Tag Archives: teenagers

Health-related quality of life in Norwegian adolescents living with CFS

Posted on June 10, 2020 by wames

Health-related quality of life in Norwegian adolescents living with Chronic Fatigue Syndrome, by  Wenche Ann Similä, Vidar Halsteinli, Ingrid B Helland, Christer Suvatne, Hanna Elmi, Torstein Baade Rø in Health Qual Life Outcomes. 2020 Jun 5;18(1):170 [doi: 10.1186/s12955-020-01430-z]   Research … Continue reading →

Posted in News | Tagged , , , , , , , , , , , | Comments Off on Health-related quality of life in Norwegian adolescents living with CFS

Sleep problems in adolescents with CFS: a case-control study nested within a prospective clinical cohort

Posted on June 1, 2020 by wames

Sleep problems in adolescents with CFS: A case-control study nested within a prospective clinical cohort, by Maria Elizabeth Loades, Katharine A Rimes, Trudie Chalder in Clinical Child Psychology and Psychiatry, May 22 2020 [doi.org/10.1177/1359104520918364]   Research abstract: Sleep problems have … Continue reading →

Posted in News | Tagged , , , , , , , | Comments Off on Sleep problems in adolescents with CFS: a case-control study nested within a prospective clinical cohort

Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center

Posted on May 1, 2020 by wames

Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center, by Anthony Staples, Nicolas R Thompson and Manikum Moodley in J Child Neurol. Vol 35, Issue 8, 2020 [doi: 10.1177/0883073820916260]   Research abstract: AIM: We characterize the pediatric postural orthostatic … Continue reading →

Posted in News | Tagged , , , , , , , , , | Comments Off on Pediatric-onset Postural Orthostatic Tachycardia Syndrome in a single Tertiary Care Center

Self-management of CFS in adolescents

Posted on March 23, 2020 by wames

Self-Management of Chronic Fatigue Syndrome in adolescents, by Katherine Rowe, Amanda Apple and Fiona McDonald in Paediatric Neurology [Working Title] Published online: February 28th 2020 [DOI: 10.5772/intechopen.91413]   Book chapter abstract: Chronic fatigue syndrome (CFS) or myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) … Continue reading →

Posted in News | Tagged , , , , , , | Comments Off on Self-management of CFS in adolescents

Can linguistic analysis be used to identify whether adolescents with a chronic illness are depressed?

Posted on February 11, 2020 by wames

Can linguistic analysis be used to identify whether adolescents with a chronic illness are depressed?, by Lauren Stephanie Jones, Emma Anderson, Maria Loades, Rebecca Barnes, Esther Crawley in Clin Psychol Psychother. 2019 Dec 15. [doi: 10.1002/cpp.2417]   Research abstract: Comorbid depression … Continue reading →

Posted in News | Tagged , , , , , , , , , , , , | Comments Off on Can linguistic analysis be used to identify whether adolescents with a chronic illness are depressed?

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME: prioritisation through card ranking

Posted on January 23, 2020 by wames

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking, by Roxanne M. Parslow, Nina Anderson, Danielle Byrne, Kirstie L Haywood, Alison Shaw & Esther … Continue reading →

Posted in News | Tagged , , , , , , , , , , , , , , | Comments Off on Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME: prioritisation through card ranking

Paediatric patients with ME/CFS value understanding & help to move on with their lives

Posted on January 13, 2020 by wames

Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054]   Abstract: Aim: The aim of this study was to document … Continue reading →

Posted in News | Tagged , , , , , , | Comments Off on Paediatric patients with ME/CFS value understanding & help to move on with their lives

Paediatric CFS patients’ & parents’ perceptions of recovery

Posted on December 17, 2019 by wames

Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery, by Matthew Robert Harland, Roxanne Morin Parslow, Nina Anderson, Danielle Byrne, Esther Crawley in BMJ Paediatrics Open Vol 3, #1, Dec 2, 2019   Research abstract: What is known about the … Continue reading →

Posted in News | Tagged , , , , , , , , , | Comments Off on Paediatric CFS patients’ & parents’ perceptions of recovery

Survey of the experiences of children & young people with ME for NICE

Posted on September 16, 2019 by wames

The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading →

Posted in News | Tagged , , , , , , , , , | Comments Off on Survey of the experiences of children & young people with ME for NICE

Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review

Posted on September 9, 2019 by wames

Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: a scoping review, by Sarah S Collard, Jane Murphy in Journal of Child Health Care, 4 Aug 2019 [https://doi.org/10.1177/1367493519864747] Review abstract: Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) negatively impacts the quality … Continue reading →

Posted in News | Tagged , , , , , | Comments Off on Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review