Tag Archives: teenagers

Survey of the experiences of children & young people with ME for NICE

The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading

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Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review

Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: a scoping review, by Sarah S Collard, Jane Murphy in Journal of Child Health Care, 4 Aug 2019 [https://doi.org/10.1177/1367493519864747] Review abstract: Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) negatively impacts the quality … Continue reading

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Depressive symptoms at age 9-13 & chronic disabling fatigue at aged 16

Depressive symptoms at age 9-13 and chronic disabling fatigue at age 16: a longitudinal study, by Simon M Collin, Tom Norris, Carol Joinson, Maria E Loades, Glyn Lewis, Stephen A Stansfeld, Esther Crawley in  Journal of Adolescence Vol 75, pp … Continue reading

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MAGENTA trial comment: ‘Targeting activity levels in ME/CFS

Michiel Tack queries some conclusions of the recently published MAGENTA trial paper. Physical activity patterns among children and adolescents with mild-to-moderate chronic fatigue syndrome/myalgic encephalomyelitis, by Emma Solomon-Moore, Russell Jago, Lucy Beasant, Amberly Brigden, Esther Crawley in BMJ Paediatrics Open … Continue reading

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MicroRNAs as biomarkers of pain intensity in patients with CFS

MicroRNAs as biomarkers of pain intensity in patients with chronic fatigue syndrome, by Hadeel A Al‐Rawaf, Ahmad H Alghadir, Sami A Gabr in Pain Pract. 2019 Jul 8. doi: 10.1111/papr.12817. [Epub ahead of print] Research abstract: BACKGROUND: Numerous experimental models … Continue reading

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The risk of labelling CFS symptoms as unhelpful cognitive responses

The risk of labelling CFS symptoms as unhelpful cognitive responses, by Michiel Tack in Clinical Child Psychology and Psychiatry 1–2 [Published June 18, 2019]  https://doi.org/10.1177/1359104519853849   Letter to the editor: Loades, M. E., Rimes, K., Lievesley, K., Ali, S., & … Continue reading

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Medically documenting disability in ME/CFS cases [US]

Medically Documenting Disability in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases, by Barbara Comerford and Richard Podell in Front. Pediatr. 7:231, 2 July 2019 [doi: 10.3389/fped.2019.00231]   Article introduction: Patients with severe myalgic encephalomyelitis/Chronic fatigue syndrome (ME/CFS) experience debilitating physical and … Continue reading

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Mediating relatedness for adolescents with ME: reducing isolation through minimal interactions with a robot avatar

Mediating relatedness for adolescents with ME: Reducing isolation through minimal interactions with a robot avatar, by Alma Leora Culen, Jorun Borsting, William Odom in Proceedings of the 2019 on Designing Interactive Systems Conference, Pages 359-371 Abstract: This paper discusses how … Continue reading

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Illness duration, mood and symptom impact in adolescents with CFS/ME

Illness duration, mood and symptom impact in adolescents with chronic fatigue syndrome/ myalgic encephalomyelitis?, by Francesca K Neale, Deborah Christie, Dougal S Hargreaves, Terry Y Segal in Archives of Disease in Childhood, Jun 13 2019 Letter excerpt: Chronic fatigue syndrome/myalgic encephalomyelitis … Continue reading

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Clinical symptoms & markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection

Clinical symptoms and markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection: an exploratory cross-sectional study, by Miriam Skjerven Kristiansen, Julie Stabursvik, Elise Catriona O’Leary, Maria Pedersen, Tarjei Tørre Asprusten, Truls Leegaard, Liv Toril Osnes, Trygve Tjade, … Continue reading

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