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Latest News
- Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME: prioritisation through card ranking
- CMRC conference (March) – tickets & programme available
- Changes in circulating microRNA after recumbent isometric yoga practice by patients with ME/CFS
- ME & CFS – no longer classified as ‘Bodily Distress Disorder’ (BDD)
- The impact of a Structured Exercise Programme upon cognitive function in CFS patients
Archives
Tag Archives: adolescents
Paediatric CFS patients’ & parents’ perceptions of recovery
Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery, by Matthew Robert Harland, Roxanne Morin Parslow, Nina Anderson, Danielle Byrne, Esther Crawley in BMJ Paediatrics Open Vol 3, #1, Dec 2, 2019 Research abstract: What is known about the … Continue reading
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Tagged adolescents, children, Danielle Byrne, Dr Esther Crawley, Matthew Robert Harland, Nina Anderson, paediatric CFS, recovery, Roxanne Morin Parslow, teenagers
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Survey of the experiences of children & young people with ME for NICE
The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading
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Tagged Action for ME, adolescents, AfME, children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, Oxford Brookes University, survey, teenagers, young people
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Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review
Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: a scoping review, by Sarah S Collard, Jane Murphy in Journal of Child Health Care, 4 Aug 2019 [https://doi.org/10.1177/1367493519864747] Review abstract: Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) negatively impacts the quality … Continue reading
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Tagged adolescents, children, Jane Murphy, paediatric CFS, Sarah S Collard, teenagers
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Depressive symptoms at age 9-13 & chronic disabling fatigue at aged 16
Depressive symptoms at age 9-13 and chronic disabling fatigue at age 16: a longitudinal study, by Simon M Collin, Tom Norris, Carol Joinson, Maria E Loades, Glyn Lewis, Stephen A Stansfeld, Esther Crawley in Journal of Adolescence Vol 75, pp … Continue reading
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Tagged adolescents, ALSPAC, Avon Longitudinal Study of Parents and Children, Carol Joinson, chronic fatigue, depression, Dr Esther Crawley, Glyn Lewis, Maria E Loades, paediatrics, Simon M Collin, Stephen A Stansfeld, teenagers, Tom Norris, young people
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MAGENTA trial comment: ‘Targeting activity levels in ME/CFS
Michiel Tack queries some conclusions of the recently published MAGENTA trial paper. Physical activity patterns among children and adolescents with mild-to-moderate chronic fatigue syndrome/myalgic encephalomyelitis, by Emma Solomon-Moore, Russell Jago, Lucy Beasant, Amberly Brigden, Esther Crawley in BMJ Paediatrics Open … Continue reading
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Tagged adolescents, Amberly Brigden, boom and bust behaviour, children, Dr Esther Crawley, Emma Solomon-Moore, Lucy Beasant, MAGENTA trial, Michiel Tack, physical activity, Russell Jago, teenagers
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MicroRNAs as biomarkers of pain intensity in patients with CFS
MicroRNAs as biomarkers of pain intensity in patients with chronic fatigue syndrome, by Hadeel A Al‐Rawaf, Ahmad H Alghadir, Sami A Gabr in Pain Pract. 2019 Jul 8. doi: 10.1111/papr.12817. [Epub ahead of print] Research abstract: BACKGROUND: Numerous experimental models … Continue reading
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Tagged adolescents, Ahmad H Alghadir, children, chronic pain, Dr Sami A Gabr, gene expression, Hadeel A Al‐Rawaf, immune inflammatory genes, microRNAs, miRNAs, teenagers
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The risk of labelling CFS symptoms as unhelpful cognitive responses
The risk of labelling CFS symptoms as unhelpful cognitive responses, by Michiel Tack in Clinical Child Psychology and Psychiatry 1–2 [Published June 18, 2019] https://doi.org/10.1177/1359104519853849 Letter to the editor: Loades, M. E., Rimes, K., Lievesley, K., Ali, S., & … Continue reading
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Tagged adolescents, behavioural responses, boom and bust behaviour, catastrophising, damage beliefs, fear avoidance, Maria E Loades, Michiel Tack, PEM, perpetuating factors, Post-exertional malaise, symptom focusing, teenagers
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Mediating relatedness for adolescents with ME: reducing isolation through minimal interactions with a robot avatar
Mediating relatedness for adolescents with ME: Reducing isolation through minimal interactions with a robot avatar, by Alma Leora Culen, Jorun Borsting, William Odom in Proceedings of the 2019 on Designing Interactive Systems Conference, Pages 359-371 Abstract: This paper discusses how … Continue reading
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Tagged adolescents, Alma Leora Culen, Jorun Borsting, social isolation, teenagers, William Odom
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