Tag Archives: ME Action

Men & their battle with ME/CFS: online support group, 16 June 2018

ME Action blog post: Living w/ ME Support Group: Men & Their Battle with ME/CFS Join us for our live Support Group (via telephone or computer) this Saturday 16th June at 1 pm EST – (6pm UK time). Topic of the … Continue reading

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Dutch report on CFS downgrades CBT & GET, calls for more research

The Dutch Health Council  report to their Parliament in the Hague on CFS, 19 March 2018. Report in Dutch          Summary in Dutch        Background Google translation of Report into English     Google translation of Summary into English  Google translation of Background into English The Report’s conclusions and … Continue reading

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Ask your MP to sign EDM (271) NICE Guideline on ME

ME Action blog post, 9 September 2017: Ask your MP to sign our EDM BACKGROUND The National Institute for Health and Care Excellence (NICE) are currently deciding whether to change their guidelines on ME. It is a pivotal moment for … Continue reading

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ME charity responses to NICE consultation

Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME   25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading

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#MEAction plans virtual concert for May 6th 2017: submit your art

MEAction plans virtual concert for May 6th: Submit your Art Whether you are a musician, poet or puppeteer, expressing yourself through a body devastated by Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) is suddenly an impossible feat – and … Continue reading

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Citric Acid Cycle is deficient in people with ME/CFS

MEAction blog post, by Adrianne Tillman, 22 Feb 2017: Stanford team announces breakthrough in ME/CFS research A research team at Stanford announced yesterday that it has made some breakthroughs in understanding the metabolic cycles that are not working properly in … Continue reading

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Prof Komaroff’s webinar looks at major areas of ME research

ME Action blog post, by Darla N, 12 November: Dr. Komaroff’s webinar provides hypothesis, hot research and hope Link to webinar In a webinar the Solve ME/CFS Initiative hosted on Nov. 10, Dr. Anthony Komaroff presented his hypothesis on ME’s … Continue reading

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FITNET & PACE in the media continue to incite controversy

BBC Radio Scotland: The Kaye Adams show on  7 November 2016 included an hour long discussion of ME and the PACE trial.  Available to listen to until 6 December. Speakers were an American writer Julie Rehmeyer, and the ME Association’s medical adviser Dr … Continue reading

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PACE trial results were grossly exaggerated

Occupy ME blog post, by Jennie Spotila, 21 Sep 2016: PACE: Grossly Exaggerated On September 9, 2016, Queen Mary University of London released data from the PACE trial in compliance with a First Tier Tribunal decision on a Freedom of … Continue reading

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UK and global petitions to stop GET trials for ME/CFS

The ME Action network has launched a campaign to stop trials into Graded Exercise Therapy (GET): stopget.org UK citizens can sign a petition against all trials for GET on the UK government website: Suspend all trials of graded exercise therapy in children … Continue reading

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