Tag Archives: Alem Matthees

The full independent re-analysis of the PACE Trial now available on open access

ME Association blog post, 22 March 2017: Thanks to the MEA, you can now read the whole independent re-analysis of the PACE Trial recovery paper, 22 March 2017 The independent re-analysis of the PACE Trial recovery paper emerged from behind the … Continue reading

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MEA to pay for open access to independent reanalysis of PACE trial

ME Association blog post, by Tony Britton, 12 Feb 2017: MEA to pay for open access to independent reanalysis paper  The ME Association believe that a recent independent re-analysis of the PACE Trial data is such an important document that … Continue reading

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PACE trial results were grossly exaggerated

Occupy ME blog post, by Jennie Spotila, 21 Sep 2016: PACE: Grossly Exaggerated On September 9, 2016, Queen Mary University of London released data from the PACE trial in compliance with a First Tier Tribunal decision on a Freedom of … Continue reading

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QMUL announces they will release the PACE data

ME Action blog post by Alex Anderssen, 9 September 2016: QMUL releases the PACE data Queen Mary University of London (QMUL) has released the PACE data to a patient who requested it under the Freedom of Information Act, as ordered by a … Continue reading

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Professor says tribunal was right to order release of PACE trial data

The Conversation blog post, by Prof Jo Edwards, 26 August 2016: Tribunal was right to order release of chronic fatigue trial data After nearly four months deliberation a tribunal has dismissed an appeal made by Queen Mary University of London (QMUL) … Continue reading

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More PACE trial tribunal comments

PACE trial ruling: Respondent Alem Mathees main response The essential daily briefing, 19 August 2016: Chronic Fatigue Syndrome sufferers have just had a small victory Health Rising discussion, 17 August 2016: The PACE Trial’s Big Stumble: UK Tribunal Orders Release of PACE … Continue reading

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Tribunal orders release of PACE data

ME Action blog post, by Alex Anderssen, 16 August 2016: Tribunal orders release of PACE data A tribunal panel has ordered Queen Mary University of London (QMUL) to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient … Continue reading

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The cost of fighting PACE trial data-sharing

johnthejack blog post, 29 June 29 2016: Using public money to keep publicly funded data from the public After publication of the PACE trial comparing different interventions (Cognitive Behavioural Therapy [CBT], Graded Exercise Therapy [GET], Adaptive Pacing Therapy and Specialist Medical Care) for … Continue reading

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