brief cognitive behavioral therapy (CBT) based fatigue self-management (FSM) intervention as compared to … Continue reading
Isometric yoga improves pain and fatigue in CFS
Research abstract Patients with chronic fatigue syndrome (CFS) often complain of persistent fatigue even after conventional therapies such as pharmacotherapy, cognitive behavioral therapy, or graded exercise therapy. The aim of this study was to investigate in a randomized, controlled trial … Continue reading
Cytokine expression doesn’t reflect symptoms in adolsecent CFS
Highlights of Norwegian research Chronic fatigue syndrome (CFS) might be related to altered cytokine expression. A total of 120 adolescent CFS patients and 68 healthy controls were studied. Individual cytokine levels where similar across the two groups. Cytokine network parameters … Continue reading
Claims of ‘fear avoidance’ in ME are misleading
Following the publication of the latest PACE trail paper in the Lancet on 13th January, there has been a flurry of media reports, many of which promote the findings as good news. Other articles counter the claims saying: people with ME are … Continue reading
Kate and Paul’s story of ME & isolation – online
James Martin’s TV show Operation meet the street looks at loneliness. An episode screened on Dec 18th features young couple Paul and Kate in Ammanford. Kate has ME and Paul is her full time carer. Their story begins at 4mins 50 Simon’s story … Continue reading
