Tag Archives: NICE guideline ME/CFS

NICE draft ME/CFS guideline says NO to graded exercise therapy (GET) cure!

NICE draft ME/CFS guideline now out for consultation   The draft of the revised NICE guideline has been published on November 10th 2020. It will be open for consultation until December 22nd. As a stakeholder WAMES will be responding to … Continue reading

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NICE Statement about graded exercise therapy in the context of COVID-19

Statement about graded exercise therapy in the context of COVID-19   NICE is aware of concerns about graded exercise therapy (GET) for people who are recovering from COVID-19. NICE’s guideline on ME/CFS (CG53) was published in 2007, many years before … Continue reading

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Margaret, Countess of Mar, & ME advocate, retires

ME Research UK: The Countess of Mar – an Appreciation 1 May 2020 From 1st May 2020, when the Countess of Mar retires officially from the House of Lords after almost 45 years’ service, the ME community will be losing … Continue reading

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Updated NICE guideline committee list

NICE added an updated (but still incomplete) committee membership list to their website on 1 November 2018.  The Committee will operate as an advisory Committee to NICE’s Board, developing a guideline on ME/CFS. Membership list Chair Peter Barry, Consultant, Paediatric Intensivist, University Hospitals of Leicester Vice … Continue reading

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Final ME/CFS NICE guideline scope published, Oct 2018

Communication RE: NICE guideline on Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (Oct 2020) The final scope and equality impact assessment for this NICE guideline have now been published [Oct 16th], along with all the stakeholder comments that … Continue reading

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WAMES’ response to draft NICE ME/CFS guideline scope

NICE ME/CFS guideline consultation – WAMES’ response to draft scope Before work on the revised guidelines for ME/CFS can commence, the scope of the discussions needs to be agreed. On 26th July 2018 WAMES submitted final comments on the proposed … Continue reading

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