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Latest News
- Modeling disability: softly making the invisible visible
- Sleep problems in adolescents with CFS: a case-control study nested within a prospective clinical cohort
- Review of the quality control checks performed by current genome-wide & targeted-genome association studies on ME/CFS
- Systematic review of the epidemiological burden of ME/CFS across Europe: current evidence & EUROMENE research recommendations for epidemiology
- Heart rate thresholds to limit activity in ME/CFS patients (pacing): comparison of heart rate formulae
Archives
Tag Archives: self management
Paediatric patients with ME/CFS value understanding & help to move on with their lives
Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054] Abstract: Aim: The aim of this study was to document … Continue reading
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Tagged children, education support, Katherine Rowe, paediatric ME, self management, teenagers, young people
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EPP self-management courses in North Wales, July-Sep 2019
Chronic Disease Self Management Programme The CDSMP is an EPP Cymru course to help people who live with a long term health condition to maintain and improve their quality of life through self-management. What does the course involve? Six weekly … Continue reading
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Tagged BCUHB, Betsi Cadwaladr University Health Board, Chronic disease self-management programme, EPP Cymru, North Wales, self management
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Patient perspectives on self-management technologies for CFS
Patient perspectives on self-management technologies for Chronic Fatigue Syndrome, by Tabby Davies, Simon Jones, Ryan Kelly in CHI Conference on Human Factors in Computing Systems Proceedings (CHI 2019), May 4–9, 2019, Glasgow, Scotland UK, 13 pages. https://doi.org/10.1145/3290605. 3300452 Research abstract: … Continue reading
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Tagged digital technology, mobile apps, Ryan Kelly, self management, Simon Jones, Tabby Davies
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EPP self-management courses in North Wales, Jun-July 2019
Chronic Disease Self Management Programme The CDSMP is an EPP Cymru course to help people who live with a long term health condition to maintain and improve their quality of life through self-management. What does the course involve? Six weekly … Continue reading
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Tagged Bangor, Chronic disease self-management programme, Denbigh, EPP Cymru, Kinmel Bay, Llandudno, Mold, Overton, self management, Wrexham
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Intro to self management course, Llandudno 13 Feb 2019
Introduction to self management course a course for adults with long term health conditions & carers at Craig y Don Community Centre, Llandudno Wednesday 13th February 2019, 10-1 pm Introduction to Self Management is a free 3 hour session to … Continue reading
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Tagged BCUHB, Betsi Cadwaladr University Health Board, Conwy county, Education Programmes for Patients, EPP Cymru, Llandudno, self management
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Initiating care of a patient with ME/CFS
Initiating care of a patient with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), by Charles W. Lapp in Front. Pediatr., [Published 23 January 2019] Article abstract: This paper introduces the primary care physician to the unique and challenging aspects of initially … Continue reading
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Tagged Anaerobic threshold, clinical guidelines, doctor patient relationship, Dr Charles Lapp, heart rate monitors, interval activity, self management, time-based activity
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Self management course starts Llanrwst, Conwy 14 Feb 2018
Betsi Cadwaladr UHB Self care course Glasdir Llanrwst, Conwy starts Wed 14 Feb 2018 Ends 21 March 2018 1.30- 4 pm Free The Chronic Disease self-management course covers a range of issues in general terms and doesn’t aim to give information relating … Continue reading
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Tagged Conwy, Education Programme for Patients, EPP Cymru, Llanrwst, self management
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Self management course starts in Wrexham 2 Feb 2018
Betsi Cadwaladr UHB Self care course Capel y Groes, Wrexham starts Mon 2 Feb 2018 Ends 19 March 2018 10.30- 1.30pm Free The Chronic Disease self-management course covers a range of issues in general terms and doesn’t aim to give … Continue reading
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Tagged Betsi Cadwaladr University Health Board, EPP Cymru, self management, Wrexham
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Self-management helpful for idiopathic chronic fatigue
Research abstract: OBJECTIVE: To determine the efficacy of a cognitive-behavioral intervention for patients meeting U.S. Centers for Disease Control and Prevention (CDC) criteria for idiopathic chronic fatigue (ICF). ICF is thought to be a less severe disorder than chronic fatigue … Continue reading
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Tagged CBT, cognitive behavioural therapy, idiopathic chronic fatigue, self management, Tom Kindlon
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Activity pacing (APT) self management approach for CFS
Research abstract: OBJECTIVE: The objective of this study was to evaluate the effectiveness of an activity pacing self-management (APSM) intervention in improving performance of daily life activities in women with chronic fatigue syndrome (CFS). METHOD: A total of 33 women … Continue reading
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Tagged activity pacing, adaptive pacing, APSM, pacing, relaxation, self management
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