Category Archives: News

Genetic research: Fine mapping of the major histocompatibility complex (MHC) in ME/CFS

Fine mapping of the major histocompatibility complex (MHC) in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) suggests involvement of both HLA class I and class II loci, by Riad Hajdarevic, Asgeir Lande, Ingrid Rekeland, Anne Rydland, Elin B Strand, Daisy D Sosa, … Continue reading

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Research: A map of metabolic phenotypes in patients with ME/CFS

A map of metabolic phenotypes in patients with myalgic encephalomyelitis/ chronic fatigue syndrome by Fredrik Hoel, August Hoel, Ina Kn Pettersen, Ingrid G Rekeland, Kristin Risa, Kine Alme, Kari Sørland, Alexander Fosså, Katarina Lien, Ingrid Herder, Hanne L Thürmer, Merete … Continue reading

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UK Gov CFS research funding – Q&A in parliament

UK Parliament Written Question & Answers: CFS 1. Question from Alex Norrie MP, Labour, Nottingham North To ask the Secretary of State for Health and Social Care, how much Government funding has been provided to ME research in each of … Continue reading

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Research: The SARS-CoV-2 receptor ACE2 in ME/CFS

The SARS-CoV-2 receptor angiotensin-converting enzyme 2 (ACE2) in  Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: a meta-analysis of public DNA methylation and gene expression data, by João Malato, Franziska Sotzny, Sandra Bauer, Helma Freitag, André Fonseca, Anna D Grabowska, Luís Graça, Clara Cordeiro, … Continue reading

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Treatment Research: Cortene’s InTime trial of CT38 results in sustained symptom improvement in ME/CFS

Acute Corticotropin-Releasing Factor Receptor Type 2 Agonism Results in Sustained Symptom Improvement in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Gerard Pereira, Hunter Gillies, Sanjay Chanda, Michael Corbett, Suzanne D. Vernon, Tina Milani and Lucinda Bateman in Front. Syst. Neurosci., 01 Sep … Continue reading

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Research: An alternative model of CBT for CFS/ME

‘A life I can cope with’. An alternative model of cognitive behavioural therapy (CBT) for CFS/ME, by Catherine Clark, Sue Holttum in Health Expectations 2021 [DOI: 10.1111/h ex.13326]   Research abstract: Objectives This study aimed to explore the experience of cognitive behavioural … Continue reading

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WAMES responds to NICE ’roundtable’ announcement

WAMES writes to NICE re ‘Roundtable event’   On 27th August, 10 days after publication of the ME/CFS guideline was ‘paused’, NICE made another announcement. Yet again this gave the bare minimum of information – their plan to invite stakeholders … Continue reading

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Research: An audit of UK hospital doctors’ knowledge & experience of ME

An audit of UK hospital doctors’ knowledge and experience of Myalgic Encephalomyelitis, by Keng Ngee Hng, Keith Geraghty and Derek FH Pheby in Medicina 2021, 57(9), 885; [doi.org/10.3390/medicina57090885] 27 August 2021 (This article belongs to the Special Issue ME/CFS: Causes, Clinical … Continue reading

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ME/CFS guideline (US): ME/CFS Essentials of diagnosis & management

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: essentials of diagnosis and management (see authors below) in Mayo Proceedings, Aug 25 2021 [doi.org/10.1016/j.mayocp.2021.07.004]   Consensus recommendations – introduction abstract: Despite myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) affecting millions of people worldwide, many clinicians lack the … Continue reading

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Biomarker research: The case for hyperbaric oxygen therapy in CFS biomarker identification

Chronic fatigue syndrome and epigenetics: the case for hyperbaric oxygen therapy in biomarker identification, by Rajit J Shah in J Pulmonol Respir Res. 2021; 5: 027-030. [DOI: 10.29328/journal.jprr.1001020]   Review abstract: Chronic fatigue syndrome (CFS) is a poorly-understood respiratory condition that … Continue reading

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